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164 AutumnRose2 <4arose2@...
AutumnRose2 Offline Send Email
Jan 3, 2003
12:38 am
Margo Thank you for the information on the Laser Surgery. When I was in Memphis and my father's Opthamologist diagnosed me, I asked him about the Laser...
165 Gary Garb
garygarb@... Send Email
Jan 4, 2003
12:16 am
If this is not progressive, it sure has fooled me. Mine only gets worse. My doctor told me it would progress to the other eye at a rate of 4% per year and he...
166 Gary Garb
garygarb@... Send Email
Jan 4, 2003
12:19 am
Hey, welcome aboard if this is an appropriate greeting. I'm living proof that you definitely aren't the only bloke. I was 42 when I was diagnosed and it...
167 John Reiter
johnreiter2001 Offline Send Email
Jan 4, 2003
6:50 am
Ditto... Welcome aboard from another bloke. I was diagnosed in my late 30's, and I'm 47 now. I was seen by only one opthamologist, who was very interested...
168 slimboywynn <colin@...>
slimboywynn Offline Send Email
Jan 6, 2003
9:32 pm
Hi folks, Just found this wonderful yahoogroup and would like to say Hi. I am 34 years of age and live on the Hampshire/Surrey border in the UK. I was...
169 Erin Sullivan
erinsullivan... Offline Send Email
Jan 6, 2003
11:07 pm
Hi there I also live on the Surrey/Hampshire borders in the UK . Maybe we can compare notes on info and medical support here in this area . I have bi-lateral...
170 Colin Wynn
slimboywynn Offline Send Email
Jan 7, 2003
8:14 am
Hi Erin, When was you diagnosed and did you also go to the Royal Surrey? I have found that sofar it's simply dismissed as a virus and you're left to just get...
171 Erin Sullivan
erinsullivan... Offline Send Email
Jan 7, 2003
9:24 am
Colin, I was diagnosed about 10 years ago. I went to an optician for an eye test as my vision was blurring and I had headaches. Within a couple of mins he told...
172 monicamonteverde <mon...
monicamontev... Offline Send Email
Jan 9, 2003
1:41 pm
Hi everybody, I'm new in the group, I'm 32 years old and had ADIES in my right eye since I was 25. I live in Monterrey Mexico. I saw a couple of oftalmologists...
173 Sokenunese Myles
adzaa_nez26 Offline Send Email
Jan 9, 2003
6:07 pm
Well considering there are less than 40 of us in the group, and if you include the demographics, I would consider it really rare. In fact I think you are the...
174 takfmly@...
sarasaunt2002 Offline Send Email
Jan 9, 2003
7:29 pm
OK, for the data: Female, age 55, place of birth, England, now reside Hawaii. Diagnosed last year, after a optometrist friend asked if my right eye was...
175 sgerard029@...
sgerard029 Offline Send Email
Jan 9, 2003
8:10 pm
It certainly makes sense to see ages, regions, etc. I'm a 46 year old female from Woburn, MA (12 miles north of Boston). I was diagnosed in my late 30's in...
176 monicamonteverde <mon...
monicamontev... Offline Send Email
Jan 9, 2003
8:13 pm
Maybe you are right, statistically is rare, but when I found some other people like me, I didn't feel so lonely anymore :) best regards Monica...
178 Sokenunese Myles
adzaa_nez26 Offline Send Email
Jan 9, 2003
8:22 pm
Oh I forgot to put in my 2 cents - I am 26/Boston/female -Nese "monicamonteverde <monicamonteverde@...>" <monicamonteverde@...> wrote:Maybe you are...
179 Rachel McLean
racmc2002 Offline Send Email
Jan 9, 2003
8:53 pm
Hi every one. Happy New Year. I am 37 (36 when diagnosed) / female / living in England. ... From: Sokenunese Myles To: adie_syndrome@yahoogroups.com Sent:...
180 takfmly@...
sarasaunt2002 Offline Send Email
Jan 9, 2003
8:58 pm
Hi Stephanie, well, the trifocals (progressive lenses?) are because you are growing up! As an optician I tell that to folks every day! I have found that...
181 takfmly@...
sarasaunt2002 Offline Send Email
Jan 9, 2003
9:00 pm
Hi Rachel, what part of England? I'm just nosey, being an ex-pat and all that. I was raised in Lincolnshire. Aloha, Lynne ... From: Rachel McLean To:...
182 Sam
milkbottlesam Offline Send Email
Jan 9, 2003
9:24 pm
49,female post-menopause (how personal!) living in the English Midlands, diagnosed when 48, migraines since age 23 (opposite side to affected pupil) very...
183 sgerard029@...
sgerard029 Offline Send Email
Jan 9, 2003
10:24 pm
Thanks for the info Lynne - I will certainly look into that. Sorry about your migraines - I thought not getting them anymore was the only positive thing about...
184 MStafford@...
pea007nut Offline Send Email
Jan 10, 2003
12:50 am
F/50 Pennsylvania. Diagnosed 1992. Reflex & sweating irregularities. Bone spurs. RH negative. Margo...
185 Kathy Volk
muffygirl2003 Offline Send Email
Jan 10, 2003
1:23 am
F/41/Canada Diagnosed Oct 2002. ... From: Rachel McLean To: adie_syndrome@yahoogroups.com Sent: Thursday, January 09, 2003 1:52 PM Subject: Re:...
186 sverige1990 <areid@...>
sverige1990 Offline Send Email
Jan 10, 2003
4:31 am
I'm 30/female and live in Northwestern Ontario in Canada. I was diagnosed in dec 2002. I have yet to be to the doctor here to ask any serious questions. I...
187 Renee N. Papadenis
reneelewellyn Offline Send Email
Jan 10, 2003
8:18 am
Hi. Female, will be 34 next month, live just outside of Boulder, Colorado, diagnosed last year. Still have reflexes in knees and ankles and no unusual...
188 Rachel McLean
racmc2002 Offline Send Email
Jan 10, 2003
11:37 am
Hi Lynne. I'm near Bolton - North West - Greater Manchester area. Nothing like Hawaii - you had the right idea!!! How long have you been over there? Rachel ......
189 liztedder <liztedder@...
liztedder Offline Send Email
Jan 10, 2003
1:30 pm
Hello everyone! I went to Indy yesterday to see another Nuerologist for a second opinion and to find out why i'm having these other symptoms. They took yet...
190 Arnaud
ludoviq2000 Offline Send Email
Jan 10, 2003
3:10 pm
Hello, I am called ludoviq, I am 32 years old (diagnosed at 29 years). I have the syndrome of adie on the right eye, with total absence of reflexe. Its does...
191 Sokenunese Myles
adzaa_nez26 Offline Send Email
Jan 10, 2003
4:29 pm
Margo, I didn't know that bone spurs were one of the symptoms? Where did you find that in your research? -Nese "MStafford@..." <mstafford@...>...
192 Sokenunese Myles
adzaa_nez26 Offline Send Email
Jan 10, 2003
4:32 pm
Anne, What usually will happen is that the opthomologist or neuro-opthomologist will recommend that you get an MRI/MRA done to make sure that nothing is going...
193 sgerard029@...
sgerard029 Offline Send Email
Jan 10, 2003
4:59 pm
Bone spurs????...
194 takfmly@...
sarasaunt2002 Offline Send Email
Jan 11, 2003
1:51 am
Hi Rachel, Actually its my husband's "fault" that we are here! He was stationed at RAF Alconbury, in the USAF, when I met him, and our final duty station...
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