Well, this is a fun one. I started about 4 years ago with Adies in my right eye. This developed after a really bad sinus infection. Now both eyes are...
Hi Carol ~ I have had Adies in my right eye for at least 15 years now. Pupil was huge ~ now it's getting small. Never got it in my left eye ~ yet. I have...
hi people, I have started a site http://www.outofstress.com which deals with all aspects of stress.Our site is a fast growing.Our site objective is to help...
Hello everyone, My 10 year old daughter was just diagnosed with Adie's syndrome. Going through the web, I realize that there isn't much interesting information...
As for me I am in to my 5 th yr and I just lost my reflexes this year. Light does bother the eye or eyes. Try using dim lighting and avoid overhead lights....
Dear Worried Mom, I think I can say the light is an issue for everyone with adie's. I wear sunglasses all the time. Some people do develop headaches because...
Hope this helps: 1. Light could cause the headaches. You would also have to be careful long term about the ultraviolet rays entering the pupil and causing...
Thank you for your advices! Yes, she has been wearing glasses for about 5 years, for her 'close' vision. I am seeing an ophtalmologist this week for a new...
Thank you very much Marie for your help. It is amazing that the doctor didn't give me any advice! Amazing! I really appreciate your advices. Thanks! Nathalie ...
I have just entered my second year with adies and although I still find a few things difficult, I have been able to adjust well. My best advice to you is to...
Thank you Amber for these precious advices. I will consider them for sure. Luckily, she doesn't seem to suffer from any pain, only telling me that she 'feels'...
About 2 years ago my daughter's optician noticed that she had asymmetrical pupils during a routine eye test when she was 12. She had recently complained about...
I didn't see anything on that website that would even remotely have anything to do with Adies. Tell me about the 'treatment' you received....it smells of $...
Hello LW I'm not sure which website you mean - the other Yahoo group or a Neurolink website? Well I'm a member of the Yahoo group but don't run it, and as I've...
Just typed adie's syndrome into Yahoo and came up with this site. I'm 28 year old woman. I was diagnosed with Adie's about 6 or 7 years ago. My specialist at...
I just go to the Doctor once a year. I'm one of the lucky ones I guess cause I really don't suffer from headaches but then I don't stress my eye out neither. ...
Hi I'm a 21 year old female and have just been diagnosed with Adie's in my right eye. It's really nice to read messages from people experiencing the same...
Hi Ally. I sometimes use pilocarpine 0.25%. I have the opposite problem though really - after a few months of not using it my eye really starts to ache and...
hi there the same thing happened to me when i tried pilocarpine, was in a lot of pain and started shaking quite violently. i think there's alot of info in the...
I've been using pilocarpine for just over a year now. My doctor prescribed a special formula, it is .1 instead of .25. The .25 was too strong and had pain...
That's interesting. I have real problems getting the .25 even when my doc has prescribed it. Do you mind telling me where you are - geographically and how easy...
The .1 formula that my doctor prescribes is special-made in Bismarck and shipped to a local pharmacy here in North Dakota. Basically, it is the pilocarpine...
Hi all! I've been reading the site for awhile now and thought I might share a recent experience. I was diagnosed with Adie's about a year and a half ago now....
hi roberta thankyou for sharing your experiences, very interesting and i couldn't agree more about using these drops when doctors don't seem to know much about...
lucygleeson1uk, Curious, what is gone? The sinus problem or the adie pupil? Mine has gotten smaller over the years but still remains slow to react. ms ... ...
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