Hello,

I am new to this forum and before yesterday i thought that i was
alone with this disorder. Excuse me if the english language is
mispelled because i am a dutchman.

For three months now i have a tonic pupil. According to the eye
doctor the pupil of the right eye doesn't respond to light and
accomodation. The first neurolog (past week) that i have visited
diagnosed directly "adie's pupil". Nothing to do about it he says. I
have hoewever after pushing get pilocarpine drups to make the pupil
smaller.

I can find info on the internet but mostly defenitions of adie. Not
how to handle it. Thatswhy i realy like to know how you deal with
this problem. Next week i get a MRI scan (because the second neurolog
wants to be shore that is it adie).


Questions: (i will make it as short as possible)
My greatest problem is reading and looking with the infected eye.
When i don't ware glasses i can't read anymore. Also looking in the
distance is blurry with that eye. BEcause i have a good eye that is
correcting it a little bit. Two months ago i went to the eye doctor
and he measured on the effected eye: +0.75. Past week i went again
and he measered: looking: +1.25 and reading: +3.50!
This means it is goiing to be worse over in two monhts?
Did you experience the same and is it to getting more worse? How
worse? I know that nobody is a doctor but most off you have the
disorder for years now and can tell if it was getting worse by you?

Do you use pilocarpine? How many %. First i used 1% but the first
hour was so many side effects that i asked for less %. Now i am using
0.125%. The pupil stays little for a few hours but the reading is
getting worse about 1 hour. So after 1.5 hours i can't read anymore.

Migraine: are there more people with migraine in this group? The
attacks are getting much more.

Is there any of you that tried a lens for the bad eye and for reading
a glasses with the good eye a 0 glass or something like that and is
that working? What strenght's do you use for the lens and reading?

Acoording to the internet documents many adie people are recovering
for the accomodation part within 2 years. Does this means that the
blurry vision goes away over time? Did you experienced that?


I just want to learn from you how you deal with it. In the
Netherlands many medicals don't know what adie is and can't answer my
questions.

Many thanks for helping!


Corné