This is an open forum support eGroup for persons affected by "Adie Syndrome", family, medical professionals and anyone else interested in information and/or...
David Hughes
egroups_moderator@...
Jun 7, 1999 5:46 am
2
Dear friends, I would be very grateful if you could give me more informations about my situation. I am 30 and suffer from Keratoconus on both eyes and Adie's...
Roberta Favarin
robertafavarin@...
Nov 29, 1999 11:07 pm
3
Roberta, I hope u continue to keep your eyesight. U have had this condition much longer than I have and regular eyeglasses r doing the job for me. I have been...
M. Stafford
mstafford@...
Feb 21, 2000 3:53 am
4
Thank for your nice answer M. Stafford, In the meantime I continued to keep my eyesight and I found a very intersting Web-site with a lot of information and so...
SupeRoberta
robertafavarin@...
Feb 21, 2000 10:32 pm
5
Thanks for the link. Here's one for u too. Except for your eyes, have u noticed any other strange manifestations? I first noticed my pupil was enlarged when I...
M. Stafford
mstafford@...
Feb 22, 2000 4:42 am
6
Thanks for the link. Here's one for u too. Except for your eyes, have u noticed any other strange manifestations? I first noticed my pupil was enlarged when I...
M. Stafford
mstafford@...
Feb 22, 2000 4:44 am
7
Dear Stafford, I think that the people who suffer of Adie's Syndrome don't have the same manifestation. This I understand after I read some medical articles in...
SupeRoberta
robertafavarin@...
Feb 23, 2000 6:52 am
8
Right! Ms Stafford, right! I never had any knee reflex on both my knee. So, now I think that's linkig to the Adie's Syndrome. I never read this on any medical...
SupeRoberta
robertafavarin@...
Feb 26, 2000 6:06 pm
9
If anyone has experienced a "lack of knee reflex", let us know if you also have heel spurs. I was wondering if the lack of deep tendon reflexes would make you...
M. Stafford
mstafford@...
Mar 19, 2000 7:50 pm
10
Hi! My name's Louisa and I'm from England. I've been recently diagnosed with Adie Syndrome. I was rushed to hospital quite quickly when the Doc noticed my...
fosteri@...
Apr 19, 2000 6:20 pm
11
Yes, what we have is considered rare. This means that they can't tell you what to expect or why it is happening. I am 47, female, diagnosted in 1992. My left...
M. Stafford
mstafford@...
Apr 23, 2000 6:22 pm
12
Hi! Thanks for the e-mail. It's so annoying that people can and do diagnose things that they cannot explain or help you with! At the moment I am having so much...
Ian Foster
fosteri@...
Apr 23, 2000 6:52 pm
13
My legs have been swelling. I wonder if this has anything to do with the fact that my left arm does not sweat. Has anyone else had swelling of extremities or...
M. Stafford
mstafford@...
Apr 29, 2000 4:10 am
14
I tend to get a lot of water retention in my stomach rather than limbs. This can happen quite frequently in a month, sometimes it is so bad that I look as...
Ian Foster
fosteri@...
Apr 29, 2000 6:29 pm
15
Hi, girls here I am! Do you have sweat problems? I read somthing about it in Medline (here's the link: http://www.nlm.nih.gov/medlineplus/medline.html than...
SupeRoberta
robertafavarin@...
May 2, 2000 8:53 pm
16
YES, I have a sweating abnormality. One summer I noticed that I was sweating more than normal. It wasn't extreme and chalked it up to my age and the amount...
M. Stafford
mstafford@...
May 4, 2000 4:10 am
17
Louisa, Roberta! Set your watches! Do you think we could meet for a live chat?...
M. Stafford
mstafford@...
May 5, 2000 4:12 am
18
First: I have no sweating's problems. And now a question: what's a "Screen name"? I have no one. But if you talking about a sort of virtual-chat, sorry but I...
SupeRoberta
robertafavarin@...
May 5, 2000 5:54 am
19
Hi Roberta! Send a thank you, from me, to your husband for the translations. If you can't think of a word in English, use Italian. I can try using an ...
MSTAFFORD
mstafford@...
May 8, 2000 12:50 am
20
how are you all?...
fosteri@...
Jun 1, 2000 7:41 pm
21
Fine Thanks, now I'm Pregnant of 4 month. Will my son (or daugther) with Adie? By mom-Roby ... Da: <fosteri@...> A: <adie_syndrome@egroups.com> Data...
SupeRoberta
robertafavarin@...
Jun 2, 2000 7:02 pm
22
Hi Roberta! Congratulations on being pregnant!! I don't think that Adies is hereditary - thankfully! Has anyone read that it is? Lou...
fosteri@...
Jun 2, 2000 7:11 pm
23
I've read it is inherited, but I don't know if it jumps a generation or whatever. Mostly picked up by females. If you read any of the abstracts at the "links"...
MSTAFFORD
mstafford@...
Jun 2, 2000 9:37 pm
24
Hi! I hope everyone's ok - haven't seen any new postings for ages. Just to let you all know that my husband and I are trying for a baby - not pregnant yet but...
fosteri@...
Oct 29, 2000 4:49 pm
25
Don't know of any pregnancy connections.Best of luck! I'm focusing on leg motion with regard to the lack of deep tendon reflexes. Do you notice any problems...
MSTAFFORD
mstafford@...
Nov 6, 2000 4:15 am
26
... time. ... baby -...
Roberta Favarin
robertafavarin@...
Nov 6, 2000 1:48 pm
27
Hi Margo, Hi all!! I'm fine. You can see yourself by my son's web site: www.lorenzojannon.it I bring Lorenzo in my arms. I will transplantate my right cornea...
Roberta Favarin
robertafavarin@...
May 22, 2001 6:58 am
28
Hello all I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any...
Nicky Traill
ntraill@...
Oct 10, 2001 5:14 am
29
Hi Nicky, I'm Francesco from Italy, I'm Roberta's husband, a girl of the Adie's group. Yesterday Roberta had cornea-transplant on her eye with Adie Syndrome,...
Roberta Favarin
robertafavarin@...
Oct 16, 2001 10:08 am
30
Hi Nicky, I've had Adie's since 1992. I also tried the pilocarpine drops. It was nice having your vision improve, even if it was for a short time. That was...
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