Just typed adie's syndrome into Yahoo and came up with this site.

I'm 28 year old woman. I was diagnosed with Adie's about 6 or 7 years
ago. My specialist at the hospital told me what it was. Literally that
is all. I asked the causes and implications and she just shrugged and
said no one really knew. There was NOTHING on the net at the time

So apart from the headaches and a slightly freaky looking eye and the
usual visual impairments you would expect, I've pretty much forgotten
about it.

Should I be worried about deterioration? Should I be doing something
else? Do doctors know more about it now and would it be worth going
back to get something for the headaches? Or shall I just leave well
alone

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