Hi All,
My onset was also sudden. I had a head injury 5 years prior and my DR at
the time also ordered a CAT scan, I found out I am allergic to the dye used.
I also tried the pilocarpine drops. Really found the vision fluctuations
annoying and stopped the drops. Have never had any proplem with migrains.
How long have you been using the drops? I think I tried them for only 2
weeks at the most.
Margo
----- Original Message -----
From: Nese Myles <nese_myles@...>
To: martinaford <martinaford@...>
Cc: adie_syndrome <adie_syndrome@yahoogroups.com>
Sent: Thursday, May 16, 2002 11:50 AM
Subject: [adie_syndrome] Re: adie's pupil


> Martina,
>
> When I was first diagnosed with Aide's Syndrome (pupil), my
> symptoms were also a sudden onset of sensitivity to bright
> light, migraines, reflex problems in my ankles, and strange
> sweating patterns. I didn't realize that all these symptoms
> were related to Aide's until I started doing research. My
> neuro opthomologist, as much of a great guy he is, didn't
> give me much information to follow up on, so I took it upon
> myself to find out about this rare nuerological disease.
>
> When I was first diagnosed, my eyes were constantly
> bothering me, now I just tolerate the pain. I take
> Pilocarpine eyedrops to retract my pupils, but lately it
> seems that my left pupil is getting bigger. I also take
> migraine medication, and this doesn't work well either. I
> am to take another MRI & MRA scans to rule out that 1% that
> I have a brain tumor; nice huh?
>
> Anyways, in my research, this disease happens to women in
> their mid-twenties early thirties. I am 26 years old. I
> also checked with my family, and no one in my family, from
> mom and dad's sides that anyone has had this happen to
> them.
>
> If you have any other questions, read the archives. I
> haven't done much research lately. But one thing I would be
> interested in finding out is the statistics of this
> disease, and how rare it is.
>
> -Nese
>
> --- martinaford <martinaford@...> wrote:
> > Hi
> >
> > I just read your posting on the yahoo bulletin. While
> > brushing my
> > teeth this a.m., I noticed my left pupil was dialated and
> > non-reactive. The eye Dr diagnosed me with Adie's pupil.
> >
> > I was curious if your symptoms were sudden - and if
> > things have
> > improved since there onset. My eye constantly bothers me,
> > yet I'm able
> > to see fine. The dilatation has lessened since I noticed
> > the problem.
> > I'm just trying to get an idea how long this may be going
> > on. ....
> > Have you recovered since the onset? Any new symptoms? ...
> > also - are
> > you in your 30's? Most of the women seem to be around
> > that age with
> > the disease onset.
> >
> > Martina
> >
> >
>
>
> =====
>
>
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