the sinus problem has gone and my eye doesn't hurt
anymore which means i'm totally unaware of it most the
time..
--- MStafford <Mstafford220@...> wrote:

> lucygleeson1uk,
> Curious, what is gone? The sinus problem or
> the adie pupil? Mine has
> gotten smaller over the years but still remains slow
> to react.
> ms
> ----- Original Message -----
> From: "lucygleeson1uk" <lucygleeson1uk@...>
> To: <adie_syndrome@yahoogroups.com>
> Sent: Thursday, July 13, 2006 4:44 AM
> Subject: [adie_syndrome] Re: Alternative Treatments
>
>
> > hi roberta
> > thankyou for sharing your experiences, very
> interesting and i couldn't
> > agree more about
> > using these drops when doctors don't seem to know
> much about adies. i too
> > have found
> > alternative treatment much more effective, i had
> awful sinus problems
> > which was definitely
> > interlinked with the adies but thanks to some
> remedies it's now gone
> > after 6 or 7 years!
> > --- In adie_syndrome@yahoogroups.com, "Roberta"
> <bobjo16@...> wrote:
> >>
> >> Hi all! I've been reading the site for awhile
> now and thought I
> >> might share a recent experience. I was diagnosed
> with Adie's about a
> >> year and a half ago now. I have always had
> sluggish reflexes,
> >> migraines, and there was even some talk of
> temporal lobe epilepsy at
> >> one point (which was never proven). Then I woke
> one morning with my
> >> right pupil not reactive and feeling quite woozy.
> Upon testing, my
> >> reflexes were gone as well.
> >>
> >> The neuro-opthamologist who diagnosed me knew
> very little about
> >> Adie's and wasn't quite sure what to tell me. He
> did mention that
> >> there were medications and drops to be tried, but
> sunglasses were the
> >> best solution. So, I started wearing the glasses
> and the wooziness
> >> improved. I've found that I have incredible night
> vision, with some
> >> depth perception problems. I have been getting
> headaches throughout
> >> and pain in my eyes. I would get sudden attacks
> of wooziness,
> >> headache, eye pain and distorted sight, which I
> would have to just
> >> sleep off.
> >>
> >> Last month I got one of these attacks and it
> wouldn't go away, so saw
> >> one of my dr's colleagues that I had never met
> (my doctor was out of
> >> town). He had one other patient with Adies in his
> 50 year career, and
> >> had done research on the subject. He was
> concerned that I seemed to
> >> have lost some of my sight in the last 8 months.
> He consulted with a
> >> neuro-opthamologist, who commented that it was
> just Adie's and I
> >> should take some advil (does anyone else just
> want to drop kick some
> >> doctors?). The doctor I was seeing had some other
> ideas, though, and
> >> these are what I wanted to share.
> >>
> >> His first comment was that he felt that Adie's
> Tonic is caused by
> >> migraines that are left untreated. As a child, I
> had migraines that
> >> did not hurt and he felt that I probably still
> do, but have just
> >> learned to ignore them. He gave some
> recommendations on how to treat
> >> that and sent me directly to an optometrist that
> he knew was familiar
> >> with Adie's.
> >>
> >> This fellow prescribed glasses to correct my
> sight, some of which I
> >> had lost (we have no idea why) which are also
> tinted and treated to
> >> protect my eyes. These are very similar,
> apparently, to glasses worn
> >> by people with Irlen's Syndrome, and it has made
> all the difference.
> >> I can wear lighter glasses, with a sunglass
> attachment for outside.
> >> My sight, obviously, has improved, and my
> perception of colour and
> >> shadow is greatly improved. I really recommend
> trying this course of
> >> treatment. I'm not sure exactly what they did to
> the lenses, but they
> >> are a "rose/magenta" tint with a bunch of
> adjustments and had to be
> >> special ordered in (I do live in a large urban
> area, so this was
> >> unusual).
> >>
> >> For myself, I don't feel that the drops or
> medications are a healthy
> >> way to treat this disorder, and I don't agree
> with doctors
> >> prescribing these when they are not experienced
> with the disorder.
> >> I've found that the advil migraine formual works
> for my headaches, if
> >> I take it as soon as one is coming on. I also
> keep the lighting in my
> >> home dim and don't watch tv or work on a computer
> often in the
> >> evenings. I do work on a computer in a
> fluorescent lit office all day
> >> quite successfully. Since getting the new
> glasses, I have been
> >> enjoying sailing and other outdoor activities
> more, something that I
> >> really couldn't do last summer, because of the
> glare and sunshine. I
> >> wear hats when it gets really sunny out. I also
> find the meditation
> >> helps (probably because I'm resting).
> >>
> >> I hope some of this information helps someone out
> there. I did get
> >> all the doom and gloom stories when I was first
> diagnosed, I am
> >> losing sight for some reason, I often still have
> eye discomfort (and
> >> probably always will) and my balance is
> definitely not what it used
> >> to be, but I'm optimistic. My son has Asperger's
> Syndrome (an
> >> autistic disorder) and I take my lead from him.
> He is the bravest,
> >> strongest person I know and my discomfort seems
> small in comparison.
> >> Hang in there gang! If we keep educating the
> doctors out there, there
> >> are bound to better treatments coming along.
> >>
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
>
>




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