Hi, This is the first time that I have been on this website! it is amazing to finally find other people that have the same condition as you. My Name is Katie...
Hi Katie, I've heard that this can or will eventually affect both eyes. Just my left eye is involved. I'm from the US, 49. I would imagine having both eyes...
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Hi Nese, I've had this since 1992. It's rare but it seems like we've been picking up in numbers here at this site. I'm from USA. Others from England and Italy....
Hi all, Just to let everyone know I am in Boston, Massachusetts, USA. I am 26 years old. I was diagnosed almost a month ago with Aide’s syndrome. So far...
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Roberta Favarin
robertafavarin@...
Apr 4, 2002 7:41 am
dear Nese, - hi all - I think you read our old emails and so I can try to tell you some news. Two years ago I bought the relation about rarediseases.org for $...
Hi all, I've read this condition was hereditary, but close relatives do not seem to have it. I would guess it's extremely recessive. My Mom has glacoma...
Howdy! I recently came across a website: http://www.mrcophth.com/pupils/Adie.html And it mentions what is responsible for Aide's Syndrome; "There is...
Hi to all! I was diagnosed with Adie's pupil about 10 or so years ago. I'm a 45 year old female from Woburn, MA and to be truthful, I never thought much about...
Hi Nese, Thanks for the info! I know I've never had shingles, but I've definitely had a lot of stress! My doctor thinks I picked up some virus in my late ...
Stephanie, How are you? FYI. Shingles (Herpes zoster) is a viral infection derived from the same virus that causes chicken pox (Varicella zoster). Anyone...
Hi, Welcome to the group. Things are sure lively now! Since no one is sure what causes Adie's, we can't rule out the shingles theory. However, since shingles...
Dear Margo: Wow! You sure have had enough trouble! How are your children now? As I said, I was actually diagnosed approximately 13 years ago, however, the ...
Hi Nese, I too have noticed little bumps on my eyelids - and I too thought it was where an eyelash should be. A friend of mine works for my opthamologist, I'm...
Hi Stephanie, The children are or will be 18 and 16 this June/July. RH Disease treatment was changed a few years later. I can't say I have any white dots...
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Roberta Favarin
robertafavarin@...
Apr 18, 2002 5:59 pm
hi all, so I'm trying this eyewash without pilocarpine. In the sunny days I use a drop at morning and it's good for all the day. I have to tell you that it's...
Roberta, Thanks for the advice; I'm going to follow up with my opthmologist about this. -nese ... ===== __________________________________________________ Do...
I was commenting about what a healthy person I was, and then started to attract conditions or syndroms that no one is sure how to treat. However, I have read...
Nese, Hi Stephanie, The children are or will be 18 and 16 this June/July. RH Disease treatment was changed a few years later. I can't say I have any white...
While brushing my teeth this a.m. I notice my left pupil was dialated and non reactive to light. This improved over the next hour - yet was left with a mild...
Martina, When I was first diagnosed with Aide's Syndrome (pupil), my symptoms were also a sudden onset of sensitivity to bright light, migraines, reflex...
Hi All, My onset was also sudden. I had a head injury 5 years prior and my DR at the time also ordered a CAT scan, I found out I am allergic to the dye used. I...
http://groups.yahoo.com/group/Lyme-Aid-Documents/message/1341 Hi all, Here's that link about Adie's and Lyme. Never Know. Seems like our numbers are increasing...
Hi everyone, Just letting you know I'm still here! I haven't posted a message for such a long time! On September 29th 2001 I gave birth to our daughter Emily...
If you don't Yahoo, Here's a copy of the abstract about adie's and Lyme. Margo The Lancet Volume 357, Number 9258 10 March 2001 Correspondence Holmes-Adie...
Unfortunately, no one really knows. For myself, my eyesight has gotten worse as the years go on - but this could also be do to aging (I'm 45). Good luck! ...
G,day, Are there any blokes out there with this. I have been told that I have a Tonic Pupil from this Holmes-Aidie syndrome. I had an MRI a coulple of days ago...
