Hi Michaela,

Ever tried pilocarpine eye-drops?
The normal solution of 1 or 2% is much too strong and is really for
another purpose ("glaucoom" in dutch), but thru the years my
opthalmologist and I tried lighter ones, so nowadays I use 1/16%
pilocarpine. (once I tried 1/8% but it was still too strong)
I also have pains and stings in my affected eye, especially in summers
and also in bright artificial light(also computer-screens), but when I
administer the drops a few times a day, my pupil constricts and I
don't have to bother for a few hours and my pains are completely
reliefed!(and they were severe...).
My opthalmologist and pharmacist ensured me that it isn'y harmfull to
use the drops on a daily basis... Since the industry standard of
pilocarpine is higher, my pharmacist had to look it up and make the
drops himself, but nowadays I get new ones every month and keep em in
the fridge.
Besides good sunglasses for outdoors, when your pain is really coming
from excess of light in your eyes, you really should consider this...
Good luck!
Best regards Pieter (Netherlands)

--- In adie_syndrome@yahoogroups.com, "michaela_rees"
<michaela_rees@...> wrote:
>
> Hi to all
> Does anyone find it unbearable going into shops or places with spot
> lights and halogen lights, almost everywhere has them now they are the
> worse for me instant headaches, muscle tension and dissiness, and
> thats with my sunglasses on and cap, my headaches have not improved
> over four years now and there is nothing that i can take for them that
> helps, but trying to avoid the lights, which is impossible unless i
> stay home all day long with lights really low, its a nightmare and i
> don't why i have it this bad, the eye doctor said i have it to the
> exstreem, and he has not seen anyone with this amount of sensitivity
> to light as me, don't understand why it effects me so bad, i can't
> work because of it, and i want to work and do so much, but i can't,
> because i get really ill from it.
> Its a shame there is know help for us out there, they say its not life
> threatening, but to me it feel like it is, my life is crap and im in
> constant pain.
> Sorry if it a bit depressing.
> Michaela
>