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#1239 From: "April" <xapril77x@...>
Date: Mon Sep 17, 2007 4:36 pm
Subject: Hi! New Member here 		xapril77x
Offline Offline
Send Email Send Email
  
Hi, my name is April I am 29 years old & live in Texas. I have had

Adies for a little over 3 years now. It started when I was pregnant

with my 3rd son. My Dr. thought I might have had a stroke due to my

pre-eclampsia. I have had pre-eclampsia in all 3 of my pregnancies and

all were delivered early due to extremely high blood pressure. I have

had high blood pressure since the age of 15. I don't know if this has

anything to do with the Adies. I was tested for Lupus and it was neg.

Anyway, I have done lots of research and find that there are so many

people with different symptoms. I have excessive sweating, severe

migranes, vision loss, cannot see at night, dialated pupil, anxiety,

over reactive reflexes, etc. Does anyone else ave similar symptoms?

     I do not have alot of time to write but will try to post replies

when I can. It's nice to be a member and know there are others like me.



                                                 April


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#1240 From: Trish <qcgirl63@...>
Date: Fri Sep 21, 2007 2:35 am
Subject: Re: Hi! New Member here 		qcgirl63
Offline Offline
Send Email Send Email
 
I suffer from headaches  ... I can still see at night.
 
Trish

April <xapril77x@...> wrote:
Hi, my name is April I am 29 years old & live in Texas. I have had
Adies for a little over 3 years now. It started when I was pregnant
with my 3rd son. My Dr. thought I might have had a stroke due to my
pre-eclampsia. I have had pre-eclampsia in all 3 of my pregnancies and
all were delivered early due to extremely high blood pressure. I have
had high blood pressure since the age of 15. I don't know if this has
anything to do with the Adies. I was tested for Lupus and it was neg.
Anyway, I have done lots of research and find that there are so many
people with different symptoms. I have excessive sweating, severe
migranes, vision loss, cannot see at night, dialated pupil, anxiety,
over reactive reflexes, etc. Does anyone else ave similar symptoms?
I do not have alot of time to write but will try to post replies
when I can. It's nice to be a member and know there are others like me.

April


Luggage? GPS? Comic books?
Check out fitting gifts for grads at Yahoo! Search.

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#1243 From: "April" <xapril77x@...>
Date: Sat Sep 22, 2007 7:55 am
Subject: Re: Hi! New Member here 		xapril77x
Offline Offline
Send Email Send Email
  
--- In adie_syndrome@yahoogroups.com, Trish <qcgirl63@...> wrote:

How bad and often are your headaches? Mine are terrible! I take pain

pills & Stadol nose spray. If that doesn't work I have to go to the

hospital where sometimes they give me 2 or 3 shots of Stadol or

Demerol & if that doesn't work they admit me so they can deliver my

pain meds. through an IV......Headaches are the worst, not only for

me but for my family also. I wish they would go away.

>

> I suffer from headaches  ... I can still see at night.

>

>   Trish

>

> April <xapril77x@...> wrote:

>           Hi, my name is April I am 29 years old & live in Texas.

I have had

> Adies for a little over 3 years now. It started when I was

pregnant

> with my 3rd son. My Dr. thought I might have had a stroke due to

my

> pre-eclampsia. I have had pre-eclampsia in all 3 of my pregnancies

and

> all were delivered early due to extremely high blood pressure. I

have

> had high blood pressure since the age of 15. I don't know if this

has

> anything to do with the Adies. I was tested for Lupus and it was

neg.

> Anyway, I have done lots of research and find that there are so

many

> people with different symptoms. I have excessive sweating, severe

> migranes, vision loss, cannot see at night, dialated pupil,

anxiety,

> over reactive reflexes, etc. Does anyone else ave similar

symptoms?

> I do not have alot of time to write but will try to post replies

> when I can. It's nice to be a member and know there are others

like me.

>

> April

>

>

>

>

>

>

> ---------------------------------

> Luggage? GPS? Comic books?

