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Hi Margo, Hi all,
so I transplantate my cornea 10 days ago. I think, the first case of cornea transplant in a eye with Adie Syndrome on the net. The doctor was Alessandro Galan and he made it in Padua (near Venice - Italy -). He told me about risks in my case of transplant but fortunately it was great without any problem. My transplant is perfectly succeeded. Now I still some drops in my eye and my eyesight is not good, but the doctor said it is normal. They need until one year to enprove a good eyesight; in some cases until 5/10 in other better too. After this transplant I will be able to use successfully glasses too. I will have a rejection risk in the next two years; I know that, but I'm optimist! :))
My husband says that from the transplant's day my "tonic pupil" is not more "tonic". Incredible! I told that to my doctor and he smiled. He said, laughing, that he will made a reserch about it and maibe he will be famous for finding a solution for Adie's Sindrome. Naturally it is to early to talk about it, and my eye is yust transplanteted. Cornea have no link with pupil and Adie, but who knows...
Hi all Roberta
-----Messaggio Originale-----Da: MStafford@...Data invio: domenica 21 ottobre 2001 11.28Oggetto: Re: [adie_syndrome] informationRoberta,I hope your recovery is going well. Hi Francesco.Margo----- Original Message -----From: Roberta FavarinSent: Tuesday, October 16, 2001 5:29 AMSubject: R: [adie_syndrome] informationHi Nicky,I'm Francesco from Italy, I'm Roberta's husband, a girl of the Adie's group. Yesterday Roberta had cornea-transplant on her eye with Adie Syndrome, infact she had Cheratoconus on the same eye. A very lucky girls :-( . An other disease wich requests cornea-transplant. About your problem I'm sorry for don't be able to help you so much.Roberta suffer of Adie from about 20 years (she is 32) but she has no headaches or other heavy problems.I have to tell you that her eyesight is 1 on 10 (on eye with Adie and Cheratoconus) and 3 on 10 (on the other eye without Adie but with Cheratoconus). And glasses have no utility for her.I think she doesn't know what mean see with 10/10, so, I think, she get accustomed to poor eyesight and she never moan about it.I hope the others can help you a little more.Bye Francesco-----Messaggio Originale-----Da: Nicky TraillData invio: mercoledì 10 ottobre 2001 7.18Oggetto: [adie_syndrome] informationHello allI am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any information on cause and, if any, information on how to help me improve my eyesight and consequent headaches. My opthamologist told me the problem will last for at least 12 months is this correct. I have been using a dilute solution of Pilocarpine, but often the drops are sometimes very painful and often worse than the disease! ! !I have tried the addresses offered by your group, with very little success and would therefore appreciate any helpThankyou Fuzzy
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