I have today been told that i have Holmes Adie Syndrome. I have an appointment with a specialist on Thursday at my local hospital. I am a bit freaked out about...
Welcome Marie, This syndrome is rare. Doctors are not sure what causes it (virus, trauma, pecurser of another disease...). I already wear glasses so I'm use to...
marie, don't worry, over time you will adjust to it. there's no explanation as yet to why it happens but if you can think back to anything in the past five...
Maybe I'm grasping at straws here, but it seems so strange that this condition is associated with a lack of reflex in the opposite leg. I have other symptoms...
Hi Marie, First off, I love your name! Caonsidered using it for my now 2 year old. Anyway, I also have just the dialated pupil with no focusing ability. I...
i have noticed that in evening light my pupil goes to exactly the same size as the other (as in constricts) and although my reflexes are not good although...
Dear Lucy, Ihave the same strange thing in the evening but i think it is due to tiredness therfore relaxing of the muscles sometimes it hurts whrn it reduces...
Hi Thanks to everyone for their encouraging support, I saw the Doctor today who did seem to know less about the condition than me as some of you rightly said,...
aytonsenna12 <aytonsenna12@...> wrote: Hi Marie, It is not possible to get the same condition in both eyes , the problem is with the optic nerve root on...
just reading yall's post' make me feel better!! i have been told everything from having MS to a brain tumor to an anyrism...i guess Adie's was a real relief...
Lucy, It's rare so, not enough people to make back research $. No people, no $, no research. And most drs. believe this syndrome is non-progressive. mrs...
Hi there, Just to say that it is possible to have the condition in both eyes. I have Adies in both. It started in one and then about 2 years later the other...
... Hi Bob They tried the pinhole test at the hospital and if anything i found reading harder. I have spoken with an optician about some reading glasses as the...
Yes! I have tension on that side also. My neck usually feels stiff, I have a problem with the ulnar nerve, and I have a problem with the sciatic nerve(not ...
Yes, it is frustrating that so little research is going on. I found an article on Medscape once in which a researcher found a slight increase in occurence of...
Firstly i would like to apoligise to anyone who this e-mail upsets or offends. Basically when i recieve e-mails of other peoples messages it depresses me!!! i...
Enter your vote today! A new poll has been created for the adie_syndrome group: did the message - Sorry if this upsets you!!! upset/offend/or make a ...
adie_syndrome@yahoogr...
Jan 10, 2004 2:23 pm
648
I look at the emails I receive as a source of information. I was never told about reflex problems, pilocardine drops etc. None of the emails are offensive to...
Enter your vote today! A new poll has been created for the adie_syndrome group: Have you ever been diagnosed with thyroid problems? o Hyper thyroidism...
adie_syndrome@yahoogr...
Jan 10, 2004 4:01 pm
650
It didn't upset me but I think Charlotte should remember that not everyone here has had 11 yrs to get used to having this condtion. Good for her that she can...
Hello!! I have only written once on here but I do read everything that comes thru. I just wanted to voice a couple of things. I too have Adies and I was...
Charlotte, Totally agree with you you should live with it and not let it get you down David Bowie isnt doing too bad and he has been affected all his life For...
Don't mean to upset anyone either.... FYI.....I've read that it may take 2 to 8 years to get a definite diagnosis for Sjogren's and that Adie's may be the...
that is a very sensible message, thankyou and i couldn't agree more. at times some of the messages have depressed me but it's also helped me to understand the...
just out of curiousity, what do you think the stats are for people with adies to get this sjogrens?? i've been scared enough for a year and a half thinking...
Shelly, No idea. My guess is that pure adie's is rarer than sjogren's. So that makes me think the odds of having sjogren's is higher than adie's. Then again...
Shelly wrote: <<just out of curiousity, what do you think the stats are for people with adies to get this sjogrens?? >> Shelly, I don't know but I wouldn't...
Does anyone have lots of tension on the affected side in their neck and shoulder? and sometimes i have shooting pains from above my eye to the nape of my...
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