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how is everything?   Message List  
Reply | Forward Message #75 of 1249 |
RE: [adie_syndrome] how is everything?

Hi all,
 
I have joined the group and have been watching the mails. I was interested in the number of people who highlight the fact that they get headaches. I do also - more and more. I also went back to the consultant who said that "headaches are not associated with Adies" then I was told that they were PROBABLY migraine. This isn't really good enough treatment ( in my opinion).
 
What has raised my attention is how many of us get headaches - perhaps someone should look to verify the throw away comment that there is no association !!!!
 
PS. Do any of you have joint problems?
 
Regards
 
Erin Sullivan (UK)
Sat Jul 20, 2002 4:55 pm

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erinsullivan...
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Forward 		Message #75 of 1249 |
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Hey all, It has been some time; just wanted to let you know that I had another visit to my neuro-opthomologist the other day, and everything check out fine. I... 		Sokenunese Myles
adzaa_nez26
Offline Send Email 		Jul 18, 2002
7:32 pm

Hi Nese, Those dilating drops are something, aren't they? Even with my regular sunglasses, I kept squinting for hours. No changes with me. I too had ...
sgerard029@...
sgerard029
Offline Send Email 		Jul 20, 2002
1:22 pm

Hi all, I have joined the group and have been watching the mails. I was interested in the number of people who highlight the fact that they get headaches. I do...
Erin Sullivan
erinsullivan...
Offline Send Email 		Jul 22, 2002
12:02 pm

... interested ... headaches. I do ... that ... were ... opinion). ... perhaps ... no ... Hi Erin et al, I originated in the UK, but now live in the US. I ...
sarasaunt2002
Offline Send Email 		Nov 16, 2002
12:34 pm

I too have joint pain, especially in my fingers. I am 34 yo however, I still contributed it to arthritis and saw my physician about it. All tests came back neg...
Renee N. Papadenis
reneelewellyn
Offline Send Email 		Nov 16, 2002
11:14 pm

MessageHello everyone, Thanks for all the responses to my questions about migraines and joint problems. I have just seen a rheumatologist about the pain! My...
Erin Sullivan
erinsullivan...
Offline Send Email 		Dec 3, 2002
1:19 pm

Erin, My Rheumatoid factor was also slightly elevated when I found out I had aquired Adies in both eyes. At first the Rhumatologist thought I had Lupus, but...
Serra Nicole
serranicole@...
Send Email 		Dec 3, 2002
7:55 pm

From my understanding from my neuro-opthomologist, Aide's affects the nerve tissues in the back of the eye as well. This same tissue area is also where...
Sokenunese Myles
adzaa_nez26
Offline Send Email 		Nov 17, 2002
5:54 pm

Erin, Here's a link. http://www.eyecare-information-service.org.uk/pages/information/disorders/adiespupil.htm It basically says that the syndrome itself does...
MStafford@...
pea007nut
Offline Send Email 		Jul 23, 2002
2:03 am

Hi Erin, From the time I was first pregnant (25 years ago) to maybe a year ago, I got incredible migraines and have always been told that the headaches and...
sgerard029@...
sgerard029
Offline Send Email 		Jul 25, 2002
3:49 am
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