Hi Amber,

Thanks for emailing me.  This is all pretty new to me & people around this small town don't know anything about this disease. I was just persistent when I started to have migraines & blurred vision & insisted that there was something else wrong.  they sent me to a city specialist & I was diagnozed with Adie's syndrome.  I use pilocarpine to constrict my pupil to let in less light but it impaires my vision. This all makes it difficult to work indoors.  Outside I wear sunglasses. I was wondering if anyone tries vitamin B complex which is supoosed to be good for neurological problems?

The medical books or doctors have so little info on this.. I learn more from other sufferers.

Thanks again,

Mimi

Amber Schilousky <hot_chica58368@...> wrote:

My name is Amber and I was diagnosed with Adies in
November.  Since then I have gotten new glasses twice
until a couple weeks ago when my doctor announced that
my eyes had stabilized.  My eye doctor said that for
awhile your eyes may change a lot, but they should
slow down and eventually settle into one prescription.
Of course every case is different and it may take
longer for your eyes to stabilize and new glasses are
expensive, but my eyes stabilized after two
prescriptions and if you don't get new ones every so
often it may damage your eyes.


           
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