I have had Adies for about 2 yrs now, and have finally got to a place
where I can read in comfort again. I wore glasses anyway but my px was
not that strong. With the Adies, my affected eye was so much worse then
my clear eye that my brain couldn't process the huge differnce in
prescription. I went through many pairs of glasses, contacts (the toric
kind for astigmatisim), and combos of the two. What finally worked for
me is to wear a reg contact in my affected eye, then bifocals that also
take care of the astigmatisim on top of the contact. The one contact
helps bring my affected eye closer in prescription to my unaffected eye
then the bifocles take care of the the reading.

I also bought prescription wrap around sunglasses. They make life so
much easier!

Naydene

Dear Jim,

I have not heard of any association between Adie's pupil and
protonopia, then again, there isn't much research out there on
Adie's. Indeed the condition is supposed to affect mostly females
between the ages of 20 and 40, however, there are exceptions to this.
Is it the same eye that is giving you trouble now? Is your pupil
still dilated or have you had any progress?

As far as light is concerned, investing in a good pair of sunglasses
I think is the best option possible. I know people use Pilocarpline
solution which is mostly experimented with so that the percentage of
pilocarpine in the saline solution suits their individual needs. I
have to admit that I hated using the thing and that my
ophthalmologist also suggested that in the long run and with
continuous use, Pilocarpine can have side effects like Glaucoma. I
think having Adie's is enough for me at the moment, so I am not using
any chemicals. Going back to my optometrist a few times to adjust my
prescription has been just about the only solution and even that
doesn't guarantee huge results.

Hope I've been of help,

Best regards,

Sophia


--- In adie_syndrome@yahoogroups.com, "bty378407" <jimmybee@t...>
wrote:
> Hi,
> have just re-discovered that I have Adies syndrome. I had my eyes
> tested when I was ten or eleven and the opthalmist told my mother
> that I had Adies pupil. Unfortunately, she never got around to
> telling me. After suffering blurred vision and headaches, I had my
> eyes tested (some 17 years later!). They prescribed me normal
> glasses, but they don't seem to have done anything - only made my
> sight worse and my headaches more familiar!
> I have a couple of questions for you:
> Am I right in thinking that this condition affects mostly women?
> I also suffer from protonopia which makes it difficult to
> distinguish colours - this seems to give me much better vision at
> night time - especially when driving. Although when another cars
> headlights blaze through the window, I'm almost blinded.
> does anybody else here suffer from both colour blindness and adies
> syndrome? Would be great to find some tips or suggestions to make
> sunshine more bearable!
>
> Thanks all for your help,
> Jim

I will be out of the office starting  06/09/2004 and will not return until
06/14/2004.

I will be out of the office starting Wednesday,6/8/04 for our annual
partners' meeting and will not return to the office until Monday morning,
6/14/04.  I will not have access to email.


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or service agreement.

Hi,
I have been diagnosed with Adie's by a opthamologist/neurologist. 
However, I was referred to him by my opthamologist (an iritis
specialist 'cause I had that too)- who had previously ruled out
Adie's because I have very strong reflexes (both upper and lower). 
Do any of you have strong reflexes too?  Do they decrese over time?

Also, my Adie's pupil is only slightly larger- you really have to
look hard to notice it.  Did any of you start out this way and the
too?

Hi,
have just re-discovered that I have Adies syndrome. I had my eyes
tested when I was ten or eleven and the opthalmist told my mother
that I had Adies pupil. Unfortunately, she never got around to
telling me. After suffering blurred vision and headaches, I had my
eyes tested (some 17 years later!). They prescribed me normal
glasses, but they don't seem to have done anything - only made my
sight worse and my headaches more familiar!
I have a couple of questions for you:
Am I right in thinking that this condition affects mostly women?
I also suffer from protonopia which makes it difficult to
distinguish colours - this seems to give me much better vision at
night time - especially when driving. Although when another cars
headlights blaze through the window, I'm almost blinded.
does anybody else here suffer from both colour blindness and adies
syndrome? Would be great to find some tips or suggestions to make
sunshine more bearable!

