Hi all, I was amazed to even find a group of fellow sufferers of Aides pupil.Hello to you all! I got diagnosed over a year ago and hoped it would just correct ...
Hello My name is Dawna and I am 37 years old, I was diagnosed with the Adie's pupil yesterday officially, I saw Doctor Cline in Birmingham. I also see a...
I have this weird trmperature thing, one minute I am freezing and 5 minutes later I am nurning up..I have never been this way before, is this a side effect of...
Um this sounds more like Hot Flashes may be the early stages of Medapause. I've had Aides for about 5 yrs and I never had Hot Flashes until now but that comes...
... Well a friend of mine had a hysterectomy 6 years ago and she is just now starting to have hot flashes at the age of 44. So I'm guessing that these hot,...
I have Aides Tonic Pupil in both eyes. My left one was affected 3 years ago and my right eye became affected in February of this year. Since waking up that...
Has anyone else been diagnosed with an other strange illness or disease since being diagnosed with adies? One would think 1 rare condition is enough, but it...
Having a hysterectomy doesn't spare you the symptoms of menopause... it just brings everything on at once - no gradual easement into it ... been there done...
Headaches do run right along with Adies and until they have walked a mile in our shoes they will never understand. Trish. ... year. ... the ... or ... ...
I have arnold chiari malformation.I .....was diagnosed in 97...which is a a pretty rare condition all y itself..I was just diagnosed with Adies though.....
Hi to all Does anyone find it unbearable going into shops or places with spot lights and halogen lights, almost everywhere has them now they are the worse for...
Michaela I so understand your *pain* with shops and the such. In an office environment - with the flourescent lighting is the worst for me, along with...
hi michaela, really sorry to hear that, you may have already tried it but if not alternative therapies may well help with the pain - they are also very...
Hi Thanks for your emails Im not coping with this very well,do you think the pain can still ease after four years or unlikly to now ?, i couldn't bare to think...
I don't think the Meds brought on the Adie's. It was probably already there thats why you had back pain & headaches which is brought on by the light. My neck...
Hi, has anyone else having issues with their vision in the affected eye? My vision is very blurred and I have to close the eye to read. It also takes a very...
Hi Michaela, Ever tried pilocarpine eye-drops? The normal solution of 1 or 2% is much too strong and is really for another purpose ("glaucoom" in dutch), but...
Hello, My vision seems to get really blurry in the evening. Cindy ally_456789 <ally585@...> wrote: Hi, has anyone else having issues with their vision...
Hi Cindy, I have also observed this , i think also have the answer , when you close your eyes they focus on the inner eyelid causing the pupil to close down...
... them that ... summers ... when I ... to ... in ... coming ... this... ... spot ... are the ... and ... improved but trying to avoid the lights, which is...
Hi I have tried pilicarpine at 1% to 10 saline and that was to strong, i will ask my doctor if i could try a weaker solution, i don't see a eye doctor anymore...
Hi, although Adies' could have some origin in auto-immune diseases according to researchers, everybody has different circumstances and symptoms, with some...
WOW!!!! I just tried crossing my eyes to see what it would do and my pupil did get smaller! That's crazy. I guess I have a new exercise to do each day....
Hi Cindy, My opinion only , dont know if it will do any good , all i know is that it must excersise the normally lazy muscles so I believe it can reduce the...
Hi Peiter Could you send me the solution ingredients, i could ask my doctor if he could give me a prescription to try it, thankyou. I understand what you say,...