Hi! My name's Louisa and I'm from England. I've been recently diagnosed with Adie Syndrome. I was rushed to hospital quite quickly when the Doc noticed my...
11
M. Stafford
mstafford@...
Apr 23, 2000 6:22 pm
Yes, what we have is considered rare. This means that they can't tell you what to expect or why it is happening. I am 47, female, diagnosted in 1992. My left...
12
Ian Foster
fosteri@...
Apr 23, 2000 6:52 pm
Hi! Thanks for the e-mail. It's so annoying that people can and do diagnose things that they cannot explain or help you with! At the moment I am having so much...
13
M. Stafford
mstafford@...
Apr 29, 2000 4:10 am
My legs have been swelling. I wonder if this has anything to do with the fact that my left arm does not sweat. Has anyone else had swelling of extremities or...
14
Ian Foster
fosteri@...
Apr 29, 2000 6:29 pm
I tend to get a lot of water retention in my stomach rather than limbs. This can happen quite frequently in a month, sometimes it is so bad that I look as...
15
SupeRoberta
robertafavarin@...
May 2, 2000 8:53 pm
Hi, girls here I am! Do you have sweat problems? I read somthing about it in Medline (here's the link: http://www.nlm.nih.gov/medlineplus/medline.html than...
16
M. Stafford
mstafford@...
May 4, 2000 4:10 am
YES, I have a sweating abnormality. One summer I noticed that I was sweating more than normal. It wasn't extreme and chalked it up to my age and the amount...
17
M. Stafford
mstafford@...
May 5, 2000 4:12 am
Louisa, Roberta! Set your watches! Do you think we could meet for a live chat?...
18
SupeRoberta
robertafavarin@...
May 5, 2000 5:54 am
First: I have no sweating's problems. And now a question: what's a "Screen name"? I have no one. But if you talking about a sort of virtual-chat, sorry but I...
19
MSTAFFORD
mstafford@...
May 8, 2000 12:50 am
Hi Roberta! Send a thank you, from me, to your husband for the translations. If you can't think of a word in English, use Italian. I can try using an ...
20
fosteri@...
Jun 1, 2000 7:41 pm
how are you all?...
21
SupeRoberta
robertafavarin@...
Jun 2, 2000 7:02 pm
Fine Thanks, now I'm Pregnant of 4 month. Will my son (or daugther) with Adie? By mom-Roby ... Da: <fosteri@...> A: <adie_syndrome@egroups.com> Data...
22
fosteri@...
Jun 2, 2000 7:11 pm
Hi Roberta! Congratulations on being pregnant!! I don't think that Adies is hereditary - thankfully! Has anyone read that it is? Lou...
23
MSTAFFORD
mstafford@...
Jun 2, 2000 9:37 pm
I've read it is inherited, but I don't know if it jumps a generation or whatever. Mostly picked up by females. If you read any of the abstracts at the "links"...
24
fosteri@...
Oct 29, 2000 4:49 pm
Hi! I hope everyone's ok - haven't seen any new postings for ages. Just to let you all know that my husband and I are trying for a baby - not pregnant yet but...
25
MSTAFFORD
mstafford@...
Nov 6, 2000 4:15 am
Don't know of any pregnancy connections.Best of luck! I'm focusing on leg motion with regard to the lack of deep tendon reflexes. Do you notice any problems...
26
Roberta Favarin
robertafavarin@...
Nov 6, 2000 1:48 pm
... time. ... baby -...
27
Roberta Favarin
robertafavarin@...
May 22, 2001 6:58 am
Hi Margo, Hi all!! I'm fine. You can see yourself by my son's web site: www.lorenzojannon.it I bring Lorenzo in my arms. I will transplantate my right cornea...
28
Nicky Traill
ntraill@...
Oct 10, 2001 5:14 am
Hello all I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any...
29
Roberta Favarin
robertafavarin@...
Oct 16, 2001 10:08 am
Hi Nicky, I'm Francesco from Italy, I'm Roberta's husband, a girl of the Adie's group. Yesterday Roberta had cornea-transplant on her eye with Adie Syndrome,...
Hi Nicky, I've had Adie's since 1992. I also tried the pilocarpine drops. It was nice having your vision improve, even if it was for a short time. That was...
Roberta, I hope your recovery is going well. Hi Francesco. Margo ... From: Roberta Favarin To: adie_syndrome@yahoogroups.com Sent: Tuesday, October 16, 2001...
Hello nicky, I'm 30 years old, i'm french (i live near paris), and i work in biological research institute. Past years; a neurologist diagnostic me an holmes ...
33
Roberta Favarin
robertafavarin@...
Oct 25, 2001 5:08 pm
Hi Margo, Hi all, so I transplantate my cornea 10 days ago. I think, the first case of cornea transplant in a eye with Adie Syndrome on the net. The doctor was...
Hi, This is the first time that I have been on this website! it is amazing to finally find other people that have the same condition as you. My Name is Katie...
Hi Katie, I've heard that this can or will eventually affect both eyes. Just my left eye is involved. I'm from the US, 49. I would imagine having both eyes...
... ===== __________________________________________________ Do You Yahoo!? Yahoo! Movies - coverage of the 74th Academy Awards® http://movies.yahoo.com/...
Hi Nese, I've had this since 1992. It's rare but it seems like we've been picking up in numbers here at this site. I'm from USA. Others from England and Italy....
Hi all, Just to let everyone know I am in Boston, Massachusetts, USA. I am 26 years old. I was diagnosed almost a month ago with Aide’s syndrome. So far...
39
Roberta Favarin
robertafavarin@...
Apr 4, 2002 7:41 am
dear Nese, - hi all - I think you read our old emails and so I can try to tell you some news. Two years ago I bought the relation about rarediseases.org for $...
