Headaches do run right along with Adies and until they have walked a
mile in our shoes they will never understand.
Trish.


>
> I have Aides Tonic Pupil in both eyes. My left one was affected 3
> years ago and my right eye became affected in February of this
year.
> Since waking up that morning, I have had a continuous migrane
> headache. My vision is disrupted meaning I see a constant shadow
> around objects and it is hard to focus. I am sensitive to bright
> sunlight but otherwise lighting does not seem to affect me.
> I have tried 31 prescribed medications since February but nothing
> seems to break the headache.
> I have just returned from my second trip to Mayo clinic. (This is
> where I was finally diagnosed with Aides) They have told me that
the
> migrane is not associated with Aide's Syndrome. Yet they cannot
> explain why the pupil fixation and the headache started on the same
> morning. They have told me that they do not know what else to do to
> relieve the headache and they cannot tell me when it will go away
or
> what is medically causing it. Their statement to me was it could go
> away in one day, one week, two years, or maybe never. They have no
> answers. This is the answer that I am so graciously accept from
> world renown doctors? I am having just a little bit of trouble
> stomaching their answer.
> My sister found your site for me today as she realized how
desperate
> I have become to try to get answers about this syndrome and the
> possible migrane relation. I was reviewing past blogs and some of
> you have mentioned headaches so I am hoping that you can give me
> more details about the degree of your headache and the length that
> you have experienced it.
> It is so troubling that more is not known about this disease and
> doctors are so quick to say what is and is not related without
doing
> more research regarding the disease itself.
> I would greatly appreciate any information you can provide for me.
> Thanks!
>