Thanks all for your help,
Jim

Hi,
I have been diagnosed with Adie's by a opthamologist/neurologist.
However, I was referred to him by my opthamologist (an iritis
specialist 'cause I had that too)- who had previously ruled out
Adie's because I have very strong reflexes (both upper and lower).
Do any of you have strong reflexes too?  Do they decrese over time?

Also, my Adie's pupil is only slightly larger- you really have to
look hard to notice it.  Did any of you start out this way and the
too?

over the last few weeks, something weird has happened, when i've
been tired, my eye has had a dull pain and then when i've looked in
the mirror my pupil has been the same size temporarily as the other
one? also, once when i kicked my leg up, the same thing happened! i
know it sounds strange, but does anyone else experience this?
lucy

I don't get headaches but I have not been able to focus my bad eye
enough to read for a year now. I can read the computer as I can sit far
enough away and make the font good sized. My Dr. and I have tried soooo
many different combo's of glasses (reg and Bi focal), contacts (torics,
I have astigmatisim as well in both eyes). I was really about to give
up! The toric contacts I just couldn't find a good fit and I tried
every one on the market.

A large part of my problem is my vision in my good eye isn't that bad,
so the difference in the two eyes made it very difficult to find
something that would work. Most of the easy fixes wouldn't work because
the difference in the two eyes was such a big difference that my brain
couldn't compute it and I would be dizzy and couldn't see out of either
eye!

Today I think we may have found something to work, at least we are on
the right track. I have a reg. contact in my bad Adies eye, and then I
am wearing bi-focal glasses on top of that. So just one contact and
bi-focals. The glasses take care of the astigmatisim, so I don't have
to wear toric contacts, the contact combined with the bi-focal in the
one eye really helps me focus so I can read!!!!!!

If anyone else is having focus problems give it a try!

Naydene

----- Original Message -----

From: linja@...

To: adie_syndrome@yahoogroups.com

Sent: Tuesday, May 25, 2004 9:46 PM

Subject: [adie_syndrome] Pupil dilation problem in Gulf War illness

I found this interesting. This is the first time I saw pupil dilation grouped with other symptoms as a nerve problem.

 

Linja

 

http://www.ngwrc.org/NewsArticle.cfm?NewsID=84
Sick Gulf War veterans show pattern of nerve problems

by Deborah Funk, Army Times 07/01/2003

The part of the central nervous system that controls such actions as heart
rate, metabolism and pupil dilation does not work properly in some sick
veterans of the 1991 Persian Gulf War, researchers now have shown by
objective physiological measurements.
"It is a piece of the puzzle," said lead researcher Antonio Sastre, senior
adviser for life sciences at the Midwest Research Institute in Kansas City,
Mo.
Using a battery of tests that showed the autonomic dysfunction, the
research team also found that veterans who had unusual forms of a blood
protein and were exposed to environmental hazards have a substantially
higher risk of Gulf War illnesses...

----- Original Message -----
From: "rachelodenkirk" <rodenkirk@...>
To: <adie_syndrome@yahoogroups.com>
Sent: Wednesday, May 26, 2004 4:24 AM
Subject: [adie_syndrome] Headaches from lack of focus?


> I was wondering if anyone has had persistant headaches from their
> adies eye inability to focus??  Lately it seems that I am taking
> Tylenol EVERYDAY for them.  I am due to see my Dr. soon for an
> annual checkup, and want to be prepared to douse her with questions
> she may not be able to answer.... I know, not nice to do to someone
> who has only read about this problem, but at least she could
> diagnose it unlike the first Dr. I saw.
>
> Also, has anyone ever had any success with trying the "bi-focal"
> contacts??  I am thinking that maybe I could get one of those for my
> adies eye and a regular contac for my "good" eye(vision was already
> pretty bad prior to the new complication of adies).
>
> And one more thing, has anyone gotten over being depressed about the
> fear they feel when a totally beautiful sunny day comes along??  I
> cringe whenever my 2yo daughter begs to go outside and play.  It
> seems that no matter what I do the sun ends up giving me a major
> headache.
>
> Thanks for your input.  I haven't written in for a pretty long time
> due to that whole thing a while back about a lot of us
> being "whiners" about our condition.  I think we all deserve to
> whine a bit.  My life was pretty normal until last April, and now I
> hide my eyes, can't be without sunglasses even on a cloudy day, and
> always have a good supply of tylenol on me!
>
> Rachel
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>

