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Reply | Forward Message #1175 of 1249 |
Re: [adie_syndrome] Lights

hi michaela,
really sorry to hear that,
you may have already tried it but if not alternative
therapies may well help with the pain - they are also
very relaxing.
as i said i had some phytobiophysics treatment and
although it was fairly expensive to have a few
treatments, it was well worth it as i found out alot
more about why my body was doing odd things than when
i went to the eye hospital!
take care & happy christmas!
lucy
x

if you look up www.phytob.com - you'll find out more
about it.

--- michaela_rees <michaela_rees@...> wrote:

> Hi to all
> Does anyone find it unbearable going into shops or
> places with spot
> lights and halogen lights, almost everywhere has
> them now they are the
> worse for me instant headaches, muscle tension and
> dissiness, and
> thats with my sunglasses on and cap, my headaches
> have not improved
> over four years now and there is nothing that i can
> take for them that
> helps, but trying to avoid the lights, which is
> impossible unless i
> stay home all day long with lights really low, its a
> nightmare and i
> don't why i have it this bad, the eye doctor said i
> have it to the
> exstreem, and he has not seen anyone with this
> amount of sensitivity
> to light as me, don't understand why it effects me
> so bad, i can't
> work because of it, and i want to work and do so
> much, but i can't,
> because i get really ill from it.
> Its a shame there is know help for us out there,
> they say its not life
> threatening, but to me it feel like it is, my life
> is crap and im in
> constant pain.
> Sorry if it a bit depressing.
> Michaela
>
>


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Tue Dec 12, 2006 8:39 am

lucygleeson1uk
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Message #1175 of 1249 |
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Hello all I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any...
Nicky Traill
ntraill@...
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Oct 10, 2001
5:14 am

Hi Nicky, I've had Adie's since 1992. I also tried the pilocarpine drops. It was nice having your vision improve, even if it was for a short time. That was...
MStafford@...
pea007nut
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Oct 21, 2001
9:25 pm

Hi to all Does anyone find it unbearable going into shops or places with spot lights and halogen lights, almost everywhere has them now they are the worse for...
michaela_rees
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Dec 11, 2006
6:06 pm

Michaela I so understand your *pain* with shops and the such. In an office environment - with the flourescent lighting is the worst for me, along with...
ozzymommy1962
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Dec 11, 2006
7:23 pm

hi michaela, really sorry to hear that, you may have already tried it but if not alternative therapies may well help with the pain - they are also very...
lucy gleeson
lucygleeson1uk
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Dec 12, 2006
8:39 am

Hi Thanks for your emails Im not coping with this very well,do you think the pain can still ease after four years or unlikly to now ?, i couldn't bare to think...
michaela_rees
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Dec 12, 2006
5:56 pm

I don't think the Meds brought on the Adie's. It was probably already there thats why you had back pain & headaches which is brought on by the light. My neck...
Trish
qcgirl63
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Dec 12, 2006
11:11 pm

Hi Michaela, Ever tried pilocarpine eye-drops? The normal solution of 1 or 2% is much too strong and is really for another purpose ("glaucoom" in dutch), but...
pieterb12
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Dec 13, 2006
8:53 am

... them that ... summers ... when I ... to ... in ... coming ... this... ... spot ... are the ... and ... improved but trying to avoid the lights, which is...
michaela_rees
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Dec 14, 2006
8:29 am

Hi I have tried pilicarpine at 1% to 10 saline and that was to strong, i will ask my doctor if i could try a weaker solution, i don't see a eye doctor anymore...
michaela_rees
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Dec 14, 2006
8:47 am

Hi, although Adies' could have some origin in auto-immune diseases according to researchers, everybody has different circumstances and symptoms, with some...
pieterb12
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Dec 14, 2006
9:57 am

Hi Peiter Could you send me the solution ingredients, i could ask my doctor if he could give me a prescription to try it, thankyou. I understand what you say,...
michaela_rees
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Dec 15, 2006
2:36 pm

Hi Michaela, my eyedrops bottle says: -SOL BENZALK ET AC BOR 60 ML (that's only solution fluids and can differ) -PILOCARPINI HYDROCHLORIDUM 37.5 MG ...
pieterb12
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Dec 15, 2006
3:04 pm

just for sure: 1/16th = 0.0625% 1/8th = 0.1250% ... said i...
pieterb12
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Dec 15, 2006
3:13 pm

Hi Pieter Thankyou for info, i will see my doctor, it will be next Friday now before i can see him, so i will ask him for a prescription for the same dose that...
michaela_rees
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Dec 15, 2006
5:26 pm

Roberta, I hope your recovery is going well. Hi Francesco. Margo ... From: Roberta Favarin To: adie_syndrome@yahoogroups.com Sent: Tuesday, October 16, 2001...
MStafford@...
pea007nut
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Oct 21, 2001
9:29 pm

... been unable to find much information about it on the net and would appreciate any information on cause and, if any, information on how to help me improve...
bobbikesandantiques
bobbikesanda...
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Jun 30, 2003
1:10 pm
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