Hi lucy
I have just got back from seeing a eye doctor, it was a long journey
it is was 200 miles round journey, it was very stressfull.
The doctor does not know why i am in so much pain, he hasn't seen
others with this sort of on going pain before he see about 12 people
a year with aidies pupil.
Is your pain in your eye and forehead and cheek, and do you get it
all the time and how long have you had aidies pupil.
I feel very alone with this, i think now the pupil is the least of my
worry's i just getting so down because of the constant pain and not
noing why i am getting them and if i am going to have them for ever.
Michaela
hello... i've had adies for about 8 months and was really scared at first. was scared that people would think i'm freaky! but, got my head round it and got...
... I have had aides pupil now for five months and i worry what people will think of me because it does look odd, and i never see any other person with, it...
Hi All Has anyone got any suggestions, on glasses or contact lences, i have sunglasses to wear outside and my normal glasses to wear inside but if i am inside...
hi there... i know how you feel as i have pain and blurry vision and often think people are staring at me. strangely enough, i met someone last night who...
Hi lucy I have just got back from seeing a eye doctor, it was a long journey it is was 200 miles round journey, it was very stressfull. The doctor does not...
hi michaela, i'm sorry to hear of your pain. yes, i have pain in my cheek but its more of a feeling of numbness and sometimes throbbing. my doctors also are...
Lucy, The pain and numbness that you describe is generally associated with damage to the knerves in the face , this can be as a result of a damaged cheekbone...
Bob, I think it's interesting that you should mention damage to the cheekbone. About 30 years ago I hit my face on the steering wheel really hard during an...
Hi Lucy You say that you are having a MRI, haven't you had any scans before now, sorry that your feeling down today, i know how you feel its not nice that this...
Hi Michaela, I wear photo sensitive lenses indoors at all times now. These are also called "Reactions" and react to the volume of light so in a bright place ...
Thankyou Patrick for your reply I will see about the lences that you have, are they nomal react to the light lences or a special type of lence. Have you or...
Hi Michaela, They are pretty standard lenses, I actually got them before I was diagnoised with Adies but now I wear them all the time instead of occassionally...
Hi Micheala I've had Adies's since about 1972. First of all it was one eye, pupil very dilated. Over about five years this gradually reduced in size, but still...
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