Hello all I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any...
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Roberta Favarin
robertafavarin@...
Oct 16, 2001 10:08 am
Hi Nicky, I'm Francesco from Italy, I'm Roberta's husband, a girl of the Adie's group. Yesterday Roberta had cornea-transplant on her eye with Adie Syndrome,...
Hi Nicky, I've had Adie's since 1992. I also tried the pilocarpine drops. It was nice having your vision improve, even if it was for a short time. That was...
Roberta, I hope your recovery is going well. Hi Francesco. Margo ... From: Roberta Favarin To: adie_syndrome@yahoogroups.com Sent: Tuesday, October 16, 2001...
Hello nicky, I'm 30 years old, i'm french (i live near paris), and i work in biological research institute. Past years; a neurologist diagnostic me an holmes ...
33
Roberta Favarin
robertafavarin@...
Oct 25, 2001 5:08 pm
Hi Margo, Hi all, so I transplantate my cornea 10 days ago. I think, the first case of cornea transplant in a eye with Adie Syndrome on the net. The doctor was...
Hi, This is the first time that I have been on this website! it is amazing to finally find other people that have the same condition as you. My Name is Katie...
Hi Katie, I've heard that this can or will eventually affect both eyes. Just my left eye is involved. I'm from the US, 49. I would imagine having both eyes...
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Hi Nese, I've had this since 1992. It's rare but it seems like we've been picking up in numbers here at this site. I'm from USA. Others from England and Italy....
Hi all, Just to let everyone know I am in Boston, Massachusetts, USA. I am 26 years old. I was diagnosed almost a month ago with Aide’s syndrome. So far...
39
Roberta Favarin
robertafavarin@...
Apr 4, 2002 7:41 am
dear Nese, - hi all - I think you read our old emails and so I can try to tell you some news. Two years ago I bought the relation about rarediseases.org for $...
Hi all, I've read this condition was hereditary, but close relatives do not seem to have it. I would guess it's extremely recessive. My Mom has glacoma...
Howdy! I recently came across a website: http://www.mrcophth.com/pupils/Adie.html And it mentions what is responsible for Aide's Syndrome; "There is...
Hi to all! I was diagnosed with Adie's pupil about 10 or so years ago. I'm a 45 year old female from Woburn, MA and to be truthful, I never thought much about...
Hi Nese, Thanks for the info! I know I've never had shingles, but I've definitely had a lot of stress! My doctor thinks I picked up some virus in my late ...
Stephanie, How are you? FYI. Shingles (Herpes zoster) is a viral infection derived from the same virus that causes chicken pox (Varicella zoster). Anyone...
Hi, Welcome to the group. Things are sure lively now! Since no one is sure what causes Adie's, we can't rule out the shingles theory. However, since shingles...
Dear Margo: Wow! You sure have had enough trouble! How are your children now? As I said, I was actually diagnosed approximately 13 years ago, however, the ...
Hi Nese, I too have noticed little bumps on my eyelids - and I too thought it was where an eyelash should be. A friend of mine works for my opthamologist, I'm...
Hi Stephanie, The children are or will be 18 and 16 this June/July. RH Disease treatment was changed a few years later. I can't say I have any white dots...
49
Roberta Favarin
robertafavarin@...
Apr 18, 2002 5:59 pm
hi all, so I'm trying this eyewash without pilocarpine. In the sunny days I use a drop at morning and it's good for all the day. I have to tell you that it's...
Roberta, Thanks for the advice; I'm going to follow up with my opthmologist about this. -nese ... ===== __________________________________________________ Do...
I was commenting about what a healthy person I was, and then started to attract conditions or syndroms that no one is sure how to treat. However, I have read...
Nese, Hi Stephanie, The children are or will be 18 and 16 this June/July. RH Disease treatment was changed a few years later. I can't say I have any white...
While brushing my teeth this a.m. I notice my left pupil was dialated and non reactive to light. This improved over the next hour - yet was left with a mild...
Martina, When I was first diagnosed with Aide's Syndrome (pupil), my symptoms were also a sudden onset of sensitivity to bright light, migraines, reflex...
Hi All, My onset was also sudden. I had a head injury 5 years prior and my DR at the time also ordered a CAT scan, I found out I am allergic to the dye used. I...
