hi there... i know how you feel as i have pain and blurry vision and often think people are staring at me. strangely enough, i met someone last night who...
Hi lucy I have just got back from seeing a eye doctor, it was a long journey it is was 200 miles round journey, it was very stressfull. The doctor does not...
Something to think about. There seems to be an increase in both. Holmes-Adie syndrome and Lyme disease The Lancet, Volume 357, Number 9258, 10 March 2001 ...
Has anyone had this test? ... From: MStafford To: adie_syndrome@yahoogroups.com Sent: Friday, July 04, 2003 7:14 PM Subject: [adie_syndrome] adie / lyme ...
hi michaela, i'm sorry to hear of your pain. yes, i have pain in my cheek but its more of a feeling of numbness and sometimes throbbing. my doctors also are...
Lucy, The pain and numbness that you describe is generally associated with damage to the knerves in the face , this can be as a result of a damaged cheekbone...
Hi Lucy You say that you are having a MRI, haven't you had any scans before now, sorry that your feeling down today, i know how you feel its not nice that this...
I have had Adie syndrome for about 12 years. I have recently signed on to this group and am astounded at all that I am learning. I have never heard or...
hi to you all, and hope all adies sufferers are coping. i was diagnosed with adies in 1998, i had a little girl in feb of that year and had (i thought) a...
Hi Lesley Welcome to the group, i think if you are still suffering you should go back to your doctor, to see what else he can offer you, which from experience...
Has anyone ever asked for the Lyme disease test that M Stafford gave us information on? ... From: michaela_rees To: adie_syndrome@yahoogroups.com Sent:...
To All, Here's a small suggestion. Don't wear just any pair of sunglasses. Use the kind that have side protection (like blinders). I have found with regular...
thanks Michaela and to you all i have fornd that the pain is neither better or worse, only when im very tired or light to dark and vise versa, and the pupil...
Hi All You are right. I ended up getting some wrap arounds and they don't let in anylight at all. Much better and I also found that the pain in my eye was ...
Hi Lesley Do you have pain from the time you open your eyes in the morning and then all day non stop, and does it seem to come out of your bad eye and go into...
adie_syndrome@yahoogroups.com schrieb am 09.07.03 10:11:21: Hi Michaela, I donīt think there have to be these pains. I have adies at two eyes but I donīt...
Hi, i have just joined the group, really because i know absolutely nothing about this condition except that i was recently diagnosed with holmes aidies pupil...
Bob, I think it's interesting that you should mention damage to the cheekbone. About 30 years ago I hit my face on the steering wheel really hard during an...
Enter your vote today! A new poll has been created for the adie_syndrome group: I think there is a relation between the situation of the neck, the spine in...
adie_syndrome@yahoogr...
Jul 13, 2003 10:35 pm
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Sometimes when the pain is reallybad in my right check and eye, I grab a piece of bubble gum and start chewing. I think the pains are somewhat tension or...
Hi all I would like to know has any one tried the special contact lences that are made for aides pupil and how do you find them. what do you wear to protect...
I was diagnosed with Adie's earlier this year and up to now have only had the tonic pupil and the lack of reflexes. Layely I have been experiencing some pain...
I have not heard of special contacts for Adies pupil. My eye doctor recommended UV protection lenses, which I do use now. They do not cut back on visible...
In answer to the question are special contact lenses available Some years ago i tried a special contact lens which was the same colour as my eye but had a...
Hi Bob I am going to try some contact lences, so i will let you know how i get on with them. I have to do something because i am not coping very well, the...
Hi John I am trying to carry on a normal life, but i am finding hard, i think its tramatised me and i am feeling depressed, i think because i have had alot of...
Yep. It gets painful at time. Oh the migraines I used to have. It doesn't hurt anymore and I'm not photosensitive as I used to be. I can actually wear ...
michaela.. i suggest you call morefields eye hospital in london as they will put your mind at rest. i don't know where you live in the world but its really...
Hi, I just found this group and I can't believe there are so many other people with this same problem. I was just diagnosed last month after have vision...
Hi Rachel I too do not have any problems with pain. I was diagnosed last October. Only on really really bright sunny days do I have a problem with light...
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