Hi,

although Adies' could have some origin in auto-immune diseases
according to researchers, everybody has different circumstances and
symptoms, with some obvious sypmtoms in common that point to Adies'...
but that makes Adies's a syndrome rather than a disease...but my
common sense and the advice several experts gave me, make me believe
that statistically seen, all other symptoms and aches are just as
common as in every other random person... for your own benefit and
state of mind it is best to cope with the Adies' symptoms and see
other things just as common things amongst a lot of people. Although
nothing is for sure with Adies', most research points to the fact that
it isn't life threatening or disabling, although it can severely
bother you of course...
But take your eyes for granted as they are and just live your life to
the max, by worrying and feeling sorry for your self, life doesn't get
easier or more fun and thereby only gets shorter!

I would definitely try these pilocarpine solutions I described
earlier, because it helped me to get rid of the worst symptoms and
pains in my affected eye and that's just the area that is common for
sure in all of us people... and I heard several good stories from
other affected people who use it.
My advice is to make a new appointment with you opthalmologist, you
can always ask for that, and discuss the pilocarpine thing. After that
you can discuss the drops with your local pharmacist. I can give you
the exact recipe, with all the other fluids in it, of my eye drops...
for both solutions...
So give it a try, and let me know if I should provide you with more
info...It helped me and made me from a weak moaring patient to a
regular individual, just doing his job and everything a "normal"
person does everyday...going out and have fun.
Wish you all a jolly good Christmis!
Pieter

--- In adie_syndrome@yahoogroups.com, "michaela_rees"
<michaela_rees@...> wrote:
>
> Hi
> I have tried pilicarpine at 1% to 10 saline and that was to strong, i
> will ask my doctor if i could try a weaker solution, i don't see a eye
> doctor anymore they couldn't do anything for me.
> I do have pain in my back i have had back pain for years ,but never
> suffered from headaches at all untill i got Adies, so how could it of
> always have been there, and what does bachache have to do with Adeis a
> dilated pupil, there is billions with back problems, but Adies is so
> rear, if Adies has anything to do with back problems or neck problems,
> there would be more of us, its probably autoimune or a viris or a
> chemical reaction to our bodies.
> Has anyone been offered Gabapentine, don't know if i spelt this right,
> its for fits, its surpose to help nerve pain, i haven't tried it, im
> just afraid i get horrible sideffects and get more problems with my
> health, i can't see it helping me, because its only when the light
> hits my eyes the pain hits, its not going to stop the light entering
> my eye, when i go in the dark the pain leaves, so i can't see how that
> will help.
> Michaela
>