> Check out fitting  gifts for grads at Yahoo! Search.

>


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#1245 From: Kathy Erickson <ozzymommy1962@...>
Date: Sat Sep 22, 2007 11:45 pm
Subject: Re: Re: Hi! New Member here 		ozzymommy1962
Offline Offline
Send Email Send Email
 
I suffer from headaches but will not take the major perscriptions because of side effects.

April <xapril77x@...> wrote:
--- In adie_syndrome@yahoogroups.com, Trish <qcgirl63@...> wrote:
How bad and often are your headaches? Mine are terrible! I take pain
pills & Stadol nose spray. If that doesn't work I have to go to the
hospital where sometimes they give me 2 or 3 shots of Stadol or
Demerol & if that doesn't work they admit me so they can deliver my
pain meds. through an IV......Headaches are the worst, not only for
me but for my family also. I wish they would go away.
>
> I suffer from headaches ... I can still see at night.
>
> Trish
>
> April <xapril77x@...> wrote:
> Hi, my name is April I am 29 years old & live in Texas.
I have had
> Adies for a little over 3 years now. It started when I was
pregnant
> with my 3rd son. My Dr. thought I might have had a stroke due to
my
> pre-eclampsia. I have had pre-eclampsia in all 3 of my pregnancies
and
> all were delivered early due to extremely high blood pressure. I
have
> had high blood pressure since the age of 15. I don't know if this
has
> anything to do with the Adies. I was tested for Lupus and it was
neg.
> Anyway, I have done lots of research and find that there are so
many
> people with different symptoms. I have excessive sweating, severe
> migranes, vision loss, cannot see at night, dialated pupil,
anxiety,
> over reactive reflexes, etc. Does anyone else ave similar
symptoms?
> I do not have alot of time to write but will try to post replies
> when I can. It's nice to be a member and know there are others
like me.
>
> April
>
>
>
>
>
>
> ---------------------------------
> Luggage? GPS? Comic books?
> Check out fitting gifts for grads at Yahoo! Search.
>


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#1246 From: Trish <qcgirl63@...>
Date: Mon Sep 24, 2007 1:55 am
Subject: Re: Re: Hi! New Member here 		qcgirl63
Offline Offline
Send Email Send Email
 
I take nothing for my pain. I just lay down and if they get to bad I'll wear my eye patch for awhile. You need to get dimmer switches for your lights and go from over head lighting to lamps. Adjust your computer settings and start wearing hats. They call me Gilligan now and never go outside without sun-glasses. I have noticed a slight jump in my BP so now I'm working on that. I'm sure it's all stress related.
 
Trish


April <xapril77x@...> wrote:
--- In adie_syndrome@yahoogroups.com, Trish <qcgirl63@...> wrote:
How bad and often are your headaches? Mine are terrible! I take pain
pills & Stadol nose spray. If that doesn't work I have to go to the
hospital where sometimes they give me 2 or 3 shots of Stadol or
Demerol & if that doesn't work they admit me so they can deliver my
pain meds. through an IV......Headaches are the worst, not only for
me but for my family also. I wish they would go away.
>
> I suffer from headaches ... I can still see at night.
>
> Trish
>
> April <xapril77x@...> wrote:
> Hi, my name is April I am 29 years old & live in Texas.
I have had
> Adies for a little over 3 years now. It started when I was
pregnant
> with my 3rd son. My Dr. thought I might have had a stroke due to
my
> pre-eclampsia. I have had pre-eclampsia in all 3 of my pregnancies
and
> all were delivered early due to extremely high blood pressure. I
have
> had high blood pressure since the age of 15. I don't know if this
has
> anything to do with the Adies. I was tested for Lupus and it was
neg.
> Anyway, I have done lots of research and find that there are so
many
> people with different symptoms. I have excessive sweating, severe
> migranes, vision loss, cannot see at night, dialated pupil,
anxiety,
> over reactive reflexes, etc. Does anyone else ave similar
symptoms?
> I do not have alot of time to write but will try to post replies
> when I can. It's nice to be a member and know there are others
like me.
>
> April
>
>
>
>
>
>
> ---------------------------------
> Luggage? GPS? Comic books?
> Check out fitting gifts for grads at Yahoo! Search.
>


Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos.

