Search the web
Sign In
New User? Sign Up
adie_syndrome · Support Group
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Show off your group to the world. Share a photo of your group with us.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
information   Message List  
Reply | Forward Message #1185 of 1249 |
Re: Lights

Hi
I have tried pilicarpine at 1% to 10 saline and that was to strong, i
will ask my doctor if i could try a weaker solution, i don't see a eye
doctor anymore they couldn't do anything for me.
I do have pain in my back i have had back pain for years ,but never
suffered from headaches at all untill i got Adies, so how could it of
always have been there, and what does bachache have to do with Adeis a
dilated pupil, there is billions with back problems, but Adies is so
rear, if Adies has anything to do with back problems or neck problems,
there would be more of us, its probably autoimune or a viris or a
chemical reaction to our bodies.
Has anyone been offered Gabapentine, don't know if i spelt this right,
its for fits, its surpose to help nerve pain, i haven't tried it, im
just afraid i get horrible sideffects and get more problems with my
health, i can't see it helping me, because its only when the light
hits my eyes the pain hits, its not going to stop the light entering
my eye, when i go in the dark the pain leaves, so i can't see how that
will help.
Michaela




Thu Dec 14, 2006 8:41 am

michaela_rees
Offline Offline
Send Email Send Email

Forward
Message #1185 of 1249 |
Expand Messages Author Sort by Date

Hello all I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any...
Nicky Traill
ntraill@...
Send Email
Oct 10, 2001
5:14 am

Hi Nicky, I've had Adie's since 1992. I also tried the pilocarpine drops. It was nice having your vision improve, even if it was for a short time. That was...
MStafford@...
pea007nut
Offline Send Email
Oct 21, 2001
9:25 pm

Hi to all Does anyone find it unbearable going into shops or places with spot lights and halogen lights, almost everywhere has them now they are the worse for...
michaela_rees
Offline Send Email
Dec 11, 2006
6:06 pm

Michaela I so understand your *pain* with shops and the such. In an office environment - with the flourescent lighting is the worst for me, along with...
ozzymommy1962
Offline Send Email
Dec 11, 2006
7:23 pm

hi michaela, really sorry to hear that, you may have already tried it but if not alternative therapies may well help with the pain - they are also very...
lucy gleeson
lucygleeson1uk
Offline Send Email
Dec 12, 2006
8:39 am

Hi Thanks for your emails Im not coping with this very well,do you think the pain can still ease after four years or unlikly to now ?, i couldn't bare to think...
michaela_rees
Offline Send Email
Dec 12, 2006
5:56 pm

I don't think the Meds brought on the Adie's. It was probably already there thats why you had back pain & headaches which is brought on by the light. My neck...
Trish
qcgirl63
Offline Send Email
Dec 12, 2006
11:11 pm

Hi Michaela, Ever tried pilocarpine eye-drops? The normal solution of 1 or 2% is much too strong and is really for another purpose ("glaucoom" in dutch), but...
pieterb12
Offline Send Email
Dec 13, 2006
8:53 am

... them that ... summers ... when I ... to ... in ... coming ... this... ... spot ... are the ... and ... improved but trying to avoid the lights, which is...
michaela_rees
Offline Send Email
Dec 14, 2006
8:29 am

Hi I have tried pilicarpine at 1% to 10 saline and that was to strong, i will ask my doctor if i could try a weaker solution, i don't see a eye doctor anymore...
michaela_rees
Offline Send Email
Dec 14, 2006
8:47 am

Hi, although Adies' could have some origin in auto-immune diseases according to researchers, everybody has different circumstances and symptoms, with some...
pieterb12
Offline Send Email
Dec 14, 2006
9:57 am

Hi Peiter Could you send me the solution ingredients, i could ask my doctor if he could give me a prescription to try it, thankyou. I understand what you say,...
michaela_rees
Offline Send Email
Dec 15, 2006
2:36 pm

Hi Michaela, my eyedrops bottle says: -SOL BENZALK ET AC BOR 60 ML (that's only solution fluids and can differ) -PILOCARPINI HYDROCHLORIDUM 37.5 MG ...
pieterb12
Offline Send Email
Dec 15, 2006
3:04 pm

just for sure: 1/16th = 0.0625% 1/8th = 0.1250% ... said i...
pieterb12
Offline Send Email
Dec 15, 2006
3:13 pm

Hi Pieter Thankyou for info, i will see my doctor, it will be next Friday now before i can see him, so i will ask him for a prescription for the same dose that...
michaela_rees
Offline Send Email
Dec 15, 2006
5:26 pm

Roberta, I hope your recovery is going well. Hi Francesco. Margo ... From: Roberta Favarin To: adie_syndrome@yahoogroups.com Sent: Tuesday, October 16, 2001...
MStafford@...
pea007nut
Offline Send Email
Oct 21, 2001
9:29 pm

... been unable to find much information about it on the net and would appreciate any information on cause and, if any, information on how to help me improve...
bobbikesandantiques
bobbikesanda...
Offline Send Email
Jun 30, 2003
1:10 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help