Martina,

When I was first diagnosed with Aide's Syndrome (pupil), my
symptoms were also a sudden onset of sensitivity to bright
light, migraines, reflex problems in my ankles, and strange
sweating patterns. I didn't realize that all these symptoms
were related to Aide's until I started doing research. My
neuro opthomologist, as much of a great guy he is, didn't
give me much information to follow up on, so I took it upon
myself to find out about this rare nuerological disease.

When I was first diagnosed, my eyes were constantly
bothering me, now I just tolerate the pain. I take
Pilocarpine eyedrops to retract my pupils, but lately it
seems that my left pupil is getting bigger. I also take
migraine medication, and this doesn't work well either. I
am to take another MRI & MRA scans to rule out that 1% that
I have a brain tumor; nice huh?

Anyways, in my research, this disease happens to women in
their mid-twenties early thirties. I am 26 years old. I
also checked with my family, and no one in my family, from
mom and dad's sides that anyone has had this happen to
them.

If you have any other questions, read the archives. I
haven't done much research lately. But one thing I would be
interested in finding out is the statistics of this
disease, and how rare it is.

-Nese

--- martinaford <martinaford@...> wrote:
> Hi
>
> I just read your posting on the yahoo bulletin. While
> brushing my
> teeth this a.m., I noticed my left pupil was dialated and
> non-reactive. The eye Dr diagnosed me with Adie's pupil.
>
> I was curious if your symptoms were sudden - and if
> things have
> improved since there onset. My eye constantly bothers me,
> yet I'm able
> to see fine. The dilatation has lessened since I noticed
> the problem.
> I'm just trying to get an idea how long this may be going
> on. ....
> Have you recovered since the onset? Any new symptoms? ...
> also - are
> you in your 30's? Most of the women seem to be around
> that age with
> the disease onset.
>
> Martina
>
>


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