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#1241 From: linja@...
Date: Fri Sep 21, 2007 5:05 pm
Subject: Re: Hi! New Member here 		lajavins
Offline Offline
Send Email Send Email
 
April,  I don't have the sweating but doctors sometimes call Adies with sweating "Ross syndrome" so it's not unusual.  
 
I have low reflexes instead of over-reactive ones. I didn't realize that I did until the chiropractor tested me and a tap on the  right knee did not make the ankle jump up.
 
 
Best wishes,
Linda in Virginia
 
April  writes:
...had high blood pressure since the age of 15. I don't know if this has
anything to do with the Adies. I was tested for Lupus and it was neg.
Anyway, I have done lots of research and find that there are so many
people with different symptoms. I have excessive sweating, severe
migranes, vision loss, cannot see at night, dialated pupil, anxiety,
over reactive reflexes, etc. Does anyone else ave similar symptoms?
    I



See what's new at AOL.com and Make AOL Your Homepage.

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#1242 From: "April" <xapril77x@...>
Date: Sat Sep 22, 2007 7:49 am
Subject: Re: Hi! New Member here 		xapril77x
Offline Offline
Send Email Send Email
  
--- In adie_syndrome@yahoogroups.com, linja@... wrote:

>Is Ross syndrome the same as Adies?

>  The funny thing about my reflexes is when I accidentally drop my

arms close to my knee & my legs jump....it doesn't even have to be

very hard....I can barely touch around that area & it happens.



> April,  I don't have the sweating but doctors sometimes call

Adies  with

> sweating "Ross syndrome" so it's not unusual.

>

> I have low reflexes instead of over-reactive ones. I didn't

realize that I

> did until the chiropractor tested me and a tap on the  right knee

did  not make

> the ankle jump up.

>

> Reference: see the NIH page:

> _http://www.ninds.nih.gov/disorders/holmes_adie/holmes_adie.htm_

> (http://www.ninds.nih.gov/disorders/holmes_adie/holmes_adie.htm)

>

> Best wishes,

> Linda in Virginia

>

> April  writes:

>

> ...had  high blood pressure since the age of 15. I don't know if

this has

> anything  to do with the Adies. I was tested for Lupus and it was

neg.

> Anyway, I  have done lots of research and find that there are so

many

> people with  different symptoms. I have excessive sweating, severe

> migranes, vision  loss, cannot see at night, dialated pupil,

anxiety,

> over reactive  reflexes, etc. Does anyone else ave similar

symptoms?

> I

>

>

>

>

> ************************************** See what's new at

http://www.aol.com

>


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#1244 From: Kathy Erickson <ozzymommy1962@...>
Date: Sat Sep 22, 2007 11:43 pm
Subject: Re: Re: Hi! New Member here 		ozzymommy1962
Offline Offline
Send Email Send Email
 
I'm always hot but 45 pounds overweight.
I have absolutely no reflexes anywhere on my body.

linja@... wrote:
April,  I don't have the sweating but doctors sometimes call Adies with sweating "Ross syndrome" so it's not unusual.  
 
I have low reflexes instead of over-reactive ones. I didn't realize that I did until the chiropractor tested me and a tap on the  right knee did not make the ankle jump up.
 
 
Best wishes,
Linda in Virginia
 
April  writes:
...had high blood pressure since the age of 15. I don't know if this has
anything to do with the Adies. I was tested for Lupus and it was neg.
Anyway, I have done lots of research and find that there are so many
people with different symptoms. I have excessive sweating, severe
migranes, vision loss, cannot see at night, dialated pupil, anxiety,
over reactive reflexes, etc. Does anyone else ave similar symptoms?
    I



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