Thankyou David for setting up this group, which to many of us has been a real blessing, if it wasn't for this group in the beginning i would of felt truly...
Hi I just found out a few weeks ago about my eye !! What are your feelings with this syndrome? Anything you want to share with me I would love to hear it. GiGi...
Welcome to the group. The mail comes and goes in spurts. I wish you the best and make sure to wear your sunglasses. Trish SugarPlumGinger6@... wrote: Hi ...
Hello there I have been diagnosed a month now, saw my eye doctor today actually. i feel fine about it, i know it is not life threatening, yes a little...
As far as I know it is permanent, I have been diagnosed for a little over two years now, and just last year was diagnosed with sjogren's syndrome also. I read...
In a message dated 4/4/2007 6:52:35 A.M. Pacific Daylight Time, elaineha08@... writes: How you finding it? It was really annoying at first until my 3rd...
You might as well get used to it because it's probably never going to go away. I've been dealing with it now for 6 years. Trish elaine <elaineha08@...>...
I have been dealing with it for 10+ years now (right eye)... now, within the last year it is showing up in my left eye.... I have totally given up driving...
hi, i find it gets easier - i don't let it control me and it only plays me up when i'm tired. the pupil works better than it used to. it seems everyones...
Thanks for that Cathy, i was only diagnosed 2 months ago, and they only said it would take months to heal (if at all), i don't see how it will go away though,...
Hi Lucy thansks for that, i agree, i dont let it control me, and it mostly only plays up if i am tired or have been reading a lot, i am having more problems ...
I've had it for about 5 years. I read that sometimes it spreads to the other eye, but my opthalmalogist said that it's highly unlikely at my age, which is 60....
Hi there! My name is David Hughes and, as you may know, I started the group so that people coping with Adie Syndrome could support and share with one another....
I was diagnosed with adies about 3 years ago it never caused any problems that I could not cope with, recently I find that my eye swells up til it is nearly...
Adrienne, I've had Adies for 6 years and I've never had that problem before. Sounds more like allergies to me. You may have to wear your sunglasses in the...
In a message dated 5/6/2007 9:24:16 A.M. Pacific Daylight Time, qcgirl63@... writes: You may have to wear your sunglasses in the house too. I wear mine...
In a message dated 5/7/2007 9:02:46 A.M. Pacific Daylight Time, qcgirl63@... writes: They actually sing that song to me all the time at work because I...
I find myself squinting on sunny days, even with sunglasses on. It's really hard to keep the infected eye open. Recently, I have been really stressed out with...
 I saw this on medlink.com on a page called Chronic autonomic neuropathies by James Russell and Patience Reading. They link Adie's under Cholinergic failure...
Hi Everyone! Thank you all for being a part of our Adie Syndrome support group. I hope you received my previous message introducing CarePlace and have had an...
I checked out this link and in order to use it I have to give out my email password ... Um no this is not happening. The only person that needs my email ...
The following can be found on the web in a couple of places including http://www.geocities.com/ldbullseye/vol112.html. It refers to a November 2000 article...
From http://www.unboundmedicine.com/medline/ebm/record/9143037/abstract/Ocular_siderosis_Diagnosis_and_management Weiss MJ, Hofeldt AJ, Behrens M, Fisher K ...
Hi, my name is April I am 29 years old & live in Texas. I have had Adies for a little over 3 years now. It started when I was pregnant with my 3rd son. My Dr....
I suffer from headaches ... I can still see at night. Trish April <xapril77x@...> wrote: Hi, my name is April I am 29 years old & live in Texas. I have...
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