I was wondering if anyone has had persistant headaches from their
adies eye inability to focus??  Lately it seems that I am taking
Tylenol EVERYDAY for them.  I am due to see my Dr. soon for an
annual checkup, and want to be prepared to douse her with questions
she may not be able to answer.... I know, not nice to do to someone
who has only read about this problem, but at least she could
diagnose it unlike the first Dr. I saw.

Also, has anyone ever had any success with trying the "bi-focal"
contacts??  I am thinking that maybe I could get one of those for my
adies eye and a regular contac for my "good" eye(vision was already
pretty bad prior to the new complication of adies).

And one more thing, has anyone gotten over being depressed about the
fear they feel when a totally beautiful sunny day comes along??  I
cringe whenever my 2yo daughter begs to go outside and play.  It
seems that no matter what I do the sun ends up giving me a major
headache.

Thanks for your input.  I haven't written in for a pretty long time
due to that whole thing a while back about a lot of us
being "whiners" about our condition.  I think we all deserve to
whine a bit.  My life was pretty normal until last April, and now I
hide my eyes, can't be without sunglasses even on a cloudy day, and
always have a good supply of tylenol on me!

Rachel

just wondering if anyone could help me..
i'm currently working on a show where i have to be outside in the
sunshine.. when asked to stand in for guests, the camera did a close
up and asked me to give my eye line to the other guest (which meant
taking off my sunglasses and a real close up on my eyes!).. i found
it quite upsetting as 100 people could all see. i've tried
pilocarpine which doesn't agree with me, and coloured contacts make
one of my pupils look off centre?
is there anything else i could try?
if i'd known it was gonna be outdoors, never would have taken the job
but have signed the contract and so am a little stuck!!
thanks
lucy x

> One little question
> does anyone else get like a form of conjunctivitas every couple of
> weeks or a creeping tightening feeling across the forehead this is
> the symptoms that annoy me most.

I get this too and it is very annoying. It is usually when I am
stressed or have strained the eye too much. I wear dark wrap glasses
outside at all times.

My biggest complaint is I can't read up close any longer. We have gone
round and round with contacts and different glasses and so far (it's
been a year) nothing works well. My other good eye is so different in
Rx that we are finding it hard to get a good match, plus the
astigmatisim in both eyes doesn't help. I has been a year since I could
read a book! That makes me sad.... :(

Other than that it hasn't been too bad, no real pain or anything at
least.

Naydene

I've noticed that, since acquiring adie syndrome, it is easier to get
conjunctivitis when I have a cold.
----- Original Message -----
From: "bron19592000" <bron19592000@...>
To: <adie_syndrome@yahoogroups.com>
Sent: Saturday, April 17, 2004 10:50 AM
Subject: [adie_syndrome] Hi Im new


> Hi Im new to this site. was diagnosed 4 months ago It is really
> amazing how little information there  is and I still am not sure I
> understand fully what I have. I actually think this site has been the
> most informative out of all the medical sites. One little question
> does anyone else get like a form of conjunctivitas every couple of
> weeks or a creeping tightening feeling across the forehead this is
> the symptoms that annoy me most. I don't get any headaches my
> reflexes are fine I just look like a lopsidded cat. (Night driving is
> not real good either).
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>

Hello all
I heard of someone with Adies pupil who uses an infra-red light
inside her car to make it easier to drive at night. I did a google
search for it and found this place. Although I am new to this site, I
have had some time to get used to the syndrome. I was diagnosed in
1991. I was working in a hospital as a phlebotomist at the time. My
double vision was making it very difficult for me to do my job. The
double vision eventually went away but I ended up having to quit my
job due to the 20 mile commute to work. No matter what shift I
worked, I either had to drive to work in the dark or drive home in
the dark. Pilocarpine drops only made it worse.

