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Reply | Forward Message #88 of 1249 |
Re: [adie_syndrome] New member

Thanks, Katie......

My optician said, stop fussing, it's common, but I suspect he was
blustering because he didn't really know......
the eye consultant said, don't worry, the drops will help....
The neurologist said, don't bother with the drops just get dark
glasses, and he also said, wow this really interesting because it's so
unusual, can you come and be a test case for medical students!
None of the professionals I have seen were alarmed, which seems
reasonable enough since it's not apparently serious, but none of them
appreciated the difference it has made not only to my vision, but my
self-image. Perhaps I'm just a worrier.....
Sam
----- Original Message -----
From: "Katie Trudgett" <ktrudgett@...>
To: <adie_syndrome@yahoogroups.com>
Sent: Friday, August 30, 2002 6:37 PM
Subject: Re: [adie_syndrome] New member


>
> Hi Sam,
>
> I am in my late twenties and as you can see from some of the
previous notes I have had Adies for a long time. I tried the drops
for a while but they didn't work for me they just seemed to make
things worse - vision wise, so I stopped using them.
>
> I too am from the UK - what did the doctors say to you other than
that you have Adies?
>
> Katie
>
>
> >From: "milkbottlesam"
> >Reply-To: adie_syndrome@yahoogroups.com
> >To: adie_syndrome@yahoogroups.com
> >Subject: [adie_syndrome] New member
> >Date: Thu, 22 Aug 2002 21:31:18 -0000
> >
> >I'm a middle-aged woman living in the English Midlands, recently
> >diagnosed with Adie's pupil, using piocarpine drops to control it
and
> >wearing photochromic glasses. I'm finding the whole thing a bit
> >depressing so I thought I'd try a support group. Anyone else find
> >these drops a mixed blessing?
> >Sam
> >
> >
>
>
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>





Sat Aug 31, 2002 8:48 pm

milkbottlesam
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Message #88 of 1249 |
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I'm a middle-aged woman living in the English Midlands, recently diagnosed with Adie's pupil, using piocarpine drops to control it and wearing photochromic...
milkbottlesam
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Aug 29, 2002
12:30 pm

Hi Sam, I am from Pennsylvania-USA. Was diagnosed in 1992. Tried the pilocarpine drops at first, it was nice to get the old vision quality back . However the...
MStafford@...
pea007nut
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Aug 29, 2002
3:12 pm

Hi Sam, I am in my late twenties and as you can see from some of the previous notes I have had Adies for a long time. I tried the drops for a while but they...
Katie Trudgett
ktrudgett
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Aug 30, 2002
5:37 pm

Welcome Sam, I also have Adie's syndrome, but never had the chance to use the piocarpine drops. What are those like? -Nese milkbottlesam wrote:I'm a...
Sokenunese Myles
adzaa_nez26
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Sep 12, 2002
1:07 pm

Thanks, Katie...... My optician said, stop fussing, it's common, but I suspect he was blustering because he didn't really know...... the eye consultant said,...
Sam
milkbottlesam
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Sep 12, 2002
1:07 pm

Hi! I'm a new member to this group. I'm a 37 yrs male from Sweden that recently have been diagnosed Adie's syndrome. I'm waiting for a MRI to exclude any other...
Magnus
sungamsweden
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Oct 26, 2002
1:42 pm
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