> > over four years now and there is nothing that i can take for
them that
> > helps,--- In adie_syndrome@yahoogroups.com, "pieterb12"
<pieterb12@...> wrote:
>
> Hi Michaela,
>
> Ever tried pilocarpine eye-drops?
> The normal solution of 1 or 2% is much too strong and is really for
> another purpose ("glaucoom" in dutch), but thru the years my
> opthalmologist and I tried lighter ones, so nowadays I use 1/16%
> pilocarpine. (once I tried 1/8% but it was still too strong)
> I also have pains and stings in my affected eye, especially in
summers
> and also in bright artificial light(also computer-screens), but
when I
> administer the drops a few times a day, my pupil constricts and I
> don't have to bother for a few hours and my pains are completely
> reliefed!(and they were severe...).
> My opthalmologist and pharmacist ensured me that it isn'y harmfull
to
> use the drops on a daily basis... Since the industry standard of
> pilocarpine is higher, my pharmacist had to look it up and make the
> drops himself, but nowadays I get new ones every month and keep em
in
> the fridge.
> Besides good sunglasses for outdoors, when your pain is really
coming
> from excess of light in your eyes, you really should consider
this...
> Good luck!
> Best regards Pieter (Netherlands)
>
> --- In adie_syndrome@yahoogroups.com, "michaela_rees"
> <michaela_rees@> wrote:
> >
> > Hi to all
> > Does anyone find it unbearable going into shops or places with
spot
> > lights and halogen lights, almost everywhere has them now they
are the
> > worse for me instant headaches, muscle tension and dissiness,
and
> > thats with my sunglasses on and cap, my headaches have not
improved
but trying to avoid the lights, which is impossible unless i
> > stay home all day long with lights really low, its a nightmare
and i
> > don't why i have it this bad, the eye doctor said i have it to
the
> > exstreem, and he has not seen anyone with this amount of
sensitivity
> > to light as me, don't understand why it effects me so bad, i
can't
> > work because of it, and i want to work and do so much, but i
can't,
> > because i get really ill from it.
> > Its a shame there is know help for us out there, they say its
not life
> > threatening, but to me it feel like it is, my life is crap and
im in
> > constant pain.
> > Sorry if it a bit depressing.
> > Michaela
> >
>