Hey all, It has been some time; just wanted to let you know that I had another visit to my neuro-opthomologist the other day, and everything check out fine. I...
Hi Nese, Those dilating drops are something, aren't they? Even with my regular sunglasses, I kept squinting for hours. No changes with me. I too had ...
Hi have just joined the group after trying to find some info on adies syndrome on the internet. Have read all the messages and found out some interesting...
Kimmy, Welcome ; ) I thought there was mention of water retention from one of our other members. Don't know how common it is among this group, but I did ...
Hello Everyone, Just thought I would check in and say hi to everyone as I haven't written for so long. I had a hospital appointment yesterday where they were...
Hi Katie, Do you mean 3-D as in those funky glasses? Don't know for sure, I've never tried the glasses, at least since I've had Adie's. I do know that all...
Hi all, I have joined the group and have been watching the mails. I was interested in the number of people who highlight the fact that they get headaches. I do...
Erin, Here's a link. http://www.eyecare-information-service.org.uk/pages/information/disorders/adiespupil.htm It basically says that the syndrome itself does...
Hi all, I have also noticed I have a problem with water retention, but I haven't read anywhere that it could be a symptom of Aide's syndrome/pupil. -Nese ...
Hi Erin, From the time I was first pregnant (25 years ago) to maybe a year ago, I got incredible migraines and have always been told that the headaches and...
Hi Kimmy, I found out about 10 years ago that I have an Adie's pupil and they feel I was in my 20's when I got it. I too have weird or no reflexes in my...
Hi Everyone, I wonder if you can stand any more "new" questions :) I was lying in bed about a month ago and my husband said "do you know your pupils aren't...
Hello, Four weeks ago, while applying eyeliner i noticed that my right pupil was much larger than the left and i thought it was odd but wasnt alarmed by it....
I'm a middle-aged woman living in the English Midlands, recently diagnosed with Adie's pupil, using piocarpine drops to control it and wearing photochromic...
Hi Sam, I am from Pennsylvania-USA. Was diagnosed in 1992. Tried the pilocarpine drops at first, it was nice to get the old vision quality back . However the...
Hi Sam, I am in my late twenties and as you can see from some of the previous notes I have had Adies for a long time. I tried the drops for a while but they...
Welcome Sam, I also have Adie's syndrome, but never had the chance to use the piocarpine drops. What are those like? -Nese milkbottlesam wrote:I'm a...
I was just diagnosed this month and was depressed, truly depressed, that first week. I already have unequal pupils from a childhood brain concussion and have...
Thanks, Katie...... My optician said, stop fussing, it's common, but I suspect he was blustering because he didn't really know...... the eye consultant said,...
Hi, My optician recently referred me to my GP with suspected Adie syndrome. I have to wait 8 weeks to see the optomotrist to have this confirmed!! (currently...
I wrote last week and said that I wear "glare" glasses. I've read that someone is wearing photochromic glasses. What are those and do they work well?...
Hi everyone - I decied I couldn't wait 8 weeks and had a private consultation at great cost yesterday! (idiosyncracies of the UK health system!) The Doc. did...
My local hospital, Derbyshire Royal Infirmary, provided my first prescription, with a label on from Moorfields, London: now I give my local chemist a week's...
Hello everyone, I'm 21 years old & I was diagnosed with Adie's syndrome today. I have no idea what to expect. I have had horrible vision since the 4th grade...
Hi! I'm a new member to this group. I'm a 37 yrs male from Sweden that recently have been diagnosed Adie's syndrome. I'm waiting for a MRI to exclude any other...
Hi All... Had the chance to read through all these messages. Very nice to find a group like this. My background... First of all, I'm male (I think one of three...
The question has come up on the board about how to obtain the .125% pilocarpine. Has anyone been able to successfully obtain this concentration??? The...
I was diagnosed this morning. I am a 33year old female. My Ophthalmologist told me the same things that I have read from members of this group. I am grateful...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
