Hi All, Glad to have found this group. It has taken a while for me to get my diagnosis of Holmes-Adie's Syndrome. I have had the symptoms for quite a long...
I was dx'd with Adies' back in March 0f 2001....nothing much has changed as far as the eye goes.....in fact I can actually see letters better out of my Adies'...
i do have muscle twitches and have done since i was 21, although i have only had adies for about a year?? could be linked... i would really like to hear from...
I did have muscle twitches around my right eye for a couple of months before I noticed the pupil had changed. At the time I didn't think anything of it but...
Hi Everyone: I have been reading the messages on this site for a while and decided to add my two cents. My diagnosis was a few months ago, and I am 58 years...
David Bowe's pupil difference is actually due to a childhood injury. ... From: Robert Batey [mailto:bobbikesandantiques@...] Sent: Wednesday, August...
Well, never bothered to look into this diagnosis until now - I do have the no knee jerk reaction, dizziness and needed glasse for distance about 7 years after...
I have been reading these messages on and off for some time and have found some interesting similarities between all of the cases. Anyway to give you my...
hello, yes, i have numbness in my top lip and right face and doctors are the same about it. have had alot of amoxycillin over the last few years so i think it...
I am a little frustrated at these doctors as well. I have talked to an Optoneurologistwho is supposed to be one of the fore-most researchers in this area and...
Mine pupil will constrict if I focus on an up close small object...it will constrcict to the size of my good eye...but then when I take my eye off the small...
Let see...I'll try and remember the sequence of my sx's 1) Strep Throat - MArch 2001 2) Shot of Penicillin 3) Noticed Adies Eye next day 4) Diffuse muscle...
Did anyone have a virus or fever prior to the onset of the Adie's Pupil ? I had Strep throat and a fever of about 102....and then a shot of Penicillin....I...
Recently I have been experiencing twitching in my arms, legs, eye. It almost is like I am subconciously trying to control this. However, there is no real...
when i first talked to a neurologist about the muscle twitches eight years ago he decided that i had some sort of epilepsy, even though i've never had a...
This is my first post to the group. I was diagnosed with Adie's after I had a detached retina and cataract surgery. I found my left eye was dilated and that...
Hello everyone! I just was diagnosed today and like a lot of you went strait to my computer to find out more. Didn't get far!! I am 26 and female. I live in...
I believe that this question has come up before. My specialist see's about two people a year that are diagnosed with Adie's Pupil or Adie's Syndrome. ...
Hi Don't panic too much about the blurred vision. From what I have read from people in this group and from what I experienced myself - it does settle down....
hi, it seems to me that the pupil does constrict over time, and i have been told this by morefields hospital so i feel it would be a shame to just accept...
Hi everyone I dont know about what everyone else feels about having adeis pupil, and i know there is much worse that we can be afflicted with, which i remind...
GET OVER IT! Every time I looked someone in the eyes for about 6 months I would say " are you looking at my eye? " and often they would say why whats wrong...
Troy, Very true what you say people seldon notice the enlarged pupil , it is more noticible if you have blue eyes. Medical people also notice because of their...
I agree! People notice my pupil only after I mention it, then they squint, look real close and say OOHH. I have blue eyes and it's pretty noticeable when you...
hi mate.. i used to be an actress and model and was told my eyes were my best asset also so i do know how you feel. i've changed careers, sometimes these...
All, Dont forget we all have something in common with a famous artist --------------Mr David Bowie has a very pronounced pupil and it didnt do him any harm ! I...
I was recently diagnosed with Adie's syndrome. I cannot remember having a virus, but I have been around someone with rheumatic fever about 5 months before...
I was recently diagnosed with Adie's syndrome. I cannot remember having a virus, but I have been around someone with rheumatic fever about 5 months before...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
