Hi to all
Does anyone find it unbearable going into shops or places with spot
lights and halogen lights, almost everywhere has them now they are the
worse for me instant headaches, muscle tension and dissiness, and
thats with my sunglasses on and cap, my headaches have not improved
over four years now and there is nothing that i can take for them that
helps, but trying to avoid the lights, which is impossible unless i
stay home all day long with lights really low, its a nightmare and i
don't why i have it this bad, the eye doctor said i have it to the
exstreem, and he has not seen anyone with this amount of sensitivity
to light as me, don't understand why it effects me so bad, i can't
work because of it, and i want to work and do so much, but i can't,
because i get really ill from it.
Its a shame there is know help for us out there, they say its not life
threatening, but to me it feel like it is, my life is crap and im in
constant pain.
Sorry if it a bit depressing.
Michaela
Hello all I am a newly diagnosed sufferer of Adies-Holmes Syndrome, I have been unable to find much information about it on the net and would appreciate any...
Nicky Traill
ntraill@...
Oct 10, 2001 5:14 am
Hi Nicky, I've had Adie's since 1992. I also tried the pilocarpine drops. It was nice having your vision improve, even if it was for a short time. That was...
Hi to all Does anyone find it unbearable going into shops or places with spot lights and halogen lights, almost everywhere has them now they are the worse for...
Michaela I so understand your *pain* with shops and the such. In an office environment - with the flourescent lighting is the worst for me, along with...
hi michaela, really sorry to hear that, you may have already tried it but if not alternative therapies may well help with the pain - they are also very...
Hi Thanks for your emails Im not coping with this very well,do you think the pain can still ease after four years or unlikly to now ?, i couldn't bare to think...
I don't think the Meds brought on the Adie's. It was probably already there thats why you had back pain & headaches which is brought on by the light. My neck...
Hi Michaela, Ever tried pilocarpine eye-drops? The normal solution of 1 or 2% is much too strong and is really for another purpose ("glaucoom" in dutch), but...
... them that ... summers ... when I ... to ... in ... coming ... this... ... spot ... are the ... and ... improved but trying to avoid the lights, which is...
Hi I have tried pilicarpine at 1% to 10 saline and that was to strong, i will ask my doctor if i could try a weaker solution, i don't see a eye doctor anymore...
Hi, although Adies' could have some origin in auto-immune diseases according to researchers, everybody has different circumstances and symptoms, with some...
Hi Peiter Could you send me the solution ingredients, i could ask my doctor if he could give me a prescription to try it, thankyou. I understand what you say,...
Hi Michaela, my eyedrops bottle says: -SOL BENZALK ET AC BOR 60 ML (that's only solution fluids and can differ) -PILOCARPINI HYDROCHLORIDUM 37.5 MG ...
Hi Pieter Thankyou for info, i will see my doctor, it will be next Friday now before i can see him, so i will ask him for a prescription for the same dose that...
Roberta, I hope your recovery is going well. Hi Francesco. Margo ... From: Roberta Favarin To: adie_syndrome@yahoogroups.com Sent: Tuesday, October 16, 2001...
... been unable to find much information about it on the net and would appreciate any information on cause and, if any, information on how to help me improve...