----- Original Message -----

From: Zamirowski, Jody

To: adie_syndrome@yahoogroups.com

Sent: Thursday, April 07, 2005 9:11 AM

Subject: RE: [adie_syndrome] Digest Number 370

Hello,

I am also new to the forum. My right eye was diagnosed with Adies on Jan. 2. It came on very abruptly at the same time I had a cold virus. I'm not sure if that is the virus that caused it. I am a graphic designer and work on the computer most of the day. It has been difficult. I did purchase a flat screen monitor to ease the strain. It does help a little bit. Prior to my diagnoses I had just had prescriptions filled for bifocals, computer glasses and reading glasses. I've been holding off getting re-tested because of the expense of new glasses. I also wanted to see if it improved on it's own. I am also a photographer and a bird watcher and use my right eye for looking through the camera viewfinder and my scope. The blurriness has been making this impossible. I think what bothers me the most is the uneveness between the two eyes—both in blurriness and light sensitivity. Last week my husband noticed my pupil looked a little smaller—it had improved a little bit from being a big black disk. You could actually see some of the iris color which had been mostly gone. The blurriness and eye strain continue, though. It's a challenge.

Jody Z

----------
From:   adie_syndrome@yahoogroups.com
Reply To:       adie_syndrome@yahoogroups.com
Sent:   Wednesday, April 6, 2005 9:09 PM
To:     adie_syndrome@yahoogroups.com
Subject:        [adie_syndrome] Digest Number 370




------------------------ Yahoo! Groups Sponsor --------------------~-->
Give the gift of life to a sick child.
Support St. Jude Children's Research Hospital's 'Thanks & Giving.'
http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/VzSolB/TM
--------------------------------------------------------------------~->

There are 4 messages in this issue.

Topics in this digest:

      1. adie's questions
           From: "cstrienen" <cstrienen@...>
      2. Re: adie's questions
           From: Naydene Mitchell <n.mitchell@...>
      3. Re: adie's questions
           From: Trisha Marie <qcgirl63@...>
      4. Re: adie's questions
           From: "cstrienen" <cstrienen@...>




________________________________________________________________________
________________________________________________________________________

Message: 1        
   Date: Wed, 06 Apr 2005 10:47:27 -0000
   From: "cstrienen" <cstrienen@...>
Subject: adie's questions





Hello,

I am new to this forum and before yesterday i thought that i was
alone with this disorder. Excuse me if the english language is
mispelled because i am a dutchman.

For three months now i have a tonic pupil. According to the eye
doctor the pupil of the right eye doesn't respond to light and
accomodation. The first neurolog (past week) that i have visited
diagnosed directly "adie's pupil". Nothing to do about it he says. I
have hoewever after pushing get pilocarpine drups to make the pupil
smaller.

I can find info on the internet but mostly defenitions of adie. Not
how to handle it. Thatswhy i realy like to know how you deal with
this problem. Next week i get a MRI scan (because the second neurolog
wants to be shore that is it adie).




Questions: (i will make it as short as possible)
My greatest problem is reading and looking with the infected eye.
When i don't ware glasses i can't read anymore. Also looking in the
distance is blurry with that eye. BEcause i have a good eye that is
correcting it a little bit. Two months ago i went to the eye doctor
and he measured on the effected eye: +0.75. Past week i went again
and he measered: looking: +1.25 and reading: +3.50!
This means it is goiing to be worse over in two monhts?
Did you experience the same and is it to getting more worse? How
worse? I know that nobody is a doctor but most off you have the
disorder for years now and can tell if it was getting worse by you?

Do you use pilocarpine? How many %. First i used 1% but the first
hour was so many side effects that i asked for less %. Now i am using
0.125%. The pupil stays little for a few hours but the reading is
getting worse about 1 hour. So after 1.5 hours i can't read anymore.

Migraine: are there more people with migraine in this group? The
attacks are getting much more.

Is there any of you that tried a lens for the bad eye and for reading
a glasses with the good eye a 0 glass or something like that and is
that working? What strenght's do you use for the lens and reading?

Acoording to the internet documents many adie people are recovering
for the accomodation part within 2 years. Does this means that the
blurry vision goes away over time? Did you experienced that?




I just want to learn from you how you deal with it. In the
Netherlands many medicals don't know what adie is and can't answer my
questions.

Many thanks for helping!




