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Topics   (List as Individual Messages) Messages Latest Post

Does anyone in the QC area know where I can find a pair of Moon Boots either mens 6-7 or womans 8-9. Trish...
1 Dec 29, 2007
9:14 pm

Trish
qcgirl63
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I just found this forum and I hope it is still active as I really can't find much about Adie's when I search for it. I went to the doctor 2 days ago because my...
2 Dec 13, 2007
1:10 am

Trish
qcgirl63
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Hi, my name is April I am 29 years old & live in Texas. I have had Adies for a little over 3 years now. It started when I was pregnant with my 3rd son. My Dr....
8 Sep 24, 2007
1:55 am

Trish
qcgirl63
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From http://www.unboundmedicine.com/medline/ebm/record/9143037/abstract/Ocular_siderosis_Diagnosis_and_management Weiss MJ, Hofeldt AJ, Behrens M, Fisher K  ...
1 Jul 31, 2007
5:10 am

linja@...
lajavins
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The following can be found on the web in a couple of places including http://www.geocities.com/ldbullseye/vol112.html. It refers to a November 2000 article...
1 Jul 3, 2007
5:13 am

linja@...
lajavins
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Hi Everyone! Thank you all for being a part of our Adie Syndrome support group. I hope you received my previous message introducing CarePlace and have had an...
2 Jun 10, 2007
4:23 pm

Trish
qcgirl63
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 I saw this on medlink.com on a page called Chronic autonomic neuropathies by James Russell and Patience Reading. They link Adie's under Cholinergic failure...
1 Jun 10, 2007
5:33 am

linja@...
lajavins
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I was diagnosed with adies about 3 years ago it never caused any problems that I could not cope with, recently I find that my eye swells up til it is nearly...
3 May 7, 2007
7:58 pm

cindy mardis
cindy_mardis
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Hi, Welcome to the group. Things are sure lively now! Since no one is sure what causes Adie's, we can't rule out the shingles theory. However, since shingles...
19 May 7, 2007
4:22 pm

SugarPlumGinger6@...
sugarplumz6
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Hi there! My name is David Hughes and, as you may know, I started the group so that people coping with Adie Syndrome could support and share with one another....
1 Apr 13, 2007
11:02 pm

David Hughes
rarediseases
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_Click here: The Eyecare Trust - Adie's Pupil - Raising awareness of eye care and eye wear issues_ ...
1 Apr 10, 2007
11:49 pm

SugarPlumGinger6@...
sugarplumz6
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I've had it for about 5 years. I read that sometimes it spreads to the other eye, but my opthalmalogist said that it's highly unlikely at my age, which is 60....
1 Apr 9, 2007
5:26 pm

linja@...
lajavins
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Hi I just found out a few weeks ago about my eye !! What are your feelings with this syndrome? Anything you want to share with me I would love to hear it. GiGi...
10 Apr 7, 2007
5:19 pm

lucy gleeson
lucygleeson1uk
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Hi Just found this list. It is a good support system. Was hoping to read posts. Does the list generate any mail? GiGi ...
2 Mar 19, 2007
5:58 pm

Trish
qcgirl63
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Welcome Members, My name is David and I am the Founder of the our yahoo support group and the TransGlobal Health Community Center (TGHCC) ...
2 Mar 1, 2007
6:18 pm

michaela_rees
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Hi there I was wondering if anyone had been advised to try vitamin supplements for this condition. Like lutein see: ...
4 Jan 30, 2007
3:01 am

Yvonne Goldman nee Ed...
retrogirl1970
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For an interesting (but not encouraging) article about adie's syndrome, see http://www.medic8.com/neurological-disorders/holmes-adie.htm On a lighter note, see...
5 Jan 28, 2007
3:28 pm

Rupesh Bhandari
rups234
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Yes, you were right, the article was interesting but not encouraging, but seeing the large list of ailments under the "neurological disorders" and under...
1 Jan 28, 2007
3:25 pm

Herzog
rups234
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Roberta mentioned that her vision problem seemed like a migraine. I have a blog (http://webcroft.blogspot.com) and mentioned Adie's some time back. My...
3 Jan 11, 2007
5:05 pm

lucy gleeson
lucygleeson1uk
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Hi, has anyone else having issues with their vision in the affected eye? My vision is very blurred and I have to close the eye to read. It also takes a very...
12 Jan 9, 2007
10:28 pm

Roberta
glenne_heather
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Hello all I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any...
17 Dec 15, 2006
5:26 pm

michaela_rees
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Has anyone else been diagnosed with an other strange illness or disease since being diagnosed with adies? One would think 1 rare condition is enough, but it...
2 Nov 3, 2006
3:47 am

DawnaFL@...
dawnnafl
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I have Aides Tonic Pupil in both eyes. My left one was affected 3 years ago and my right eye became affected in February of this year. Since waking up that...
2 Nov 2, 2006
1:05 am

Trish
qcgirl63
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I have this weird trmperature thing, one minute I am freezing and 5 minutes later I am nurning up..I have never been this way before, is this a side effect of...
5 Nov 1, 2006
11:23 pm

Sherry Parks
cheroke7_98
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Hi! I'm new to the group, but I have TERRIBLE headaces...Is ther any relief out there?...
1 Nov 1, 2006
11:21 pm

stcynice
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Hi! I'm new to this but I can't find relief from constant migraines...Any othe alternatives that have worked for you guys?...
1 Nov 1, 2006
11:17 pm

stcynice
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Hello My name is Dawna and I am 37 years old, I was diagnosed with the Adie's pupil yesterday officially, I saw Doctor Cline in Birmingham. I also see a...
1 Oct 18, 2006
2:55 pm

Donna
dawnnafl
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Hi everyone. I have read all the emails I found it interesting that a lot of people all have the problem with their left eye. I have read about the various...
4 Oct 16, 2006
10:53 pm

ednickys
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Hi all, Everybody who has adie are different cases. I mean one can stand light others have no problem with it. One has dizzines or headaches others don't. Many...
4 Sep 16, 2006
8:00 pm

linja@...
lajavins
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Hi everyone, I have just also joined the 'aides eyes' group on Yahoo. I have recently been diagnosed with Aides Tonic pupil syndrome(8th September) following...
2 Sep 12, 2006
2:07 am

Trish
qcgirl63
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