Hello, everyone!! I was diagnosed with Adie's in December of 2002. Since then I got a pair of bi-focals, which I don't wear now. I found that wearing them...
Hi Anne I have the loss of reflex part as well and have not had any problems with my legs. I play sport 4 days a week and have not noticed any change in the ...
... wrote:Hi Anne, I have a lot longer focus time than 5 to 6 seconds, more like 5 to 6 minutes at times. However I have learned to adapt to the problem. I...
Hi Kathy Adies was discovered by a man by the name of William John Adie. Here is some info on him... He described the disorder in 1931. He died in 1935. To...
Hi Everyone I am new to this as I was diagnosed as having adies last week. Is it usual not to be able to focus on anything with the eye that is affected with...
Dear All,
I am not a sufferer of Adie's syndrome but I recognised it in my girlfriend= . She has never been troubled by it and merely thought she was one of...
Hi Anne, I also have the problem with slow adaption of the focus when changing from near to far, or vice versa. As my left eye is not affected, I hadn't...
Hi I was the same when I first got Adie's - with the pains and the vision. I've had it for about 5 months now and the pains have gone but every now and then...
Enter your vote today! A new poll has been created for the adie_syndrome group: Have you ever been diagnosed with any kind of thyroid problems? o...
adie_syndrome@yahoogr...
Jun 23, 2003 8:47 am
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hello... i've had adies for about 8 months and was really scared at first. was scared that people would think i'm freaky! but, got my head round it and got...
... I have had aides pupil now for five months and i worry what people will think of me because it does look odd, and i never see any other person with, it...
Hi All Has anyone got any suggestions, on glasses or contact lences, i have sunglasses to wear outside and my normal glasses to wear inside but if i am inside...
Hi Michaela, I wear photo sensitive lenses indoors at all times now. These are also called "Reactions" and react to the volume of light so in a bright place ...
... been unable to find much information about it on the net and would appreciate any information on cause and, if any, information on how to help me improve...
Hi nancy Thankyou for the email sorry to say my headaches and eye pain has not gone, it did seem to ease a little but has never gone, it is driving me mad, i...
Thankyou Patrick for your reply I will see about the lences that you have, are they nomal react to the light lences or a special type of lence. Have you or...
Hi Michaela, They are pretty standard lenses, I actually got them before I was diagnoised with Adies but now I wear them all the time instead of occassionally...
Hi Micheala I've had Adies's since about 1972. First of all it was one eye, pupil very dilated. Over about five years this gradually reduced in size, but still...
hi there... i know how you feel as i have pain and blurry vision and often think people are staring at me. strangely enough, i met someone last night who...
Hi lucy I have just got back from seeing a eye doctor, it was a long journey it is was 200 miles round journey, it was very stressfull. The doctor does not...
Something to think about. There seems to be an increase in both. Holmes-Adie syndrome and Lyme disease The Lancet, Volume 357, Number 9258, 10 March 2001 ...
Has anyone had this test? ... From: MStafford To: adie_syndrome@yahoogroups.com Sent: Friday, July 04, 2003 7:14 PM Subject: [adie_syndrome] adie / lyme ...
hi michaela, i'm sorry to hear of your pain. yes, i have pain in my cheek but its more of a feeling of numbness and sometimes throbbing. my doctors also are...
Lucy, The pain and numbness that you describe is generally associated with damage to the knerves in the face , this can be as a result of a damaged cheekbone...
Hi Lucy You say that you are having a MRI, haven't you had any scans before now, sorry that your feeling down today, i know how you feel its not nice that this...
I have had Adie syndrome for about 12 years. I have recently signed on to this group and am astounded at all that I am learning. I have never heard or...
hi to you all, and hope all adies sufferers are coping. i was diagnosed with adies in 1998, i had a little girl in feb of that year and had (i thought) a...
Hi Lesley Welcome to the group, i think if you are still suffering you should go back to your doctor, to see what else he can offer you, which from experience...
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