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Reply | Forward Message #746 of 1249 |
Re: [adie_syndrome] New member with questions

Dear Derek,
As far as I know your symptoms neither have to progress nor to match others' symptoms. It seems that there is high individuality in the expression of the disorder and I would suspect the same goes for its aetiology.
I had a gynaecological operation last September and soon after I noticed a difficulty foccusing with my left eye. The book would have to be a certain distance from my eyes for both of them to focus at the same place and for me to read without a feeling of discomfort. However, there has been a progress of the disorder in the sense that my good eye started to dominate and soon the other one fell behind. As a result, my left adie eye has a far greated difficulty at focusing now and I can hardly read the screen of my mobile with it alone. I am aware that most of the work is done by the good eye at least for near vision. The problem is not so major for far vision and my sensitivity to sunlight which has always been there is more or less rectified with sunglasses.
Spectacles for reading help marginally and to this day I haven't found anything that can really make the problem vision go away. I hated the pilocarpine drops, so I stopped them pretty soon also being aware of how they can cause further damage to the eye when used long term.
Hope this has been helpful - don't despair for there are far worse things... this is a thought that helps me forget about it...
All the best
Sophia

djlatham2002 <djlatham2002@...> wrote:
Howdy all:

About a week ago my girlfriend looked at me and said, "Whoa!  What's
up with your eye?!?"  I quickly looked in a mirror to see what she
was talking about and noticed that my left pupil would not respond
to light stimulus.  Two days later I went to a walk-in clinic,
because I'd seen so many potentially scary causes linked
to "anisocoria" on the internet.  After a brief examination and a
few tests she called an ophthalmologist colleague of hers who said
it sounded like Adie's Tonic Pupil.  I'm supposed to follow up with
him soon.

Since then, I've done quite a bit of research, which has all seemed
to suggest that Adie's Sydrome is likely the cause of my tonic
pupil.  I have been all over the web researching the condition and
eventually I came across this website.  Reading through the posts
has given me a bunch of questions.  First, my pupil is about mid-
sized (not hugely dilated or constricted).  I have noticed some
sensitivity to sun-light, but nothing that sun glasses (which I
generally wear on bright days anyway) hasn't alleviated.  I have not
had headaches, blurry vision, trouble driving at night, etc. 
Basically, the only symptom I have is a pupil that does not respond
to changing ambient light (accomodation seems fine in close up
mirror testing).  Oh, and also, my knee reflex seems fine.  So my
primary concern is whether any of your experiences have involved a
progressive path to some of the other symptoms.  If all stays as it
is, my problem pupil will be little more than an annoyance on days I
forget to bring shades with me.  I guess in that scenario I would
consider myself lucky.  However, in reading some of the things that
many of you deal with daily, I must admit to quite a bit of
apprehension regarding the possibility that I may be headed for the
same kinds of problems.  Most websites I've seen have claimed that
the condition is "not progressive," but I want to hear what some of
you think about this claim.  Can anyone shed some light (pardon the
pun)?

Derek




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Thu Jul 8, 2004 6:16 pm

sophia_chatz...
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Message #746 of 1249 |
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Howdy all: About a week ago my girlfriend looked at me and said, "Whoa! What's up with your eye?!?" I quickly looked in a mirror to see what she was talking...
djlatham2002
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Jul 7, 2004
5:00 pm

Welcome Derek, I too am of the exact scenario as you, I too do not suffer from headaches, blurry vision, have no trouble nite driving and my reflexes are fine....
Colin Wynn
slimboywynn
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Jul 7, 2004
5:12 pm

Hey Colin: I'm 33. Interestingly, I have had a past eye injury (when I was 12) in my affected eye. Also, and I've seen a number of posts regarding this, I...
djlatham2002
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Jul 7, 2004
5:48 pm

To confirm ages... I'm 31 - Sophia djlatham2002 <djlatham2002@...> wrote:Hey Colin: I'm 33. Interestingly, I have had a past eye injury (when I was 12) ...
Sophia Chatzidimitriou
sophia_chatz...
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Jul 8, 2004
6:18 pm

Well Derek, I cant remember ever having an eye injury, and I cant remember when my Adies Pupil came about. My pupil size was pointed out to me by a potential...
Colin Wynn
slimboywynn
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Jul 7, 2004
6:06 pm

Dear Colin, My first thought when I got adie's pupil was that it was somehow linked to the general anaesthetic and the operative and post-operative shock of...
Sophia Chatzidimitriou
sophia_chatz...
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Jul 8, 2004
6:34 pm

Hi Sophia, I feel you may be right with the general anaesthetic side, I'd never even thought of that until I read Derek's message the other day, interesting...
Colin Wynn
slimboywynn
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Jul 8, 2004
6:40 pm

I've also been reading a lot about aspartame toxicity and how it has been shown to cause nerve damage. I've been a HUGE diet soda addict for a the last five...
djlatham2002
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Jul 8, 2004
8:50 pm

I haven't read anything about aspartame myself, but now that you mention it, I had been on a diet for about 6 months prior to my operation and was using...
Sophia Chatzidimitriou
sophia_chatz...
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Jul 9, 2004
7:44 am

Hi Sophia, I had problems with blurry vision in my Adies eye as well. It took almost a year and a half to get something that helped but I finally did. I now...
Naydene Mitchell
marnay.geo
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Jul 9, 2004
2:43 pm

Hi all and thanks to Naydene for the reply, Especially for people who suffer with blurry vision in the Adie's eye, I want to ask whether you noticed a sight...
Sophia Chatzidimitriou
sophia_chatz...
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Jul 13, 2004
2:20 pm

hi..ive had adies since aug of 02... two days after general anesthesia, and one month after the sudden death of my little brother..i'm 32 now..but im really...
Shelly Renee
shelly0130
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Sep 29, 2004
3:33 am

Mine came about after the sudden death of my Mother 3 years ago but I was not tested until this year. Trish Shelly Renee <shelly0130@...> wrote: hi..ive...
Trisha Marie
qcgirl63
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Sep 29, 2004
3:58 am

Dear Shelly, I am sorry to hear that you have lost your little brother. I too had general anaesthetic about a month before I noticed the first symptoms of...
Sophia Chatzidimitriou
sophia_chatz...
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Oct 4, 2004
12:11 pm

Here is one FYI http://www.321recipes.com/vision_damage.html...
MStafford
pea007nut
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Jul 9, 2004
4:46 pm

Dear Derek, As far as I know your symptoms neither have to progress nor to match others' symptoms. It seems that there is high individuality in the expression...
Sophia Chatzidimitriou
sophia_chatz...
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Jul 8, 2004
6:16 pm
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