I just found this forum and I hope it is still active as I really

can't find much about Adie's when I search for it. I went to the

doctor 2 days ago because my left pupil was suddenly huge in

comparison to my right, though I have noticed a slight difference for

a couple weeks now (I could have had it longer and just not noticed,

it is very minor difference when it's not "acting up"). I have no

serious symptoms, no migraines or particularly bad/often headaches,

nor do I have any nausea or fever or pain in my eye, so the doctor

said I most likely have Adie's. I have not had any major tests done,

only the doctor looked in my eye and confirmed my left pupil is a bit

sluggish but that I shouldn't worry and that it won't affect me much.

Could this be Adie's then when I have no headaches and stuff? I used

to have migraines for about a year's time when I was little, and I

know there is some migraine in my family. Should I go see another

doctor and get myself properly tested, I am worried it could be

something more serious? I have severe anxiety over this and am losing

sleep as anything health-related really fires my nerves up and giving

me superfast pulse which can last for days. I don't think I have any

loss of reflexes, at least my knees bounce when I tap them. As for

vision, I have pretty bad eyesight (-2.50 on both eyes) and I am

mostly wearing some old glasses which are -1.50 so I am used to

having quite bad sight even with glasses. Have not noticed any

deterioration in my sight when wearing my contact lenses though.

Lastly I see a lot of people say they have pains in their knees and

ankles and backs, I as well get very easily pain in my knees and

lower back particularly, though this is not a recent change. Could I

have had Adie's for a long time maybe? By the way I am 25 years old

and female.



Sorry for the huge wall of text :>

I have no troubles with mine really. I've had the condition since

2001 and I rarely get headaches. Sometimes I get the cough and a case

of dry eye. Everyone is effected by it differently from what I can

tell. Don't stress yourself out over it. It's not life threatening

and it's non-blinding. Just go on a live your life the way you always

have but just reduce the overhead lighting , wear your sunglasses and

maybe wear a bucket hat when you're outside. If you get to much

discomfort call your eye doctor. Just remember if you ever have to go

to the ER to let them know you have Adies Tonic Pupil or they might

wonder why you have one enlarged pupil. If it's your left eye have

the lamp to your right. If you have to get an eye patch and wear it

when you feel your eye is to stressed out. I drew an eyeball on my

patch and I haven't had to wear it in sometime now. You do adjust.



Trish













--- In adie_syndrome@yahoogroups.com, "xynne82" <xynne82@...> wrote:

>

> I just found this forum and I hope it is still active as I really

> can't find much about Adie's when I search for it. I went to the

> doctor 2 days ago because my left pupil was suddenly huge in

> comparison to my right, though I have noticed a slight difference

for

> a couple weeks now (I could have had it longer and just not

noticed,

> it is very minor difference when it's not "acting up"). I have no

> serious symptoms, no migraines or particularly bad/often headaches,

> nor do I have any nausea or fever or pain in my eye, so the doctor

> said I most likely have Adie's. I have not had any major tests

done,

> only the doctor looked in my eye and confirmed my left pupil is a

bit

> sluggish but that I shouldn't worry and that it won't affect me

much.

> Could this be Adie's then when I have no headaches and stuff? I

used

> to have migraines for about a year's time when I was little, and I

> know there is some migraine in my family. Should I go see another

> doctor and get myself properly tested, I am worried it could be

> something more serious? I have severe anxiety over this and am

losing

> sleep as anything health-related really fires my nerves up and

giving

> me superfast pulse which can last for days. I don't think I have

any

> loss of reflexes, at least my knees bounce when I tap them. As for

> vision, I have pretty bad eyesight (-2.50 on both eyes) and I am

> mostly wearing some old glasses which are -1.50 so I am used to

> having quite bad sight even with glasses. Have not noticed any

> deterioration in my sight when wearing my contact lenses though.

> Lastly I see a lot of people say they have pains in their knees and

> ankles and backs, I as well get very easily pain in my knees and

> lower back particularly, though this is not a recent change. Could

I

> have had Adie's for a long time maybe? By the way I am 25 years old

> and female.

>

> Sorry for the huge wall of text :>

>