Hi Michaela As somebody else in the site says: donīt let depression catch you; my twelve y/o son was a great help on that ; he keeps on telling me how proud...
Carmen You are right - I have three boys and I don't let this condition stop me from taking them fishing, playing touch footy on the beach etc. Its something...
HI to all the group Thankyou all for your emails, I am coping a bit better these last few weeks, i have been having less headachs, i stopped going on the ...
Hi Michaela, I think you may be worrying too much about the size of your pupil and what other people think. My problem doesn't come up very often in...
Hi Michaela, I get dizzy spells occasionally - what I have noticed recently is that I seem to get them more in the summer - must have some connection with...
Hi all I don't have any dizzy spells yet - and I live in the tropics, which means sun all year around. I did have pain in my eye when I first got this ...
Hi Michaela, I'm new to this group and only was diagnosed a week ago. I am glad that your headaches are better. I also have them and cannot get away from the...
I am new to this as I only received the diagnosis of Adie Syndrome yesterday. I am trying to educate myself and am hoping that someone will have suggestions...
Thanks Samantha, I also tried the internet but found not much useful information there. I work in a public library and have not found anything there either....
Hi. I was diagnosed with this in October. Gee jjust after my 41st birthday. Anyway, I have had some weird pains just below my kneecaps, so wondering if I am...
Hi Njw, Right now most information will be found on the net or this group. This syndrome is rare so drs. only know of it not about its long term effects. I'd...
Hi Kathy You are quite right - life goes on and things could be worse. About your knee reflexes - I did not get any pain at all and I lost both my knee and ...
Hi all I don't think it is as rare as we think. My specialist says that he see's one or two cases a year. He also says that the reason they can do nothing ...
Hello everyone, I have just joined this list as well. I just got a name for what is wrong with my eye last week. I have not been able to read a book since Feb,...
Hi Naydene, I have not had trouble reading, so far. I did have to get new eyeglasses but they seem to be doing fine for me. I have been trying to do some...
Hi Naydene, I have not had trouble reading, so far. I did have to get new eyeglasses but they seem to be doing fine for me. I have been trying to do some...
Hi Nadine I also had trouble reading at first - when I finally got to the bottom of what was wrong with my eyes -Adie's - I had a sight test and have perfect ...
Hello Naydene I had big troubles with reading in the begining, but no lenses can release that; only time works whith it: the brain needs its time to ...
Hi, I joined this mail list a couple of moths ago. Was confirmed with Aides last Dec after suspecting it for a couple of months before that. I generally end up...
Hello, everyone!! I was diagnosed with Adie's in December of 2002. Since then I got a pair of bi-focals, which I don't wear now. I found that wearing them...
Hi Anne I have the loss of reflex part as well and have not had any problems with my legs. I play sport 4 days a week and have not noticed any change in the ...
... wrote:Hi Anne, I have a lot longer focus time than 5 to 6 seconds, more like 5 to 6 minutes at times. However I have learned to adapt to the problem. I...
Hi Kathy Adies was discovered by a man by the name of William John Adie. Here is some info on him... He described the disorder in 1931. He died in 1935. To...
Hi Everyone I am new to this as I was diagnosed as having adies last week. Is it usual not to be able to focus on anything with the eye that is affected with...
Dear All,
I am not a sufferer of Adie's syndrome but I recognised it in my girlfriend= . She has never been troubled by it and merely thought she was one of...
Hi Anne, I also have the problem with slow adaption of the focus when changing from near to far, or vice versa. As my left eye is not affected, I hadn't...
Hi I was the same when I first got Adie's - with the pains and the vision. I've had it for about 5 months now and the pains have gone but every now and then...
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