Welcome Sam, I also have Adie's syndrome, but never had the chance to use the piocarpine drops. What are those like? -Nese milkbottlesam wrote:I'm a...
I was just diagnosed this month and was depressed, truly depressed, that first week. I already have unequal pupils from a childhood brain concussion and have...
Thanks, Katie...... My optician said, stop fussing, it's common, but I suspect he was blustering because he didn't really know...... the eye consultant said,...
Hi, My optician recently referred me to my GP with suspected Adie syndrome. I have to wait 8 weeks to see the optomotrist to have this confirmed!! (currently...
I wrote last week and said that I wear "glare" glasses. I've read that someone is wearing photochromic glasses. What are those and do they work well?...
Hi everyone - I decied I couldn't wait 8 weeks and had a private consultation at great cost yesterday! (idiosyncracies of the UK health system!) The Doc. did...
My local hospital, Derbyshire Royal Infirmary, provided my first prescription, with a label on from Moorfields, London: now I give my local chemist a week's...
Hello everyone, I'm 21 years old & I was diagnosed with Adie's syndrome today. I have no idea what to expect. I have had horrible vision since the 4th grade...
Hi! I'm a new member to this group. I'm a 37 yrs male from Sweden that recently have been diagnosed Adie's syndrome. I'm waiting for a MRI to exclude any other...
Hi All... Had the chance to read through all these messages. Very nice to find a group like this. My background... First of all, I'm male (I think one of three...
The question has come up on the board about how to obtain the .125% pilocarpine. Has anyone been able to successfully obtain this concentration??? The...
I was diagnosed this morning. I am a 33year old female. My Ophthalmologist told me the same things that I have read from members of this group. I am grateful...
Hi...Welcome, Adie's since 1992. East Coast USA. You'll definitely have light sensitivity. As for as dangers? I'm assuming since the pupil won't constrict...
Hi all, I am Serra Nicole, I live in West Virginia, USA. I have Adie's Pupil in both eyes. My meds I take are Pilocarpine 1%, one drop per eye every morning....
I am so glad to have found other people out there who can relate, I am a mother of three - and have had people actually accuse me of being on drugs, etc....
Serranic, I find it very interesting that you contacted this thing while working in a casino. I was also working in a casino when it hit me. I wonder if...
Gary Garb
garygarb@...
Nov 16, 2002 12:33 pm
106
Hi, I just found this group and thought I would share my story. I was diagnosed with Adies in 1982 at the age of 27 after noticing my night vision was almost...
Hi everyone. I have read all the emails I found it interesting that a lot of people all have the problem with their left eye. I have read about the various...
... interested ... headaches. I do ... that ... were ... opinion). ... perhaps ... no ... Hi Erin et al, I originated in the UK, but now live in the US. I ...
I too have joint pain, especially in my fingers. I am 34 yo however, I still contributed it to arthritis and saw my physician about it. All tests came back neg...
Same here, my doc said it was probably caused by a virus, and my night vision is also almost non existent. Yes, it is a benign condition, but it's also...
My ct scan came back normal too, I didn't start wearing glasses untila few months before the adies was diagnosed. I am thinking about getting contacts becuase...
Gary and new members, If you look through the message archive of this group, alot of people have done research, including myself, as the cause of this. I've...
Check the archives, and start there. There is plenty of information to start yourself off with. monicafaye1 <jpb@...> wrote:Hi, I just found this group...
I haven't read anywhere about a rash being one of the symptoms of aide's. As for contacts, I don't wear any, does anyone else? In my research I haven't seen...
From my understanding from my neuro-opthomologist, Aide's affects the nerve tissues in the back of the eye as well. This same tissue area is also where...
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