Now most of the time I forget that anything is wrong with my eye. The
eye pain has become a small annoyance. Another annoying thing is the
way colors look in my garden in the bright sun. Sometimes the grass
looks dead and brown in my left eye (the afflicted eye). It looks
green in my good eye. It is something in-between in both eyes
together. The hue of flowers is also different. My ophthalmologist
said there is a possibility the right eye could be afflicted some
day. Hope that never happens. But hey, imagine how boring our lives
would be without a few challenges thrown in from time to time. For
me, the night vision is a big challenge. Living in rural rainy
Oregon, it has limited my employment options. Has anyone heard of
using infra-red light to improve night vision?

To all of you recently diagnosed people:
It can be a bit scary at first, but give it some time and be patient.
Give your brain some time to adjust and things should get better.

Teresa

--- In adie_syndrome@yahoogroups.com, "reneelewellyn"
<rplewellyn@a...> wrote:
> Has your home ever been flooded or had excessive moisture in the
> basement or any other room in your home, place of work, or school?
>
>
> --- In adie_syndrome@yahoogroups.com, "MStafford"
<Mstafford220@c...>
> wrote:
> > Not sure.  You don't always know that mold is around.

Every house experiences mold and nearly 100percent of the population
would have been exposed. I don't see the connection sorry

--- In adie_syndrome@yahoogroups.com, "reneelewellyn"
<rplewellyn@a...> wrote:
> Has your home ever been flooded or had excessive moisture in the
> basement or any other room in your home, place of work, or school?
>
>
> --- In adie_syndrome@yahoogroups.com, "MStafford"
<Mstafford220@c...>
> wrote:
> > Not sure.  You don't always know that mold is around.

Every house experiences mold and nearly 100percent of the population
would have been exposed. I don't see the connection sorry

Hi Im new to this site. was diagnosed 4 months ago It is really
amazing how little information there  is and I still am not sure I
understand fully what I have. I actually think this site has been the
most informative out of all the medical sites. One little question
does anyone else get like a form of conjunctivitas every couple of
weeks or a creeping tightening feeling across the forehead this is
the symptoms that annoy me most. I don't get any headaches my
reflexes are fine I just look like a lopsidded cat. (Night driving is
not real good either).

I was diagnosed three months ago all a bit of a shock I have been
looking at this site since day 1 I was just wondering if anyone else
can feel the pupil getting bigger and smaller in different lights
with a kind of tightening uncomfortable feeling behind the eye and if
anyone else gets cold sores that can be felt in the eye as well.
Thanks.

Was diagnosed 1 month ago and have just found this site. I have never
heard of this condition before then. It is interesting reading I had
a very emotional trauma 3weeks before with one of the kids well
actually the whole of 2003 was pretty messed up then I got this red
mark between my eyes and broke out in coldsores the doctor said it
was stress and sent me home then I was lying down and my eye started
well you would call it pulsating and the room went weird like a
vertigo attack and that was it one pupil bigger than the other.
Havn't had too many headaches and my pupil is best in the morning but
I start to look like the cat the later it gets and especially after
being on the computer.  I was told that this was pretty rare but only
yesterday discovered the lady that lives behind us has the same thing
and she says she has met quite a few others. Is it that rare. Also I
really think coldsores have something to do with it I have had a few
in the last weeks and can feel them affecting my eye. The doctor says
it isn't shingles so it can't be that.Anyway when reading through all
the information on this site I wonder if it is just a chain of events
that causes this Ie stress causes coldsores causes nerve damage to
pupil add this to age sex etc. The eye doctor seemed totally
uninterested when he figured out it was Adies and virtually said see
ya later. Would love to know your thoughts  Thanks

