Yes, what we have is considered rare. This means that they can't tell
you what to expect or why it is happening.
I am 47, female, diagnosted in 1992. My left pupil is dilated, absent
left knee reflex.
Articles I've read on internet have mentioned the possibility of
symptons being progressive, or precurser to other conditions.
I had some links but my computer crashed and they were lost, but I'm
back up now and will start over.
My eyesite seems to be a little more stable than yours at the moment.
I tried pilocarpine drops but found the constant vision change hard
to cope with. Bifocals and yearly changes in eyeglass lenses has been
the norm, knock on wood.
I've got to get started on Easter dinner.
Have a good Holliday!!!