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Reply | Forward Message #1174 of 1249 |
Re: Lights


Michaela

I so understand your *pain* with shops and the such. In an office
environment - with the flourescent lighting is the worst for me,
along with department and grocery stores with the same lighting. I
start my new job in an office on Dec. 12th - tomorrow, and I am so
not looking forward to it all. I am doing it for the retirement and
the paycheck. Not only is the lighting and sun bothersome, the
computer itself can be quite difficult. One thing that adds to my
*problem* is that I am dyslexic as well. I have had this FUN thing
called Adies Pupil for 14 years - that I know of. Not a great
combination at all. I have been dyslexic all of my life and I kind
of taught myself how to read and all of that of which todays society
gets special ed classes for. Headaches? I am a walking headache. I
now take regular generic Ibuprifen at 600 mgs or perscription
strength at 800 mgs. I only take this when I literally cannot take
the pain any longer in my head (migranes) and do not want to deal
with side effects from prescribed migrane drugs. I guess that I have
delt with pain in my head for so long, that unless I'm almost
throwing up I'm kind of used to it. People do get used to chronic
pain. Had lots of scans and mri's and yes, I do still have a
brain :o) My main wish with this *condition* is that my kids don't
ever have to deal with it. From what I gather - they don't know if
there can be a heredity issue with this.

I guess what it all boils down to ~ for me, is this; though I may
have my really bad days - to me, it's better than the alternative. I
also thank God for overcast hazy and rainy days ;o)

I wish all of you a Very Merry Christmas (even though it is probably
not politically correct to do so now adays) and a Happy Happy New
year!
Kath

--- In adie_syndrome@yahoogroups.com, "michaela_rees"
<michaela_rees@...> wrote:
>
> Hi to all
> Does anyone find it unbearable going into shops or places with
spot
> lights and halogen lights, almost everywhere has them now they are
the
> worse for me instant headaches, muscle tension and dissiness, and
> thats with my sunglasses on and cap, my headaches have not
improved
> over four years now and there is nothing that i can take for them
that
> helps, but trying to avoid the lights, which is impossible unless
i
> stay home all day long with lights really low, its a nightmare and
i
> don't why i have it this bad, the eye doctor said i have it to the
> exstreem, and he has not seen anyone with this amount of
sensitivity
> to light as me, don't understand why it effects me so bad, i can't
> work because of it, and i want to work and do so much, but i
can't,
> because i get really ill from it.
> Its a shame there is know help for us out there, they say its not
life
> threatening, but to me it feel like it is, my life is crap and im
in
> constant pain.
> Sorry if it a bit depressing.
> Michaela
>





Mon Dec 11, 2006 7:19 pm

ozzymommy1962
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Forward
Message #1174 of 1249 |
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Hello all I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any...
Nicky Traill
ntraill@...
Send Email
Oct 10, 2001
5:14 am

Hi Nicky, I've had Adie's since 1992. I also tried the pilocarpine drops. It was nice having your vision improve, even if it was for a short time. That was...
MStafford@...
pea007nut
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Oct 21, 2001
9:25 pm

Hi to all Does anyone find it unbearable going into shops or places with spot lights and halogen lights, almost everywhere has them now they are the worse for...
michaela_rees
Offline Send Email
Dec 11, 2006
6:06 pm

Michaela I so understand your *pain* with shops and the such. In an office environment - with the flourescent lighting is the worst for me, along with...
ozzymommy1962
Offline Send Email
Dec 11, 2006
7:23 pm

hi michaela, really sorry to hear that, you may have already tried it but if not alternative therapies may well help with the pain - they are also very...
lucy gleeson
lucygleeson1uk
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Dec 12, 2006
8:39 am

Hi Thanks for your emails Im not coping with this very well,do you think the pain can still ease after four years or unlikly to now ?, i couldn't bare to think...
michaela_rees
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Dec 12, 2006
5:56 pm

I don't think the Meds brought on the Adie's. It was probably already there thats why you had back pain & headaches which is brought on by the light. My neck...
Trish
qcgirl63
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Dec 12, 2006
11:11 pm

Hi Michaela, Ever tried pilocarpine eye-drops? The normal solution of 1 or 2% is much too strong and is really for another purpose ("glaucoom" in dutch), but...
pieterb12
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Dec 13, 2006
8:53 am

... them that ... summers ... when I ... to ... in ... coming ... this... ... spot ... are the ... and ... improved but trying to avoid the lights, which is...
michaela_rees
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Dec 14, 2006
8:29 am

Hi I have tried pilicarpine at 1% to 10 saline and that was to strong, i will ask my doctor if i could try a weaker solution, i don't see a eye doctor anymore...
michaela_rees
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Dec 14, 2006
8:47 am

Hi, although Adies' could have some origin in auto-immune diseases according to researchers, everybody has different circumstances and symptoms, with some...
pieterb12
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Dec 14, 2006
9:57 am

Hi Peiter Could you send me the solution ingredients, i could ask my doctor if he could give me a prescription to try it, thankyou. I understand what you say,...
michaela_rees
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Dec 15, 2006
2:36 pm

Hi Michaela, my eyedrops bottle says: -SOL BENZALK ET AC BOR 60 ML (that's only solution fluids and can differ) -PILOCARPINI HYDROCHLORIDUM 37.5 MG ...
pieterb12
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Dec 15, 2006
3:04 pm

just for sure: 1/16th = 0.0625% 1/8th = 0.1250% ... said i...
pieterb12
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Dec 15, 2006
3:13 pm

Hi Pieter Thankyou for info, i will see my doctor, it will be next Friday now before i can see him, so i will ask him for a prescription for the same dose that...
michaela_rees
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Dec 15, 2006
5:26 pm

Roberta, I hope your recovery is going well. Hi Francesco. Margo ... From: Roberta Favarin To: adie_syndrome@yahoogroups.com Sent: Tuesday, October 16, 2001...
MStafford@...
pea007nut
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Oct 21, 2001
9:29 pm

... been unable to find much information about it on the net and would appreciate any information on cause and, if any, information on how to help me improve...
bobbikesandantiques
bobbikesanda...
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Jun 30, 2003
1:10 pm
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