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Reply | Forward Message #455 of 1249 |
Re: [adie_syndrome] Re: positive!

hi there... i know how you feel as i have pain and blurry vision and often think people are staring at me. strangely enough, i met someone last night who seemed to have the same thing but i didn' want to ask her incase she didn't like talking about it. i wear just coloured contacts as my eyes are light grey and so very obvious. yes, i do feel the pupil will constrict in time and i dont think doctors really know what they're talking about half the time! seeing a healer is helping me to keep calm about it and think positive which is the best way forward i think. good luck.x

michaela_rees <michaela_rees@...> wrote:
--- Dear Lucy
I have had aides pupil now for five months and i worry what people
will think of me because it does look odd, and i never see any other
person with, it feels so strange you feel like your the only one.
my bad bad pupil is much larger than the normal one and very blurry,
i have eye pain and headaches much of the time which gets me down
alot, i can't cope with the sunny days, i have to wear sunglasses and
a cap all the time when i go out, it doesn't seem to be easing at the
momment, i hope that it will ease in time.
Do you think the pupil will get smaller in time or does it stay the
same and has the symptoms regarding pain and blurryness ease at all
in time.
what contact lences do you have, i have to have a presciption lences.
Michaela




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Lucy G xx


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Tue Jul 1, 2003 12:50 pm

lucygleeson1uk
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Message #455 of 1249 |
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hello... i've had adies for about 8 months and was really scared at first. was scared that people would think i'm freaky! but, got my head round it and got...
lucygleeson1uk
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Jun 27, 2003
6:45 pm

... I have had aides pupil now for five months and i worry what people will think of me because it does look odd, and i never see any other person with, it...
michaela_rees
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Jun 28, 2003
2:47 pm

Hi All Has anyone got any suggestions, on glasses or contact lences, i have sunglasses to wear outside and my normal glasses to wear inside but if i am inside...
michaela_rees
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Jun 29, 2003
10:44 am

hi there... i know how you feel as i have pain and blurry vision and often think people are staring at me. strangely enough, i met someone last night who...
lucy gleeson
lucygleeson1uk
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Jul 3, 2003
8:04 pm

Hi lucy I have just got back from seeing a eye doctor, it was a long journey it is was 200 miles round journey, it was very stressfull. The doctor does not...
michaela_rees
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Jul 3, 2003
8:27 pm

hi michaela, i'm sorry to hear of your pain. yes, i have pain in my cheek but its more of a feeling of numbness and sometimes throbbing. my doctors also are...
lucy gleeson
lucygleeson1uk
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Jul 6, 2003
1:49 pm

Lucy, The pain and numbness that you describe is generally associated with damage to the knerves in the face , this can be as a result of a damaged cheekbone...
Robert Batey
bobbikesanda...
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Jul 7, 2003
10:28 am

Bob, I think it's interesting that you should mention damage to the cheekbone. About 30 years ago I hit my face on the steering wheel really hard during an...
Rebecca Borchardt
becca_b55352
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Jul 11, 2003
2:46 pm

Hi Lucy You say that you are having a MRI, haven't you had any scans before now, sorry that your feeling down today, i know how you feel its not nice that this...
michaela_rees
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Jul 7, 2003
12:35 pm

Hi Michaela, I wear photo sensitive lenses indoors at all times now. These are also called "Reactions" and react to the volume of light so in a bright place ...
Patrick McSweeney
packers_ie
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Jun 29, 2003
7:06 pm

Thankyou Patrick for your reply I will see about the lences that you have, are they nomal react to the light lences or a special type of lence. Have you or...
michaela_rees
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Jun 30, 2003
3:35 pm

Hi Michaela, They are pretty standard lenses, I actually got them before I was diagnoised with Adies but now I wear them all the time instead of occassionally...
Patrick McSweeney
packers_ie
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Jun 30, 2003
5:48 pm

Hi Micheala I've had Adies's since about 1972. First of all it was one eye, pupil very dilated. Over about five years this gradually reduced in size, but still...
John
stafforddad
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Jun 30, 2003
8:27 pm
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