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Re: Digest Number 370   Message List  
Reply | Forward Message #952 of 1249 |
Re: [adie_syndrome] Digest Number 370

Cathy,
I noticed I've had more injuries to my adies side.
Becky
--- MStafford <Mstafford220@...> wrote:

> RE: [adie_syndrome] Digest Number 370Cathy,
> Is your patellar reflex (knee jerk reflex)
> weak or absent on the right side? Do you notice that
> you have more injuries to your right side as opposed
> to the left?
> Just curious.
> mrs
> ----- Original Message -----
> From: Cathy Sonnenberg
> To: adie_syndrome@yahoogroups.com
> Sent: Thursday, April 07, 2005 10:14 PM
> Subject: Re: [adie_syndrome] Digest Number 370
>
>
> Hi Jody,
> I also have Adies in my right eye, it came on Jan
> 18 one year ago, I had fallen and re injured my
> right knee that morning on my way to church. Next
> thing I know a couple of hours later my sister
> noticed my pupil was dilated in my right eye. Went
> to the dr and he sent me to the ophthamalogist who
> diagnosed it.
> Cathy
>
> ----- Original Message -----
> From: Zamirowski, Jody
> To: adie_syndrome@yahoogroups.com
> Sent: Thursday, April 07, 2005 9:11 AM
> Subject: RE: [adie_syndrome] Digest Number 370
>
>
> Hello,
>
> I am also new to the forum. My right eye was
> diagnosed with Adies on Jan. 2. It came on very
> abruptly at the same time I had a cold virus. I'm
> not sure if that is the virus that caused it. I am a
> graphic designer and work on the computer most of
> the day. It has been difficult. I did purchase a
> flat screen monitor to ease the strain. It does help
> a little bit. Prior to my diagnoses I had just had
> prescriptions filled for bifocals, computer glasses
> and reading glasses. I've been holding off getting
> re-tested because of the expense of new glasses. I
> also wanted to see if it improved on it's own. I am
> also a photographer and a bird watcher and use my
> right eye for looking through the camera viewfinder
> and my scope. The blurriness has been making this
> impossible. I think what bothers me the most is the
> uneveness between the two eyes-both in blurriness
> and light sensitivity. Last week my husband noticed
> my pupil looked a little smaller-it had improved a
> little bit from being a big black disk. You could
> actually see some of the iris color which had been
> mostly gone. The blurriness and eye strain continue,
> though. It's a challenge.
>
> Jody Z
>
> ----------
> From: adie_syndrome@yahoogroups.com
> Reply To: adie_syndrome@yahoogroups.com
> Sent: Wednesday, April 6, 2005 9:09 PM
> To: adie_syndrome@yahoogroups.com
> Subject: [adie_syndrome] Digest Number
> 370
>
>
>
>
> There are 4 messages in this issue.
>
> Topics in this digest:
>
> 1. adie's questions
> From: "cstrienen"
> <cstrienen@...>
> 2. Re: adie's questions
> From: Naydene Mitchell
> <n.mitchell@...>
> 3. Re: adie's questions
> From: Trisha Marie
> <qcgirl63@...>
> 4. Re: adie's questions
> From: "cstrienen"
> <cstrienen@...>
>
>
>
>
>
________________________________________________________________________
>
>
>
________________________________________________________________________
>
>
> Message: 1
> Date: Wed, 06 Apr 2005 10:47:27 -0000
> From: "cstrienen" <cstrienen@...>
> Subject: adie's questions
>
>
>
>
> Hello,
>
> I am new to this forum and before yesterday i
> thought that i was
> alone with this disorder. Excuse me if the
> english language is
> mispelled because i am a dutchman.
>
> For three months now i have a tonic pupil.
> According to the eye
> doctor the pupil of the right eye doesn't
> respond to light and
> accomodation. The first neurolog (past week)
> that i have visited
> diagnosed directly "adie's pupil". Nothing to
> do about it he says. I
> have hoewever after pushing get pilocarpine
> drups to make the pupil
> smaller.
>
> I can find info on the internet but mostly
> defenitions of adie. Not
> how to handle it. Thatswhy i realy like to
> know how you deal with
> this problem. Next week i get a MRI scan
> (because the second neurolog
> wants to be shore that is it adie).
>
>
>
> Questions: (i will make it as short as
> possible)
> My greatest problem is reading and looking
> with the infected eye.
> When i don't ware glasses i can't read
> anymore. Also looking in the
> distance is blurry with that eye. BEcause i
> have a good eye that is
> correcting it a little bit. Two months ago i
> went to the eye doctor
> and he measured on the effected eye: +0.75.
> Past week i went again
> and he measered: looking: +1.25 and reading:
> +3.50!
> This means it is goiing to be worse over in
> two monhts?
> Did you experience the same and is it to
> getting more worse? How
> worse? I know that nobody is a doctor but most
> off you have the
> disorder for years now and can tell if it was
> getting worse by you?
>
> Do you use pilocarpine? How many %. First i
> used 1% but the first
> hour was so many side effects that i asked for
> less %. Now i am using
> 0.125%. The pupil stays little for a few hours
> but the reading is
> getting worse about 1 hour. So after 1.5 hours
> i can't read anymore.
>
> Migraine: are there more people with migraine
> in this group? The
> attacks are getting much more.
>
> Is there any of you that tried a lens for the
> bad eye and for reading
> a glasses with the good eye a 0 glass or
> something like that and is
> that working? What strenght's do you use for
> the lens and reading?
>
> Acoording to the internet documents many adie
> people are recovering
> for the accomodation part within 2 years. Does
> this means that the
> blurry vision goes away over time? Did you
> experienced that?
>
>
>
> I just want to learn from you how you deal
> with it. In the
> Netherlands many medicals don't know what adie
> is and can't answer my
> questions.
>
> Many thanks for helping!
>
>
>
> Corné
>
>
>
>
>
=== message truncated ===




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Fri Apr 8, 2005 10:44 pm

becca_b55352
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Forward
Message #952 of 1249 |
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Hello, I am also new to the forum. My right eye was diagnosed with Adies on Jan. 2. It came on very abruptly at the same time I had a cold virus. I'm not sure...
Zamirowski, Jody
jzamirowski
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Apr 7, 2005
2:16 pm

RE: [adie_syndrome] Digest Number 370Hi Jody, I also have Adies in my right eye, it came on Jan 18 one year ago, I had fallen and re injured my right knee that...
Cathy Sonnenberg
katy0118
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Apr 8, 2005
2:19 pm

RE: [adie_syndrome] Digest Number 370Cathy, Is your patellar reflex (knee jerk reflex) weak or absent on the right side? Do you notice that you have more...
MStafford
pea007nut
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Apr 8, 2005
7:17 pm

Cathy, I noticed I've had more injuries to my adies side. Becky ... === message truncated === __________________________________ Do you Yahoo!? Yahoo!...
Rebecca Borchardt
becca_b55352
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Apr 8, 2005
10:44 pm

I was just catching up on some posts and thought that your question about whether or not this person's injuries coincide with their aidies side.....it made me...
Nicole
hipnik
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Apr 9, 2005
5:45 pm

RE: [adie_syndrome] Digest Number 370That is right, I do not have reflexes on my right side, I also get more inflammation on my right side, ie, tendonitis in...
Cathy Sonnenberg
katy0118
Offline Send Email
Apr 9, 2005
3:07 am
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