I'm Francesco from Italy, I'm Roberta's husband, a girl of the Adie's group. Yesterday Roberta had cornea-transplant on her eye with Adie Syndrome, infact she had Cheratoconus on the same eye. A very lucky girls :-( . An other disease wich requests cornea-transplant. About your problem I'm sorry for don't be able to help you so much.
Roberta suffer of Adie from about 20 years (she is 32) but she has no headaches or other heavy problems.
I have to tell you that her eyesight is 1 on 10 (on eye with Adie and Cheratoconus) and 3 on 10 (on the other eye without Adie but with Cheratoconus). And glasses have no utility for her.
I think she doesn't know what mean see with 10/10, so, I think, she get accustomed to poor eyesight and she never moan about it.
I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any information on cause and, if any, information on how to help me improve my eyesight and consequent headaches. My opthamologist told me the problem will last for at least 12 months is this correct. I have been using a dilute solution of Pilocarpine, but often the drops are sometimes very painful and often worse than the disease! ! !
I have tried the addresses offered by your group, with very little success and would therefore appreciate any help
Hello all I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any...
Nicky Traill
ntraill@...
Oct 10, 2001 5:14 am
Hi Nicky, I've had Adie's since 1992. I also tried the pilocarpine drops. It was nice having your vision improve, even if it was for a short time. That was...
Hi to all Does anyone find it unbearable going into shops or places with spot lights and halogen lights, almost everywhere has them now they are the worse for...
Michaela I so understand your *pain* with shops and the such. In an office environment - with the flourescent lighting is the worst for me, along with...
hi michaela, really sorry to hear that, you may have already tried it but if not alternative therapies may well help with the pain - they are also very...
Hi Thanks for your emails Im not coping with this very well,do you think the pain can still ease after four years or unlikly to now ?, i couldn't bare to think...
I don't think the Meds brought on the Adie's. It was probably already there thats why you had back pain & headaches which is brought on by the light. My neck...
Hi Michaela, Ever tried pilocarpine eye-drops? The normal solution of 1 or 2% is much too strong and is really for another purpose ("glaucoom" in dutch), but...
... them that ... summers ... when I ... to ... in ... coming ... this... ... spot ... are the ... and ... improved but trying to avoid the lights, which is...
Hi I have tried pilicarpine at 1% to 10 saline and that was to strong, i will ask my doctor if i could try a weaker solution, i don't see a eye doctor anymore...
Hi, although Adies' could have some origin in auto-immune diseases according to researchers, everybody has different circumstances and symptoms, with some...
Hi Peiter Could you send me the solution ingredients, i could ask my doctor if he could give me a prescription to try it, thankyou. I understand what you say,...
Hi Michaela, my eyedrops bottle says: -SOL BENZALK ET AC BOR 60 ML (that's only solution fluids and can differ) -PILOCARPINI HYDROCHLORIDUM 37.5 MG ...
Hi Pieter Thankyou for info, i will see my doctor, it will be next Friday now before i can see him, so i will ask him for a prescription for the same dose that...
Roberta, I hope your recovery is going well. Hi Francesco. Margo ... From: Roberta Favarin To: adie_syndrome@yahoogroups.com Sent: Tuesday, October 16, 2001...
... been unable to find much information about it on the net and would appreciate any information on cause and, if any, information on how to help me improve...
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