Search the web
Sign In
New User? Sign Up
adie_syndrome · Support Group
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Show off your group to the world. Share a photo of your group with us.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Re: (unknown)   Message List  
Reply | Forward Message #45 of 1249 |
Hi,
Welcome to the group. Things are sure lively now!
Since no one is sure what causes Adie's, we can't rule out the shingles
theory.
However, since shingles is fairly common, you would think more people would
be turning up with Adie's.
I had chicken pox when young, never shingles. I'm one of those healthy
as a horse type people EXCEPT for a couple of exceptional things that have
happened to me.
I have two children who are RH positive. Big deal u say. However I'm RH
negative. Even though I received Rhogam shots to prevent RH Disease, my
second child was attacked by my super immune system that already produced
anitbodies regardless of the shots I received.Everything turned out OK after
11 amniocentesis tests, one in utero transfusion, and one post delivery
transfusion.
In 1987, we survived a car accident, I had closed head trama and can't
remenber most of it. Then in 1992, I woke up, looked in the mirror and
ta-dah one pupil was larger than the other. They do not think the accident
was a cause due to the time gap.
Margo
----- Original Message -----
From: sgerard029 <sgerard029@...>
To: <adie_syndrome@yahoogroups.com>
Sent: Monday, April 08, 2002 12:06 AM
Subject: [adie_syndrome] (unknown)


> Hi to all!
>
> I was diagnosed with Adie's pupil about 10 or so years ago. I'm a 45
> year old female from Woburn, MA and to be truthful, I never thought
> much about it until I read some e-mails on this site. I always
> thought it was amusing that whenever I went for an eye appointment,
> everyone wanted to check me out. I went for my regular eye
> appointment the other day and only because they sent in so many
> people in to look at my pupil's did I think I should see what I could
> find out about this. I was originally told that I must have had a
> virus at some point (they believe when I was in my late 20's, early
> 30's) that caused me to have Adie's Syndrome, but don't worry about
> it, it really wasn't anything. I read with interest the "sweating
> patterns" that some of you have - I have been sweating profusely for
> quite awhile and always attributed it to hot flashes (I've been
> diagnosed with early menopausal symptoms)! When my reflexes have
> been tested, my knee on the right side doesn't react as well as to
> the left side. Again, I didn't think much about it because the
> doctor's weren't concerned. Now I find I'm in this elite group!
>
> My eyesight is awful - I've just been told that I need trifocals,
> which I'm not too thrilled about. It was bad enough that I couldn't
> read without bifocals or see beyond 1 foot without glasses, but now
> I've been having terrible problems working on the computer and
> evidently that is a different level of seeing. I have suffered from
> migraines for years - which I have been told wasnt' associated with
> Adie's pupil, but after reading some of your e-mails, I think is
> definetly related. I would appreciate any information you can share
> or direct me to. I can be reached at sgerard029@.... Thanks!!!
>
>
>
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>
>




Tue Apr 9, 2002 10:54 pm

pea007nut
Offline Offline
Send Email Send Email

Forward
Message #45 of 1249 |
Expand Messages Author Sort by Date

Hi, Welcome to the group. Things are sure lively now! Since no one is sure what causes Adie's, we can't rule out the shingles theory. However, since shingles...
MStafford@...
pea007nut
Offline Send Email
Apr 9, 2002
10:52 pm

Dear Margo: Wow! You sure have had enough trouble! How are your children now? As I said, I was actually diagnosed approximately 13 years ago, however, the ...
sgerard029@...
sgerard029
Offline Send Email
Apr 10, 2002
12:54 pm

Hi Stephanie, The children are or will be 18 and 16 this June/July. RH Disease treatment was changed a few years later. I can't say I have any white dots...
MStafford@...
pea007nut
Offline Send Email
Apr 11, 2002
2:32 pm

Margo, I'm curious on how RH Disease could be connected to Aide's Syndrome? What have you discovered in your research? -nese ===== ...
Nese Myles
nese_myles
Offline Send Email
Apr 19, 2002
3:32 pm

I was commenting about what a healthy person I was, and then started to attract conditions or syndroms that no one is sure how to treat. However, I have read...
MStafford@...
pea007nut
Offline Send Email
Apr 19, 2002
10:27 pm

Nese, Hi Stephanie, The children are or will be 18 and 16 this June/July. RH Disease treatment was changed a few years later. I can't say I have any white...
MStafford@...
pea007nut
Offline Send Email
Apr 19, 2002
10:57 pm

http://groups.yahoo.com/group/Lyme-Aid-Documents/message/1341 Hi all, Here's that link about Adie's and Lyme. Never Know. Seems like our numbers are increasing...
MStafford@...
pea007nut
Offline Send Email
May 19, 2002
3:02 pm

Unfortunately, no one really knows. For myself, my eyesight has gotten worse as the years go on - but this could also be do to aging (I'm 45). Good luck! ...
sgerard029@...
sgerard029
Offline Send Email
May 21, 2002
6:03 pm

Renee, I've read the first article. Which confirms my view that if you don't know much about something, how can you day there's nothing to worry about (long...
MStafford@...
pea007nut
Offline Send Email
Feb 19, 2003
1:23 pm

Hi I was the same when I first got Adie's - with the pains and the vision. I've had it for about 5 months now and the pains have gone but every now and then...
Samantha Chung
samanthac732003
Offline Send Email
Jun 13, 2003
1:24 am

Hi there I have always had sinus problems, I'm wondering how many others in the group have also had them? Samantha ... Send mobile Christmas cards, download a...
Samantha Chung
samanthac732003
Offline Send Email
Dec 29, 2003
2:26 am

i was reading a reflexology book yesterday that explained that the sinuses are spongey in texture to keep the head light so not to put pressure on the spine....
lucy gleeson
lucygleeson1uk
Offline Send Email
Dec 30, 2003
1:38 pm

Hi I have the neck tension thing as well. Could be a result of having the thought of adies on your mind. Who knows?? ... Protect your inbox from harmful...
Samantha Chung
samanthac732003
Offline Send Email
Jan 22, 2004
3:11 am

Hi I havn't seen it but I've had Adies for about two years and I've noticed over the last couple of months that my pupil has halved is size and its not aching...
Samantha Chung
samanthac732003
Offline Send Email
Feb 5, 2004
5:02 am

I wish this consultant were right. I've had Aides for over 15 years, and I'm now 49 years old. I do think it may be a little bit better now, but I think it's...
John Reiter
johnreiter2001
Offline Send Email
Feb 6, 2004
5:30 am

I wish it were true too. I'm 50 and was just diagnosed last year. It does seem to have improved slightly, but maybe that's just wishful thinking. As John...
margr@...
margr101
Offline Send Email
Feb 6, 2004
5:23 pm

In a message dated 5/6/2007 9:24:16 A.M. Pacific Daylight Time, qcgirl63@... writes: You may have to wear your sunglasses in the house too. I wear mine...
SugarPlumGinger6@...
sugarplumz6
Offline Send Email
May 6, 2007
4:49 pm

They actually sing that song to me all the time at work because I always wear my shades. Trish ... ...
Trish
qcgirl63
Offline Send Email
May 7, 2007
4:02 pm

In a message dated 5/7/2007 9:02:46 A.M. Pacific Daylight Time, qcgirl63@... writes: They actually sing that song to me all the time at work because I...
SugarPlumGinger6@...
sugarplumz6
Offline Send Email
May 7, 2007
4:22 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help