I'm in my second year and am getting pain on one side in my leg and arm, especially later in the day. I am also losing my ability to see. I'm wondering if anyone else is experiencing this. It's not that I can't see, but I have periods were I have a delay in understanding what I'm seeing, and then only with some other kind of sensory stimulation (ie. touch, sound, smell). My doctor has told me that this will eventually be a permanent condition. Has anyone else experienced this?

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From: "cstrienen" <cstrienen@...>
Reply-To: adie_syndrome@yahoogroups.com
To: adie_syndrome@yahoogroups.com
Subject: [adie_syndrome] info everyone
Date: Fri, 15 Sep 2006 09:19:03 -0000

Hi all,

Everybody who has adie are different cases. I mean one can stand
light others have no problem with it. One has dizzines or headaches
others don't. Many symptoms but very different.
Though i am curious if there are symptoms that some people with adie
syndrome have after a few years.

At my history in this forum you can see that my pupil is small, this
in contridiction for the first year. Bought glasses etc. but all for
nothing because i can see clerly now.

But in those two years the sideeffects are increasing. That means if
it are side effects. Beside of the sweating on one side of my body
(the drops are falling on my body on that side.., so my t-shirts are
getting wet in the summer on that side.

But beside that now for three weeks i have a pain in the ride arm on
the upperside of the arm. The pain is mostly at night. Went to the
doctor but he sais look at it for some time then we will see. But i
don't know how to lay the arm at night in rest.

Anyone else has this experience?