Hi
I was diagnosed with Adies about 7 years ago.  Not a problem.  Soon
got used to it.  Only thing was, it was in my right eye which
was 'lazy', so apart from having to wear dark glasses to cut out the
light, it didn't affect my vision too much.
Now, seven years on, and my right eye behaving 'normally' (well, the
pupil, not the sight) and I now have Adies in my left eye.
We're experimenting with all the usual stuff, pilocarpine  drops, a
contact lens with a restricted size pupil area.... but I'm having
trouble just SEEING things.  Any suggestions (apart from sitting in
a dark room all day, not driving, not working).
Would like some advice, if there's anyone out there with their
thinking caps on.
Thanks!
Sue

Hello all
I have had Adies in my left eye since 1991. It was very scary at
first but things have gotten much better since then. For the most
part, the double vision has gone away. The eye pain is now just a
small annoyance. Unfortunately, the night vision is just as bad as
ever. Pilocarpine drops only make it worse. I live in rural rainy
Oregon and have a 20 mile commute along a dark and foggy lake. For
me, the biggest challenge has been finding employment that does not
require either driving to work or home in the dark. I have heard that
some people find it helpful to use infra-red light inside their car.
I would love to know if anyone here has heard of that.

Thanks.
Teresa

Hello to you in the group, today I was diagnosed with Adie syndrome.
The Dr. told me that it usually doesnt affect vision but with time
the pupil would become smaller as I age. It is only my right eye and
my right knee has diminished reflexes. That is about all that he
could tell me other than that he wanted to see me back in a month. I
did ask him if it was related to MS as my mom died from that disease
when I was a small child. I look forward to learning about this
condition and was surprised to read in some of the posts about the
trouble with night vision as for the last year I have had trouble
driving at night. However, Sunday was the first day that I have had
an enlarged pupil. How strange to see this huge pupil staring back
at me in the mirror, I also wear bifocals.
Cathy

All:

I currently wear tinted contact lenses and they definitely mask my
Adie's pupil; it is less evident than without the tinted contact
lenses.  I've got light blue eyes and I wear a darker shade of
blue.  I tried on various different colors and various shades of
blue and ended up with the UV-protected, blue tinted ones I wear
today.  My optomistrist was very helpful.  But, like Rhianno,
initially my pupil was soooo large that the blue tint from the
contact lense blurred my vision.

To reduce the size of my pupil, I use dilated pilocarpine drops
while I'm wearing the contacts.  A personalized solution can be made
for you by a pharmacy after consultation with your opthalmalogist.
For me, only seven drops of 1% solution of pilocarpine into a 15 ml
eye dropper saline solution.  I place a drop in my affected eye
about once every one to two hours or so and it does the trick; my
pupil constricts to about 'normal' (in ambient (indoor) light)) and
then 'fits' into the opening of the tinted contact lenses; no more
blurred vision.

FYI, I've also found that at night I stop with the drops.  My pupil
slowly dilates and fills in to the tinted portion of the contact
lenses.  Meanwhile, my healthy pupil natually dilates because of the
reduced lighting at night time.  It almost looks normal.  The outer
tinted ring of the contact lense makes both pupils look the same
size when it gets dark and they (the pupils) extend to or slightly
beyond the inner ring of the tinting.

Like John stated, some people can tell you're wearing contacts
(based on the lighting at the moment), but I'd rather look like I'm
wearing contacts (many people wear them) than be readily noticed
with the Adie condition (a very rare, misunderstood condition).

Finally, I notice no difference on the 'feel' of the contact lense
in my Adie eye versus my normal eye; same/same.  Both my eyes are
sensitive and I'd prefer not to wear contact lenses, but, for me,
the benefit outways the cost.

Until they find a cure (and I do believe one is possible), I'll
continue to wear tinted contacts.