Corné










________________________________________________________________________
________________________________________________________________________

Message: 2        
   Date: Wed, 6 Apr 2005 11:18:44 -0400
   From: Naydene Mitchell <n.mitchell@...>
Subject: Re: adie's questions

What I had to do for reading was wear a contact in the affected eye
only and then glasses with bifocles on top of that. It worked. The good
news after about 2 yrs I no longer have to wear the contact to read, so
there has been some improvement.

Naydene





________________________________________________________________________
________________________________________________________________________

Message: 3        
   Date: Wed, 6 Apr 2005 10:43:37 -0700 (PDT)
   From: Trisha Marie <qcgirl63@...>
Subject: Re: adie's questions

I have it in my good eye. I use artificial tear drops when my eye feels dry. It helps calm it down and I have an eye patch if needed. I keep my lights on dim and use my sun visor in the car all the time even at night. I won't go anywhere with out my fishing hat and sunglasses. I even have hats to wear with my dresses.

Good Luck to you!
 
Trish.

cstrienen <cstrienen@...> wrote:




Hello,

I am new to this forum and before yesterday i thought that i was
alone with this disorder. Excuse me if the english language is
mispelled because i am a dutchman.

For three months now i have a tonic pupil. According to the eye
doctor the pupil of the right eye doesn't respond to light and
accomodation. The first neurolog (past week) that i have visited
diagnosed directly "adie's pupil". Nothing to do about it he says. I
have hoewever after pushing get pilocarpine drups to make the pupil
smaller.

I can find info on the internet but mostly defenitions of adie. Not
how to handle it. Thatswhy i realy like to know how you deal with
this problem. Next week i get a MRI scan (because the second neurolog
wants to be shore that is it adie).




Questions: (i will make it as short as possible)
My greatest problem is reading and looking with the infected eye.
When i don't ware glasses i can't read anymore. Also looking in the
distance is blurry with that eye. BEcause i have a good eye that is
correcting it a little bit. Two months ago i went to the eye doctor
and he measured on the effected eye: +0.75. Past week i went again
and he measered: looking: +1.25 and reading: +3.50!
This means it is goiing to be worse over in two monhts?
Did you experience the same and is it to getting more worse? How
worse? I know that nobody is a doctor but most off you have the
disorder for years now and can tell if it was getting worse by you?

Do you use pilocarpine? How many %. First i used 1% but the first
hour was so many side effects that i asked for less %. Now i am using
0.125%. The pupil stays little for a few hours but the reading is
getting worse about 1 hour. So after 1.5 hours i can't read anymore.

Migraine: are there more people with migraine in this group? The
attacks are getting much more.

Is there any of you that tried a lens for the bad eye and for reading
a glasses with the good eye a 0 glass or something like that and is
that working? What strenght's do you use for the lens and reading?

Acoording to the internet documents many adie people are recovering
for the accomodation part within 2 years. Does this means that the
blurry vision goes away over time? Did you experienced that?




I just want to learn from you how you deal with it. In the
Netherlands many medicals don't know what adie is and can't answer my
questions.

Many thanks for helping!




Corné










---------------------------------
Yahoo! Groups Links

   To visit your group on the web, go to:
http://groups.yahoo.com/group/adie_syndrome/
 
   To unsubscribe from this group, send an email to:
adie_syndrome-unsubscribe@yahoogroups.com
 
   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.




               
---------------------------------
Yahoo! Messenger
 Show us what our next emoticon should look like. Join the fun.

[This message contained attachments]





________________________________________________________________________
________________________________________________________________________

Message: 4        
   Date: Wed, 06 Apr 2005 18:06:31 -0000
   From: "cstrienen" <cstrienen@...>
Subject: Re: adie's questions




So you didn't wear lenses for normal looking but only for reading and
wasn't the difference between the good and the bad eye not to much?





--- In adie_syndrome@yahoogroups.com, Naydene Mitchell
<n.mitchell@c...> wrote:
> What I had to do for reading was wear a contact in the affected eye
> only and then glasses with bifocles on top of that. It worked. The
good
> news after about 2 yrs I no longer have to wear the contact to read,
so
> there has been some improvement.
>
> Naydene







________________________________________________________________________
________________________________________________________________________





------------------------------------------------------------------------
Yahoo! Groups Links

<*> To visit your group on the web, go to:
    http://groups.yahoo.com/group/adie_syndrome/

<*> To unsubscribe from this group, send an email to:
    adie_syndrome-unsubscribe@yahoogroups.com

<*> Your use of Yahoo! Groups is subject to:
    http://docs.yahoo.com/info/terms/
 
------------------------------------------------------------------------