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Hello Pramod,
I will try to answer what I know of the questions you posed. I have had Adie's pupil in my left eye for about a year now and within that year my vision has become considerably more blurry and even when I manage to focus, I am still considerably long sighted in that eye. However, it progressed up to a point and then it stabilised. I think there is a small progression of symptoms when you very first notice the problem, but there comes a point that this stops and you kind of accept that this is where you are.
Yes, there is a percentage of people for whom this is a bilateral case, however, there is no prognosis and no prevention, neither is there a time limit as to when one might get Adie's in their other eye too. So, on that note, you just have to cope...
I am afraid Adie's syndrome as far as I know is not reversible. It is the case though for some people, that over time, their brain manages to cope with the discrepancy between the two eyes so that blurry vision stops being a problem. As to the people who don't have sight problems (there is a small percentage for whom adie's pupil equals only a larger pupil with no other problems - lucky ones), also some report that the pupil might come to a less fixed and more appropriate size over time. Again, it is a matter of individual cases, and as far as I know there is not much you can do about anything. Myself, I tried some Bates Vision therapy for a while but it only made me tired and frustrated, so I dropped it. As for the pilocarpine drops, well, I could not stand them!! Having said that, there are people who quite happily use them.
As far as the causes are concerned, no one knows... I had a general anaesthetic prior to getting adie's pupil and also had a very traumatic time psychologically. Other people who have written in this group have had both a psychological trauma, a general anaesthetic, or report other things rpior to their getting adie's. It's really not clear at all and I don't think there is a definitive answer. I would say that it's one of those things that we believe to be either multifactorial or idiopathic in origin and we will not know until science gets to that point that it can tell us a bit more about it.
Damage to the ciliary ganglion is what is observed with adie's pupil, but it is precicely this damage that we don't know how it is caused. Other people seem to have noticed their extended use of aspartame before getting symptoms.
With regards to the lens, well, I'd say give it a go. I'm planning to do that myself soon. I think the best thing you can do is speak to your optician or ophthalmologist about the options you have for allieviating the symptoms and experiment with them until you find something that makes it more comfortable and bearable for you. In time, you will learn to live with it - as harsh as this might sound - and it will hopefully not affect you as much. Experiment with lenses and spectacles and try to put this behind you slowly by first of all accepting that this is a loss and it hurts, but thank God it is not the worse loss you could have had!!! As a fellow group member wrote, among all the other things that a dilated pupil could mean, adie's syndrome is the most benevolent diagnosis.
I hope I have been of help. Please write and let us all know how you get on and what options might have worked for you!!!
Take care,
Sophia (I'm 31 myself...)
pramodin <pramodin@...> wrote:
pramodin <pramodin@...> wrote:
Hi Everyone
I am the latest to join you people. I have been diagonised by Adie's
Pupil in my left eye and the dia of the pupil is 5mm. Could you pleae
help me in clearing some of my doubts.
1. Is this syndrome progressive?
2. Is this syndrome reversible if so how ?
3. Is Deviated Nasel Septum (causing Sinusitis) one of the causes ?
I have been experiencing blurred vision in my left eye. My
opthalmologist has suggested a contact lens with 2.5mm hole and i also
should wear a progressive lens to correct my short sight. Will the pin
hole effect of the contact lens improve my vision?
Also my neurologist is of the opinion that this is not due to the
damage of the 3rd Cranial Nerve but due to the damage of the ciliary
ganglion. I had a MRI scan done and it does not reveal any focal
lesion and the brain parenchyma is ok. And i had read that there is
about 30% chances of the other eye also getting affected?
Anybody out there please help me in clearing my doubts and lead a
content life.
Many Thanks
Pramod
P.S
My age is 30 M and i did not have any injury in the affected eye.
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