Good Luck!     Paul

-- In adie_syndrome@yahoogroups.com, John Reiter
<johnreiter2001@y...> wrote:
> Hi.  I tried several shades of blue contacts (my eyes
> are blue) but I did not like the way they looked.  I
> thought that they looked artificial, and they would
> draw attention to my eyes more than they would mask
> the difference in pupil size.  My vision was OK with
> them -- no better or worse than normal.  However, I
> say go for it and give it a try. They may work for
> you.
>
> I do wear UV protection lenses with a very very slight
> blue tint, at the recommendation of my optometrist.
>
> Good luck.
>
> --- Rhiannon Krigsvold <krigsvoldr@y...> wrote:
> > Hi Michaela
> >    I did try to get colored contact lenses.  I
> > thought
> > it would make my larger pupil less noticable.  But
> > when I was trying them out, because my pupil was soo
> > large I could actually see the colored part of the
> > contact and that blurred my vision.  I figured that
> > alone would bug me more then people commenting or
> > just
> > not having contacts.  So I wear clear ones and
> > glasses
> > instead.  I mean you could try it out... but I
> > happen
> > to work in a very bright atmosphere so my pupil
> > stays
> > large for most of the day.  It did basically make it
> > not as noticable.  Depending on the color of the
> > contact.  I went for dark blue, cause I have blue
> > eyes.  I would suggest taking to the optometrician
> > about it.  Good luck!!
> > --- michaela_rees <michaela_rees@y...> wrote:
> > >
> > >  Hi All
> > > Has anyone tried tinted contact lens, do they help
> > > at all and what do
> > > they look like when wearing them, and a coloured
> > > contact lens with a
> > > small pupil painted on which is suppose to let
> > less
> > > light in has
> > > anybody tried these.
> > > Regards Michaela
> > >
> > >
> >
> >
> > __________________________________
> > Do you Yahoo!?
> > Yahoo! Search - Find what you're looking for faster
> > http://search.yahoo.com
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >      adie_syndrome-unsubscribe@yahoogroups.com
> >
> >
> >
>
>
> __________________________________
> Do you Yahoo!?
> Yahoo! Search - Find what you're looking for faster
> http://search.yahoo.com

Greetings to All:

I'm a new member, a U.S. Naval Officer currently living in Naples,
Italy.  I was diagonosed with Adie's Pupil in September 2002 at the
Bethesda Naval Hospital in Washington, D.C.  (The President's
hostipal.)  It is also the location of the National Eye Institute.
They were unable to provide me much help.  In fact, I was told that
there is no ongoing research underway relative to Adie's Pupil.
Outlined below are bullets that sum up my "spin" on this ailment:

*  I believe there are lots of different reasons for getting Adie's
Pupil, a virus, genetic, a dental connection, migraines, etc.  In my
case, I believe the cause could have been a virus (herpes zoster, I
had chicken pox in the past), genetic (mother and brother have had
small cases of 'bells palsey', a related condition), I had just had
lots of dental work done and my mother has a history of migraines.
Best bet, in my case:  virus and/or dental work.  (The medical
community likes to declare "a virus" when they don't have a clue.)

*  I believe a "cure" is possible, but, the medical profession is
effectively, ignoring us; there are not enough of us and there is no
money (the all-mighty dollar) to me made.  The human body is
incredible and can "cure" itself.  Analogous to a broken bone, if an
Adie's eye is placed in the right environment (like the cast to help
a bone heal), there is a much better chance that the eye will heal
properly.  When my pupil first dilated, it was fixed, totally non-
responsive, and my fixed pupil measured about 7 mm.  It would not
move for light or for accommodation.  It held this way for the first
few weeks.  Today (16 months later), my dilated pupil is not as
large and the nerves to the pupil have regenerated on their own,
but, improperly.  I have full accommodation (acutally, over-
accommodating) AND, some slight response to light.  The reason for
this is:  1)  90-95% of the cillary ganglion nerves are for
accommodation, and 2) light impedes (tears) the repair of the light
sensitive (responding) nerves (the other 5-10% of the nerves).
Because of that it is very difficult to ever gain full light
responsiveness.  IF the medical profession could figure out how to
create an environment to allow the eye to heal properly (i.e., cover
the eye, wear darkened (bandage) contact lenses that get
progressively "lightened" over time (i.e., slow reintroduction of
light), use of "steriod" and/or "growth hormone" drops, etc.), then
the return of a normal pupil is possible.  To date, our eye care
professionals are doing nothing...and provide minimal to no medical
care.  The "do nothing" approach does not work.  I know more about
Adie's pupil than most eye care professionals and I'm an engineer.
(Kinda scary.)

