Thank you Amber for these precious advices. I will consider them for sure. Luckily, she doesn't seem to suffer from any pain, only telling me that she 'feels'...
About 2 years ago my daughter's optician noticed that she had asymmetrical pupils during a routine eye test when she was 12. She had recently complained about...
I didn't see anything on that website that would even remotely have anything to do with Adies. Tell me about the 'treatment' you received....it smells of $...
Hello LW I'm not sure which website you mean - the other Yahoo group or a Neurolink website? Well I'm a member of the Yahoo group but don't run it, and as I've...
Just typed adie's syndrome into Yahoo and came up with this site. I'm 28 year old woman. I was diagnosed with Adie's about 6 or 7 years ago. My specialist at...
I just go to the Doctor once a year. I'm one of the lucky ones I guess cause I really don't suffer from headaches but then I don't stress my eye out neither. ...
Hi I'm a 21 year old female and have just been diagnosed with Adie's in my right eye. It's really nice to read messages from people experiencing the same...
Hi Ally. I sometimes use pilocarpine 0.25%. I have the opposite problem though really - after a few months of not using it my eye really starts to ache and...
hi there the same thing happened to me when i tried pilocarpine, was in a lot of pain and started shaking quite violently. i think there's alot of info in the...
I've been using pilocarpine for just over a year now. My doctor prescribed a special formula, it is .1 instead of .25. The .25 was too strong and had pain...
That's interesting. I have real problems getting the .25 even when my doc has prescribed it. Do you mind telling me where you are - geographically and how easy...
The .1 formula that my doctor prescribes is special-made in Bismarck and shipped to a local pharmacy here in North Dakota. Basically, it is the pilocarpine...
Hi all! I've been reading the site for awhile now and thought I might share a recent experience. I was diagnosed with Adie's about a year and a half ago now....
hi roberta thankyou for sharing your experiences, very interesting and i couldn't agree more about using these drops when doctors don't seem to know much about...
lucygleeson1uk, Curious, what is gone? The sinus problem or the adie pupil? Mine has gotten smaller over the years but still remains slow to react. ms ... ...
hi i have just been looking up stuff about pilocarpine, i came across very interesting information about pilocarpine on the what doctors dont tell you website ...
Do you know of a specific link between sinus problems and adie's? I have sinus trouble. A doctor treated it with antibiotics and it got better but the meds ...
hiya all i know is i asked my ENT consultant if they were linked and he didn't deny it. my sinuses used to hurt more when my pupil constricted, like a real...
Hi, I have adie syndrome for 1.5 year now. Must say that i am a "lucky" guy because the pupil is dilated now, and sometimes even smaller then the other. I...
cstrienen, Changes in sweating are associated with adie syndrome. My adie pupil is on the left side and I noticed that my left arm does not sweat. However,...
Hi all; This is interesting. I haven't noticed any change at all, but I haven't been looking. Can I ask if you have diminished reflexes on the right side as...
Yes my reflexes are gone. The neurolog was suprised to see that but i don't have any trouble that the reflexex are gone where do i need that for?? The pupil...
Thanks for that information. I am going to check into it further, because lately, within the past yr - yr&1/2, I have been sweating, which I have never done ...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
