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Hi Nicky,
I'm Francesco from Italy, I'm Roberta's husband, a girl of the Adie's group. Yesterday Roberta had cornea-transplant on her eye with Adie Syndrome, infact she had Cheratoconus on the same eye. A very lucky girls :-( . An other disease wich requests cornea-transplant. About your problem I'm sorry for don't be able to help you so much.
Roberta suffer of Adie from about 20 years (she is 32) but she has no headaches or other heavy problems.
I have to tell you that her eyesight is 1 on 10 (on eye with Adie and Cheratoconus) and 3 on 10 (on the other eye without Adie but with Cheratoconus). And glasses have no utility for her.
I think she doesn't know what mean see with 10/10, so, I think, she get accustomed to poor eyesight and she never moan about it.
I hope the others can help you a little more.
Bye Francesco
-----Messaggio Originale-----Da: Nicky TraillData invio: mercoledì 10 ottobre 2001 7.18Oggetto: [adie_syndrome] informationHello allI am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any information on cause and, if any, information on how to help me improve my eyesight and consequent headaches. My opthamologist told me the problem will last for at least 12 months is this correct. I have been using a dilute solution of Pilocarpine, but often the drops are sometimes very painful and often worse than the disease! ! !I have tried the addresses offered by your group, with very little success and would therefore appreciate any helpThankyou Fuzzy
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