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Re: Digest Number 458   Message List  
Reply | Forward Message #1120 of 1249 |
Re: Digest Number 458 - LW

Hello LW

I'm not sure which website you mean - the other Yahoo group or a
Neurolink website? Well I'm a member of the Yahoo group but don't run
it, and as I've said I have no commercial interest in Neurolink. I
only mention it because it *seemed* to help (not cure) *me* and I
think it's worth trying some things when doctors, neurologists etc
have nothing to offer us.

I'm reluctant to share my experience because of reactions like yours
but I would feel remiss if I didn't share what has given me some
relief from symptoms. People can then make up their own minds about
whether or not it might be helpful to them. I would also like to hear
what other people have found helpful in managing Adie's pupils.

Believe it or not I'm a skeptic too and very wary of the many 'snake
oil merchants' as you call them out there. I have no idea how or why
Neurolink or other treatments that use kinesiology work but they seem
to for some people. I am just another person with long term health
problems including an Adie's pupil.

Jay - my real name.



--- In adie_syndrome@yahoogroups.com, LW <LWinOly@...> wrote:
>
> I didn't see anything on that website that would even remotely have
anything to do with Adies. Tell me about the 'treatment' you
received....it smells of $ and greed. I don't like advertising, or
praying upon people with 'snake oil or medicine man' approaches. I'm
a skeptic, and question everything. Jay or whoever you are, go
somewhere else with your BS. I'm open to new break-throughs, but this
is NOT anything near that.
>







Fri Apr 28, 2006 10:59 pm

axtis7
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Message #1120 of 1249 |
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I didn't see anything on that website that would even remotely have anything to do with Adies. Tell me about the 'treatment' you received....it smells of $...
LW
lwinoly
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Apr 26, 2006
3:29 pm

Hello LW I'm not sure which website you mean - the other Yahoo group or a Neurolink website? Well I'm a member of the Yahoo group but don't run it, and as I've...
axtis7
Offline Send Email
Apr 28, 2006
10:59 pm
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