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81 brads_princess66
brads_prince... Offline Send Email
Aug 3, 2002
12:00 pm
Hello, Four weeks ago, while applying eyeliner i noticed that my right pupil was much larger than the left and i thought it was odd but wasnt alarmed by it....
82 PrecisionTile4U@...
cherylepaquette Offline Send Email
Aug 5, 2002
11:53 am
Corie, What did the optometrist say? Did they measure the pupil size, etc? Do you have migraines with or without aura? Cheryl...
83 milkbottlesam Offline Send Email Aug 29, 2002
12:30 pm
I'm a middle-aged woman living in the English Midlands, recently diagnosed with Adie's pupil, using piocarpine drops to control it and wearing photochromic...
84 MStafford@...
pea007nut Offline Send Email
Aug 29, 2002
3:12 pm
Hi Sam, I am from Pennsylvania-USA. Was diagnosed in 1992. Tried the pilocarpine drops at first, it was nice to get the old vision quality back . However the...
85 Katie Trudgett
ktrudgett Offline Send Email
Aug 30, 2002
5:37 pm
Hi Sam, I am in my late twenties and as you can see from some of the previous notes I have had Adies for a long time. I tried the drops for a while but they...
86 Sokenunese Myles
adzaa_nez26 Offline Send Email
Sep 12, 2002
1:07 pm
Welcome Sam, I also have Adie's syndrome, but never had the chance to use the piocarpine drops. What are those like? -Nese milkbottlesam wrote:I'm a...
87 GardnJewel@...
valleyjewel356 Offline Send Email
Sep 12, 2002
1:07 pm
I was just diagnosed this month and was depressed, truly depressed, that first week. I already have unequal pupils from a childhood brain concussion and have...
88 Sam
milkbottlesam Offline Send Email
Sep 12, 2002
1:07 pm
Thanks, Katie...... My optician said, stop fussing, it's common, but I suspect he was blustering because he didn't really know...... the eye consultant said,...
89 racmc2002 Offline Send Email Sep 12, 2002
1:07 pm
Hi, My optician recently referred me to my GP with suspected Adie syndrome. I have to wait 8 weeks to see the optomotrist to have this confirmed!! (currently...
90 GardnJewel@...
valleyjewel356 Offline Send Email
Sep 12, 2002
1:07 pm
I wrote last week and said that I wear "glare" glasses. I've read that someone is wearing photochromic glasses. What are those and do they work well?...
91 racmc2002 Offline Send Email Sep 12, 2002
1:07 pm
Hi everyone - I decied I couldn't wait 8 weeks and had a private consultation at great cost yesterday! (idiosyncracies of the UK health system!) The Doc. did...
92 Sam
milkbottlesam Offline Send Email
Sep 14, 2002
1:24 pm
My local hospital, Derbyshire Royal Infirmary, provided my first prescription, with a label on from Moorfields, London: now I give my local chemist a week's...
93 racmc2002 Offline Send Email Sep 27, 2002
12:00 pm
Thanks Sam - that sounds hopefull. I should be able to get hold of some. Rachel ... my ... saying ... that ... drops?? ... Service....
94 elilizann Offline Send Email Oct 17, 2002
3:39 pm
Hello everyone, I'm 21 years old & I was diagnosed with Adie's syndrome today. I have no idea what to expect. I have had horrible vision since the 4th grade...
95 Magnus
sungamsweden Offline Send Email
Oct 26, 2002
1:42 pm
Hi! I'm a new member to this group. I'm a 37 yrs male from Sweden that recently have been diagnosed Adie's syndrome. I'm waiting for a MRI to exclude any other...
96 jeffusanyc Offline Send Email Nov 2, 2002
2:57 pm
Hi All... Had the chance to read through all these messages. Very nice to find a group like this. My background... First of all, I'm male (I think one of three...
97 jeffusanyc Offline Send Email Nov 2, 2002
2:57 pm
The question has come up on the board about how to obtain the .125% pilocarpine. Has anyone been able to successfully obtain this concentration??? The...
98 reneelewellyn Offline Send Email Nov 2, 2002
2:57 pm
I was diagnosed this morning. I am a 33year old female. My Ophthalmologist told me the same things that I have read from members of this group. I am grateful...
99 MStafford@...
pea007nut Offline Send Email
Nov 4, 2002
2:41 am
Hi...Welcome, Adie's since 1992. East Coast USA. You'll definitely have light sensitivity. As for as dangers? I'm assuming since the pupil won't constrict...
100 jeffusanyc Offline Send Email Nov 4, 2002
8:52 pm
I'd like to see if anyone else has interest i helping me start-up a non-profit organization that would apply for a grant under the Food and Drug...
101 Sokenunese Myles
adzaa_nez26 Offline Send Email
Nov 8, 2002
6:13 pm
Hey all, jeffusanyc <jeff@...> wrote: My big question: I'm hearing about people going outdoors, and experiencing vision problems after exposure to...
102 Serranic
serranicole Offline Send Email
Nov 8, 2002
6:15 pm
Hi all, I am Serra Nicole, I live in West Virginia, USA. I have Adie's Pupil in both eyes. My meds I take are Pilocarpine 1%, one drop per eye every morning....
103 tumbleweeedz05 Offline Send Email Nov 16, 2002
12:32 pm
I am so glad to have found other people out there who can relate, I am a mother of three - and have had people actually accuse me of being on drugs, etc....
104 muffygirl2003 Offline Send Email Nov 16, 2002
12:33 pm
Hi. I was finally diagnosed with Adie's eye about two weeks ago. It was quite stressful at the time. I've still got a CT scan booked although the...
105 Gary Garb
garygarb@... Send Email
Nov 16, 2002
12:33 pm
Serranic, I find it very interesting that you contacted this thing while working in a casino. I was also working in a casino when it hit me. I wonder if...
106 monicafaye1 Offline Send Email Nov 16, 2002
12:33 pm
Hi, I just found this group and thought I would share my story. I was diagnosed with Adies in 1982 at the age of 27 after noticing my night vision was almost...
107 muffygirl2003 Offline Send Email Nov 16, 2002
12:33 pm
Hi everyone. I have read all the emails I found it interesting that a lot of people all have the problem with their left eye. I have read about the various...
108 sarasaunt2002 Offline Send Email Nov 16, 2002
12:34 pm
... interested ... headaches. I do ... that ... were ... opinion). ... perhaps ... no ... Hi Erin et al, I originated in the UK, but now live in the US. I ...
109 Renee N. Papadenis
reneelewellyn Offline Send Email
Nov 16, 2002
11:14 pm
I too have joint pain, especially in my fingers. I am 34 yo however, I still contributed it to arthritis and saw my physician about it. All tests came back neg...
110 jeff tumbleson
tumbleweeedz05 Offline Send Email
Nov 16, 2002
11:26 pm
Same here, my doc said it was probably caused by a virus, and my night vision is also almost non existent. Yes, it is a benign condition, but it's also...
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