*  I have light blue eyes, a dilated pupil is very evident.  I now
wear dark blue, colorized contacts every waking moment AND I use
diluted pilocarpine drops that I mix myself.  I get a 15 ml bottle
of saline water solution from my optometrist (I get them for free),
pop off the top, and (on my own) place SEVEN DROPS of pilocarpine
(from a 1% solution bottle that I obtain by presciption) and wala,
I'm done.  I place a drop in my eye every two hours, while I'm
wearing the contacts.  I've had no problems to date.  Of course,
when you do the mixing, you must wash you hands and keep
everything 'sterile'.  I'm not about to pay ridiculous ('special
order') prices to have some pharmacy mix it, effectively using the
same procedure that I use.  The 15 ml lasts about a month.  This
practice may work for others, but the concentration you use will
probably vary.  Everyone is different.  I had to 'practice' several
times before I got the concentration that worked for me.  (By the
way, for those thinking I'm crazy for doing this 'on my
own..it's 'unsterile'...it's unsafe...think about this...While
taking a shower, have you ever gotten tap water in your eyes?  Ever
opened your eyes while swimming underwater?  How sterile is that?
Just be careful, sterile and use common sense.)

*  I have lost NONE of my reflexes, including the knee reflex.  And,
I have not noticed an increase in my sweating and I never get
headaches.  I am very light sensitive and my eyes now water often.
(Any way to mitigate watering eyes?)

*  I do notice an improvement on how my pupil appears/reacts as the
day progresses; bad in the morning, great by late afternoon and
early evening.

Sorry for the long e-mail; lots to share.  FYI, I'm also going to
stop letting eye care professionals tell me "it's no big
deal"...it's "only cosmetic"..."it's benign"..."you'll learn to live
with it"..."it could be worse"..., etc.  That's all BS.  It is a BIG
DEAL.  It does effect our vision (blurry and light sensitive), gives
many others headaches and misc 'aches and pains' and it is a cancer
of the worse kind, cancerous to your soul...your self-image and self-
confidence.  Let's not let them make up excuses for their inability
to properly care for those with Adie's pupil.

That's my spin.  I hope it helped/enlightened some; I did not intend
to offend or upset others.  (If I did, I'm sorry.)  I do have
hope...and, will never lose it.  Don't ever lose hope.

Take care and God bless...   Paul

Enter your vote today!  A new poll has been created for the
adie_syndrome group:

After being diagnosed with Adie's
seven years ago in my right eye, I now
have it in my left eye.  Anyone else
in a similar situation, and if so,
what's the time scale?

   o No
   o Yes 1 year
   o Yes 2 years
   o Yes 3-5 years
   o Yes 6-10 years
   o Yes over 10 years


To vote, please visit the following web page:

http://groups.yahoo.com/group/adie_syndrome/surveys?id=1230760

Note: Please do not reply to this message. Poll votes are
not collected via email. To vote, you must go to the Yahoo! Groups
web site listed above.

Thanks!

hello..
since watching a documentary recently about unusual conditions, i've
been thinking about looking into making a programme about adies
syndrome.
is anyone interested in joining me?

Has your home ever been flooded or had excessive moisture in the
basement or any other room in your home, place of work, or school?


--- In adie_syndrome@yahoogroups.com, "MStafford" <Mstafford220@c...>
wrote:
> Not sure.  You don't always know that mold is around.